Please tell me I don't have dystonia...

[pax80]

I walk in a different way
My hands feel clumbsy
My vocal cords are still affected
My legs shake and feel rigid

I'm freakin' out... please tell me it goes away...

[Buxy`s Back]

paul,it does get better hun,the first part is the worst honest,i used to feel i was walking like a crab but don`t any more,bearing in mind i appear to be a long timer the only thing i have bad at times still is the feeling o9ut of it vision stuff,calm down hun this aint forever honest,i know im not there yet but it does get easier to deal with,yes i still have hard hits with illness and stress ect but overall things do improve((((((((hugs))))))))

[pax80]

thanks... but these symptoms are mentioned on "PANES"...I'm really scared... thanks for you support and immediate relief

[Johnnny off Paxil]

Unfortunately..these are the symptoms of WD..as you know what happened to me while driving yesterday..so..lets make an agreement here..we more or less both have been on Paxil for the same amount of time..we are both more or less along the same time off this stuff 4 months getting to 5 months.
So lets keep each other "current" as to whats happening.. apparently things do get better..



We both know that for some horrible reason, the motor function of the hands and feet are affected..sometimes just tingling and burning sensations for me right up to partial paralysis for a few minutes..this does freak me out..no doubt...that why I am going to get a CAT scan and seeing a neurologist..just to make sure.

Quote from a 'Thyroid article"

You Have Dysautonomia

Imbalances in the autonomic nervous system - known as dysautonomia - are more common in autoimmune thyroid disease. In dysautonomia, the sympathetic system - part of the autonomic nervous system that controls the body's "fight or flight" reactions - becomes unbalanced. Symptoms of dysautonomia can include anxiety attacks and rapid heartbeat, among many other symptoms.

I think this happens because the thyroid gland is also adversely affected during withdrawal..I really believe this.... bouncing back and forth between hypo and hyper.....

Regards, JOhnny

[safarigal]

I had all kinds of withdrawal affects that eventually did go away.

Don't get yourself freaked out!

[pax80]

Johnny is dysautonomia long lasting...OMG...that's worse than dystonia...I'm going to puke tell me something nice ,man

[LCrawford67]

Stop reading these things! The problem we have, while going through w/d, is reading all these frightening articles. Then, we think we're experiencing everything known to man.

While you're recovering, read only uplifting articles. Things about people successfully overcoming w/d, the Lounge section of this forum. If you don't the w/d tricks your mind into believing you're have some horrible condition from which you're never recover.

[pax80]

Originally Posted by LCrawford67

Stop reading these things! The problem we have, while going through w/d, is reading all these frightening articles. Then, we think we're experiencing everything known to man.

While you're recovering, read only uplifting articles. Things about people successfully overcoming w/d, the Lounge section of this forum. If you don't the w/d tricks your mind into believing you're have some horrible condition from which you're never recover.

I know that, but everything matches and...you know...our minds are really miserable...

[Fleet86]

Originally Posted by paxisnt4ever

I walk in a different way
My hands feel clumbsy
My vocal cords are still affected
My legs shake and feel rigid

I'm freakin' out... please tell me it goes away...

Now, look what happens when I go out to the cinema for the evening!

Heck, Pax, you don't have Dystonia - I HAVE DYSTONIA - 100% diagnosed by top Neurologist and have had it for 11 years.

I promise, you this is transitory. Dystonia is so different that I just don't know how to explain it to you. It's there 24/7 and I had it come on way, way before I even took a dose of Paxil. It doesn't come on like this. This is withdrawal Pax. If you had Dystonia it would have shown signs long before, lots of signs and you really know that something is not working right. Plus it's treatable and controllable and it doesn't kill you. But that's besides the point and you ask away, I am so sure that this is withdrawal.

Now stress of any kind makes every illness or condition worse, including dystonia. I have it in my neck. But it is there anyway. I take my treatment for it and I'm fine - nobody even knows that I have it, unless I tell them. I have to explain it to them.

But this isn't it. It's scary and horrible but it's the withdrawal. I just read your thread title and some of your post and just had to come in here and put you out of your misery as I was certain that this was not it. I will now read in more depth. Please post me any more symptoms you may have that you are feeling or pm me. Please don't worry.

