New abnormal test results

zappelina · 11-24-2005, 02:54 AM

Hi! Must report about some news I got today. I have told you about the woman I´m in touch with who had a bad reaction to paxil after years on the drug and was taken off it in 6 days. She´s been having the same problems as I have with cramps, twitches and lots of muscle overactivity. She found a neurologist who believes her and has earlier reported about objective proof of connective tissue damage. She has now had an EMG test and it showed extensive nerve and muscle overactivity.

Delynbetter · 11-24-2005, 04:47 AM

It doesn't surprise me. So sad.

Let's see. What could Glaxo's possible response be? That either her diagnosis that led to her Paxil prescription could be the cause - or that these are just symptoms of her anxiety coming back and she should go back on the meds. OR that her symptoms that led to her diagnosis that led to her prescription were actually early signs of these latest test findings. Yeah, I think the last one will suit them just fine.

zappelina · 11-24-2005, 06:24 AM

If GSK as much as tried those arguments I´d give them a hard time winning the debate. The woman was prescibed Paxil more than10 years ago for grief after the death of a family member! She was on Paxil for 9 years. But I suppose GSK would try to claim that their poison kept the underlying disease from manifesting and that the onset of it wouldn´t have happened if she had continued to take her Paxil

genevieve · 11-24-2005, 10:03 AM

I think this is interesting. I have a lot of muscle twitching now. I mean : a lot!!! I almost never talk about it since it is not severe (I mean : I feel a little twitch, it is only weird, it does not hurt) but I have maybe 3 twitches every hour and it is really always, not only when I am tired/tense. I have had twitching at places I did not even knew I had muscles!

zappelina · 11-24-2005, 10:16 AM

Me too! There are days when I have hundreds of them everywhere but it´s definitely worst in my left leg where I first felt the weakness after the first dose reduction. The leg doesn´t function properly anymore.

MizzT · 11-24-2005, 10:44 AM

Zapp....im hoping you will get more info as it develops...if the neurologist is able to do anything to help the situation. can you get that info if things progress??

twitches.....I have them like ever minute or so....at least. my left hand between index and thumb. my right calf, thigh, left leg, various back muscles, face muscles......and my right arm does this twist thing at the elbow where the whole arm flips over.

Jerks....usually start with a tingling pain somewhere....or like a fireant biting. then BAM the neck snaps back and the spine goes rigid into a jerk. Sometimes this happens numerous times in a short period and is accompanied by a fairly deep trance-like, unresponsive period. eyes rolling back, eyes watering profusely. That combo effect is what i call a "seizure".

yes....my feeling has been that its excessive GABA-ergic activity...on the glutamic acid side of the equation.

zappelina · 11-24-2005, 11:39 AM

Bev, I can get the info and as usual I will post it here whenever I hear something new. So far the problems have been proved but nothing has been done to treat them and personally I doubt that much can be done for those of us who can´t go back on the pills for a slower taper and this woman is one of us. They are probably looking for other explanations to her problems, known diseases etc, but as usual they probably won´t find any. Anyway, objective and documented proof is valuable, if the same problems can be verified in many SSRi victims we may finally have a chance to get them officially linked to the SSRIs.

Funny you should mention the neck jerks and the stiff spine - I just had one a minute ago. My spine is completely stiff from the shoulders down all the time but the neck part of it is usually soft and when the jerks come my head is quickly thrown backwards, like a whiplash, and the neck part of the spine also goes completely stiff. It´s horrible and I hate it! Happens a couple of times every day.

elisa · 11-24-2005, 12:22 PM

She has now had an EMG test and it showed extensive nerve and muscle overactivity.

I believe that the above is definitely NOT an emotional problem and that therefore GSK would not be able to defend itself on that one.

Additionally, If the lady in question didn't have these symptoms prior to taking Paxil and no other drugs were taken, everything else ruled out by additional tests, it should be clear that her condition is caused by the drug. That's my view on it.

Mind you, Big Pharma has all the resources to get themselves out of about everything.

zappelina · 11-24-2005, 01:00 PM

Of course it´s not an emotional problem and those of us who have this condition know that but the doctor´s still try to write it off as such. The lady was just lucky because the twitching happened while she was examined by the neurologist. I have seen neurologist and told him about it and he didn´t care or didn´t beleve me. Will see another one on Dec 16th, hope he´s abit more respectful.

elisa · 11-24-2005, 01:11 PM

Quote:

Originally Posted by zappelina

Of course it´s not an emotional problem and those of us who have this condition know that but the doctor´s still try to write it off as such. The lady was just lucky because the twitching happened while she was examined by the neurologist. I have seen neurologist and told him about it and he didn´t care or didn´t beleve me. Will see another one on Dec 16th, hope he´s abit more respectful.

Hopefully, the new neurologist will consider what you are going through zap and take the appropriate action through proper tests. At least, you know now what test to ask for.... Good luck with the neurologist!

zappelina · 11-24-2005, 01:21 PM

Thanks Elisa!