Nicci x

[Fleet86]

Yes, as I thought as I re-read it. No, not at all dystonia.

100% horrible, horrible panic and stress hormones messing up your poor body and mind. That's what this is Pax. It's easy to say to you that you mustn't worry about this but I am so sure it's not Dystonia or any of the related nasty neurologal things. This is transitory. It will go away as fast as it came. The more stories you read about withdrawal from Paxil the more people post and post exactly what you are describing now.

The difficulty in speaking and finding the right word are classic symptoms of withdrawal and are so terrifying at the time. Even Darcy (see his book top left) describes all that and look how well he speaks and writes now. The way you walk and the clumsiness are all caused by tension and fatigue and your body and brain having to heal. I am so sure to of this.

Please believe me on this one. Also, because I think you have such a lot of stress to deal with right now (a wedding is wonderful but I bet everyone here would agree to the nerves before hand) and finding work, that would be enough to cause stress. But you also have a body and mind that are healing for this horrible drug. That's an awful lot to deal with - infact I think you are doing incredibly well Pax. Really I do.

Hope you post so we can get this resolved for you.

Nicci x

[Johnnny off Paxil]

Paul..listen I can if I want to get myself completely freaked out about all of this..which I have done many times. But Dianne is right.. take a couple of deep breaths...KNOW that this will all pass and you like I will "SEE THIS THING THROUGH"..alright so hang in there.
Less wear and tear on the psyche.


Regards, Johnny

[eileen]

Pasixnt, I thought I might have dystonia, but it's getting less and less with each cut of Paxil.
The shrink I had tried to diagnose me with Tourette's and I said no. My family doctor would like to investigate and I said NO! It's hard not to let them mess with you. LOL Take Care!
eileen

[Johnnny off Paxil]

Alto..sure no prob...I bookmarked the link..for myself I find this information VERY interesting...

http://thyroid.about.com/cs/hypothyr...poandhyper.htm


Regards, Johnny

[Buxy`s Back]

bloody hell if had everything that i have symptoms of they would shoot me now,we don`t know the exact things that these drugs cause we can only summise what is happening,too many peeps have had tests for things and nothing has been found,withdrawal mimics every illness known to man,we can only take comfort in those that have recovered and moved on.If you look up all the symptoms of withdrawal it is everything that could relate to serious illness,but we know its not

[Fleet86]

Originally Posted by Buxy`s Back

bloody hell if had everything that i have symptoms of they would shoot me now,we don`t know the exact things that these drugs cause we can only summise what is happening,too many peeps have had tests for things and nothing has been found,withdrawal mimics every illness known to man,we can only take comfort in those that have recovered and moved on.If you look up all the symptoms of withdrawal it is everything that could relate to serious illness,but we know its not

That's just it Jo, withdrawal symptoms - taken in isolation and looked up in a medical dictionary - they relate to all sorts of horrible illnesses. But put all the withdrawal symptoms together and you get 'withdrawal syndrome', a collection of sometimes very nasty symptoms that all have one thing in common - we stopped taking PAXIL.

Pax, I do this too - that's how I understand how you would come to such a diagnosis. I had cronic indigestion and chest pains and I had convinced myself it was actually cancer, only nobody was telling me. Looked up every symptom in the medical dictionary and on-line. Made my will, prepared for the endoscopy, no sedation so that as soon as they said anything sounding cancerous I would hear them. What was it? A flippin great big ulcer caused by cronic indigestion - cured nice and easily with some fab anti-ulcer tablets.

Felt immediately better once I had the correct diagnosis. All those terrible symptoms of cancer disappeared immediately!! The mind is the most powerful thing we have and it can sometimes trick us big time - especially when we are understandably very anxious already.

I have bought the book 'CBT for dummies' as am on long waiting list for the CBT. It's brilliant for making us understand how we can get into these states and how to change the way we think. I recommend books on CBT if the therapy is not available or ages away. Plus, they don't think you are mad at all. Just faulty thinking we pick up along the way in life and pretty much most people can do that. CBT shows quick ways to challenge/divert attention from those scary thoughts.