MizzT · 11-24-2005, 01:50 PM

Quote:

Originally Posted by zappelina

Funny you should mention the neck jerks and the stiff spine - I just had one a minute ago. My spine is completely stiff from the shoulders down all the time but the neck part of it is usually soft and when the jerks come my head is quickly thrown backwards, like a whiplash, and the neck part of the spine also goes completely stiff. It´s horrible and I hate it! Happens a couple of times every day.

yeah......i got the cabbage finished....the dried fruit stewed, the goose cleaned and stuffed and in the oven, a pepper roasted for antipasto.....and then dared to "think" about something i shouldnt have.....and went into a complete seizure. at least i feel 'em comin' now so i asked hubby to get my pillow and i layed down on the kitchen floor and twitched away for 30 min while he tapped for me. woke up in time to remind him to turn the oven down to 325.
that's the funny thing....my mind works fine during it.....i just cant see, talk, move (except jerk), function at all. then the head comes back in stages til im on my feet again.

im gonna sauna and see if that helps.

it sucks. i havent gone "out" like that in like 2 weeks, so its an improvement...but not great. the jerks...they have been happening several to numerous times a day.

zappelina · 11-24-2005, 03:59 PM

This sounds scary, Bev! I had similar things going on for quite a long period but it hasn´t happened for a few months now. Hope yours stop soon! Do you take any medication for it?

MizzT · 11-24-2005, 04:07 PM

Quote:

Originally Posted by zappelina

Do you take any medication for it?

well...uh...no...that's how i got this way in the first place!! *joking*
If its real bad and long lasting...i take a bit of ativan and it knocks me out and usually the next day there is no problem. But often we can do our tapping thing and it calms me enough so i dont need anything. Tonight im pretty relaxed. the sauna helped. I might have a glass of port and tempt fate. But i doubt i will need anything else.

the goose smells great. belly full of that and i should sleep like a baby!

zappelina · 11-24-2005, 04:32 PM

Quote:

Originally Posted by MizzB

the goose smells great. belly full of that and i should sleep like a baby!

About to go to bed on my dinner of a slice of toast, a piece of cucumber and some lettuce

eileen · 11-24-2005, 06:41 PM

Bev's dinner sounds delicious. I'm so sorry for the lady with the nerve and muscle damage. My neck used to jerk all the time and has slowed down since my withdrawal. Now it seems like head jerks. It's like my head is really tight most of the time.
My husband and I are wondering if I had a seizure the other night. I thought it might have been body jerks, but he told me to-day I was (like trembling) all over. I got him to go downstairs and get me 0.5mg of ativan and fell asleep.
Bev what does the tapping do?
eileen

MizzT · 11-24-2005, 09:33 PM

Quote:

Originally Posted by eileen

Bev what does the tapping do?
eileen

We have 2 types of tapping that we do. NMT....which is what my doc does for me....but i also do on my own....will help "clear" emotional issues. It helps ground me and settle me down almost immediately. its a matter of focusing intention on the problem...and doing the tapping sequence.

EFT is the other one. NMT you only tap one point while changing how you are breathing. EFT you tap 12 different acupressure points while stating a verbal affirmation relating to the problem. It also helps clear the issue from the body.

Sounds strange but it totally relates to how acupuncture works...with added personal intention. It can be incredibly powerful when done properly. My doc has used it for many many things on me. Allergies are pretty much 100% gone after 1 treatment. 2 treatments that happened in the past year have ridded me of PMS bothers....AND cleared up nearly all cramps from period.

Then there have been other things we have done with it that are more subtle....and detox treatments that leave me in serious detox mode for like a week afterwards. pretty cool stuff.

11-24-2005, 02:54 AM	#1
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,387	New abnormal test results Hi! Must report about some news I got today. I have told you about the woman I´m in touch with who had a bad reaction to paxil after years on the drug and was taken off it in 6 days. She´s been having the same problems as I have with cramps, twitches and lots of muscle overactivity. She found a neurologist who believes her and has earlier reported about objective proof of connective tissue damage. She has now had an EMG test and it showed extensive nerve and muscle overactivity. __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-24-2005, 04:47 AM	#2
Delynbetter Join Date: May 2005 Location: Texas Posts: 10,769	Re: New abnormal test results It doesn't surprise me. So sad. Let's see. What could Glaxo's possible response be? That either her diagnosis that led to her Paxil prescription could be the cause - or that these are just symptoms of her anxiety coming back and she should go back on the meds. OR that her symptoms that led to her diagnosis that led to her prescription were actually early signs of these latest test findings. Yeah, I think the last one will suit them just fine.

11-24-2005, 06:24 AM	#3
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,387	Re: New abnormal test results If GSK as much as tried those arguments I´d give them a hard time winning the debate. The woman was prescibed Paxil more than10 years ago for grief after the death of a family member! She was on Paxil for 9 years. But I suppose GSK would try to claim that their poison kept the underlying disease from manifesting and that the onset of it wouldn´t have happened if she had continued to take her Paxil __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-24-2005, 10:03 AM	#4
genevieve Join Date: Mar 2003 Location: montréal, canada Posts: 1,441	Re: New abnormal test results I think this is interesting. I have a lot of muscle twitching now. I mean : a lot!!! I almost never talk about it since it is not severe (I mean : I feel a little twitch, it is only weird, it does not hurt) but I have maybe 3 twitches every hour and it is really always, not only when I am tired/tense. I have had twitching at places I did not even knew I had muscles! __________________ paxil free since july 2003 Still dealing with agoraphobia and anxiety

11-24-2005, 10:16 AM	#5
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,387	Re: New abnormal test results Me too! There are days when I have hundreds of them everywhere but it´s definitely worst in my left leg where I first felt the weakness after the first dose reduction. The leg doesn´t function properly anymore. __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-24-2005, 10:44 AM	#6
MizzT Banned Join Date: Apr 2004 Location: NM Posts: 6,866	Re: New abnormal test results Zapp....im hoping you will get more info as it develops...if the neurologist is able to do anything to help the situation. can you get that info if things progress?? twitches.....I have them like ever minute or so....at least. my left hand between index and thumb. my right calf, thigh, left leg, various back muscles, face muscles......and my right arm does this twist thing at the elbow where the whole arm flips over. Jerks....usually start with a tingling pain somewhere....or like a fireant biting. then BAM the neck snaps back and the spine goes rigid into a jerk. Sometimes this happens numerous times in a short period and is accompanied by a fairly deep trance-like, unresponsive period. eyes rolling back, eyes watering profusely. That combo effect is what i call a "seizure". yes....my feeling has been that its excessive GABA-ergic activity...on the glutamic acid side of the equation.

11-24-2005, 11:39 AM	#7
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,387	Re: New abnormal test results Bev, I can get the info and as usual I will post it here whenever I hear something new. So far the problems have been proved but nothing has been done to treat them and personally I doubt that much can be done for those of us who can´t go back on the pills for a slower taper and this woman is one of us. They are probably looking for other explanations to her problems, known diseases etc, but as usual they probably won´t find any. Anyway, objective and documented proof is valuable, if the same problems can be verified in many SSRi victims we may finally have a chance to get them officially linked to the SSRIs. Funny you should mention the neck jerks and the stiff spine - I just had one a minute ago. My spine is completely stiff from the shoulders down all the time but the neck part of it is usually soft and when the jerks come my head is quickly thrown backwards, like a whiplash, and the neck part of the spine also goes completely stiff. It´s horrible and I hate it! Happens a couple of times every day. __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-24-2005, 12:22 PM	#8
elisa Join Date: Jul 2004 Location: Ontario, Canada Posts: 11,473	Re: New abnormal test results She has now had an EMG test and it showed extensive nerve and muscle overactivity. I believe that the above is definitely NOT an emotional problem and that therefore GSK would not be able to defend itself on that one. Additionally, If the lady in question didn't have these symptoms prior to taking Paxil and no other drugs were taken, everything else ruled out by additional tests, it should be clear that her condition is caused by the drug. That's my view on it. Mind you, Big Pharma has all the resources to get themselves out of about everything. __________________ On A/D's since 1995, switching due to side-effects on 30 different brands of TCA's, SSRI's, SNRI's, Antipsychotics, Benzo's & Imovane. 6 ECT's. Tapering from 225 mg Effexor XR May 17, 2004. (Equiv. to 60 mg Paxil) Last taper Effexor XR Jan 17, 2006 down to ZERO. Currently protracted withdrawal. Sept 2006: 25 mg Doxepin. March 13/09: 10 mg Desipramine

11-24-2005, 01:00 PM	#9
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,387	Re: New abnormal test results Of course it´s not an emotional problem and those of us who have this condition know that but the doctor´s still try to write it off as such. The lady was just lucky because the twitching happened while she was examined by the neurologist. I have seen neurologist and told him about it and he didn´t care or didn´t beleve me. Will see another one on Dec 16th, hope he´s abit more respectful. __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-24-2005, 01:21 PM	#11
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,387	Re: New abnormal test results Thanks Elisa! __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-24-2005, 03:59 PM	#13
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,387	Re: New abnormal test results This sounds scary, Bev! I had similar things going on for quite a long period but it hasn´t happened for a few months now. Hope yours stop soon! Do you take any medication for it? __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-24-2005, 06:41 PM	#16
eileen Join Date: Sep 2005 Location: Canada Posts: 10,526	Re: New abnormal test results Bev's dinner sounds delicious. I'm so sorry for the lady with the nerve and muscle damage. My neck used to jerk all the time and has slowed down since my withdrawal. Now it seems like head jerks. It's like my head is really tight most of the time. My husband and I are wondering if I had a seizure the other night. I thought it might have been body jerks, but he told me to-day I was (like trembling) all over. I got him to go downstairs and get me 0.5mg of ativan and fell asleep. Bev what does the tapping do? eileen __________________ June 13/07-reducing by .05mg. every four weeks to present. October 29/08-Paxil Free 2006-Cut Trazodone from 150mg to 100mg. Sept 07/09- Trazodone 75mg. 4/10 Weaning Benzo. 12/11 Benzo Free! Started this journey of horror with AD's in 1994, Put on Paxil 30 mg in Feb/1995 I will survive!

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