I do hope that today is a more peaceful day for you Pax. We all love you and care for you so please be kind to yourself and keep in touch. ((((Hugs)))) and prayers for you.

Love from Nicci x

[Buxy`s Back]

Paul ill list some things here that i have convinced myself i have during withdrawal,hope it puts ya mind at rest as i have none of them;
brain tumour
parkinsons
diabetes
angina
dvt(blood clots)
asthma
brain virus
adrenal burnout
cancer
severe hormonal chaos
panic disorder
ocd
generalised anxiety disorder


But the symptoms that i have had that make me believe this crap come and go ,it never lingers long enough for it to be possible to have these.
They are all just symptoms of discontinuation/withdrawal,and yes i agree the brain can panic for no reason,thats the hard part of all this it actually convinces you you are dying and that you have every illness under the sun,but its just the damage we have sustained that our bodies are trying to put right,we have chemical chaos going on,hang in mate grab the sides ,hold on and ride them out as best you can,they do pass,thinking of ya hun

[pax80]

Thank you people. Reading strange articles isn't good for our mind at this present and sensitive period.
I'm on CBT but only once per month, I have no insurance, it's not that expensive, but I'm unemployed and it's hard to manage...

I'm going through my 2nd withdrawal and this has been really tough... Diazepam withdrawal didn't carry out many symptoms, but the few it brought are still present...so...I'm confused and messed up...

[rdjanis]

Breath, don't search any more articles on illnesses.

[pax80]

I promise I won't... It's hard sometimes... but it's harder after reading silly articles....)

[rdjanis]

Exactly, so stay away from them!!

[Buxy`s Back]

Paul,its hard not to read up on symptoms i have done it many times and agree it makes ya freak even more,in withdrawal our sub concious isnt our own and its very influenced by our surroundings ect,so the reaction we get reading this stuff is expected,bloody hell i only have to watch something bad on tv and i freak.But this in itsself is a withdrawal symptom,ya know freaking at everything,hey im having a bad time again right now ,been laid on the sofa for 2 days and the extent of dvds i can watch has been Dr Dolittle2 and bloody See Spot Run,great films but i kinda miss the action of bruce willis and stuff,i feel like im a kid all over again lol

[pax80]

rotflmao...

Buxy I'm sorry you-re 30th off and feeling total crap... when will this "tormento" end for you ...

Keep posting and helping while needing help, I think that makes you feel a tiny winy bit better...

Paulo

[Fleet86]

That's it isn't it? The terrible fear and anxiety withdrawal brings on is enough to make any article etc seem as if 'fits' because as well we have more time alone to think about the things.

I list below the diseases I have thought I had during many many unsuccessful withdrawals:

meningitus (the severe headache)
brain tumour
parkinsons (the shaking)
spinal tumor (weak legs)
thyroid cancer (difficulty swollowing)
heart disease
early menopause (severe sweating)
cancer of stomach
insanity

I can totally relate to you thinking that you have a horrible disease Pax. I the anxiety of withdrawal combined with the freaky symptoms we have to endure during out withdrawals. I defy anyone not to get a bit worried about something being amiss - especially since the doctors/GSK dismiss it all.

That's why this site can be so good in reassuring about all of this. Other people have been terrified in this way too though, if you look back at some of the posts many have also panicked.

Take care,

Nicci x

PS I can't afford private CBT either but have found a book explaining all the basics and how to apply it. It is called 'CBT for Dummies' by Rob Willson and Rhena Branch - you know that series, they do the computer ones too. I am usually a bit rubbish at applying these things but I've got nothing to loose. I have to get sufficiently better to go out and earn some money

[Light]

I really doubt that it's permanent. It can be in some cases but my guess is that this is rare. I think more commonly this is one of the last things to improve and you may have touches of it for years to come but you can expect significant improvement. I am just about to two years and I am finally starting to see some improvement with the muscle/movement stuff. I notice my head twitches much less. I have periods when my muscles are more relaxed... lighter...and my body feels more youthful.