Step towards awareness?

zappelina · 11-04-2005, 07:47 AM

Hi friends!

Pease, keep your fingers crossed for me on Wednesday next week! We (a guy from a drug awareness org and I) have managed to schedule a meeting with a doctor who is the head of the department for drug side effects at our equivalent of the FDA. Another doc who is a general practitioner will also attend. I have written a report about the SSRI withdrawal problems including doctors reports, neonatal withdrawal syndrome, personal experiences, a summary of all the problems reported on this and other forums, the reports I have recieved about common unexplained strange blood test results etc. and this will be handed over to them. Hope we can make them listen and take it seriously.
Will tell you about it next week.

rdjanis · 11-04-2005, 08:00 AM

This is great news zappeline! Wishing you a successful meeting with them!!

scotty · 11-04-2005, 08:42 AM

Good for you Zappeline! If I can help with any information, just ask!!

Delynbetter · 11-04-2005, 08:50 AM

Woohoo Zapp! Start the educating!

zappelina · 11-04-2005, 10:45 AM

Quote:

Originally Posted by scotty

Good for you Zappeline! If I can help with any information, just ask!!

Thanks a lot Laurie! Just wish I would have had enough time and strength to make the material a bit more complete, would like to have things like copies of proof of BigPharma hiding or failing to report serious side effects and wd complications from the trials etc. but that is not possible to get and include before the meeting, it will have to be the next phase of our work.

This meeting and information is just the beginning of what we are planning to do. Everything takes a lot of time though because I´m the one who has to do most of the job and as you know I´m in miserable physical condition. Anyway, I plan to continue with my work after the meeting and I´m interested in whatever material you have regarding all SSRIs/SNRIs.

elisa · 11-04-2005, 12:14 PM

It's GREAT what you're doing Zap!!

It must have been a lot of work gathering all of the information you're going to present at the meeting!!

I wish you awesome success and hope that you will open some eyes in the process!!

It's a BIG job that you're doing!! Thank you for bringing awareness.

zappelina · 11-04-2005, 12:47 PM

Well Elisa, I just can´t sit by and take this crap without tryig to do something about it. Must keep my mind focused on something, my body and nerve system has gone completely insane and I´ll probably have to crawl out of the house with an ice pack on my head and my bottle of lidocain for numbing my burning mouth to get through it but I´ll get there and present my material. Won´t miss this chance, no way!

elisa · 11-04-2005, 01:15 PM

Zapp, it's great that you are doing the work!

Mind you, I let my fingers do the walking. A few days ago I discovered a Dutch forum so I've been posting there quite a bit as well. Most of the time I'm looking up words in the dictionary because I've forgotten so much. To top it off, many want the info in Dutch. Fact is that, as you now, the research articles are in English.

Some have already visited paxilprogress. It's a long and arduous journey to bring awareness and not everyone appreciates the truth, mainly because it's scary.

zappelina · 11-04-2005, 03:13 PM

Do you speak Dutch? Good! We must keep spreading info in as many languages as we can. I´m surprised I haven´t seen any Dutch members on PP, many Dutch people speak quite good English.

When I get some more energy I thought I´d start translating doctor´s reports into Swedish. I think it will be easier to get the doctors I see to read them if they´re translated and translating from English to Swedish is a piece of cake, much easier than the other way round...

elisa · 11-04-2005, 04:13 PM

Quote:

Originally Posted by zappelina

Do you speak Dutch? Good! We must keep spreading info in as many languages as we can. I´m surprised I haven´t seen any Dutch members on PP, many Dutch people speak quite good English.

When I get some more energy I thought I´d start translating doctor´s reports into Swedish. I think it will be easier to get the doctors I see to read them if they´re translated and translating from English to Swedish is a piece of cake, much easier than the other way round...

I was born in Holland and lived there for a total of 27 years. Don't speak or write the language except when in contact with family members. So it's harder for me to translate from English into Dutch.

Yes, there was a dutch member on this forum, forgot his name. Some visit as guests and even purchased withdrawl guides as per their recount.

Spreading awareness without a language barrier would be sooo much easier.

zappelina · 11-05-2005, 02:23 AM

Quote:

Originally Posted by elisa

Spreading awareness without a language barrier would be sooo much easier.

Indeed but we´re doing quite well aren´t we? And if you lived in Holland for 27 years your Dutch is probably much better than my English, I lived two years in England. Keep posting news and info on the Dutch boards!

11-05-2005, 07:13 AM

good for you zapp :0)

fingers crossed here !

MizzT · 11-05-2005, 11:16 AM

good work Zapp!!!! that sounds amazing! i wish you all the luck in the world with it! im glad you are able to focus on something and hopefully find some folks to help you...and also bring awareness yet another step closer to where it needs to be!!!

Im sending you lots of white light and strength. go give 'em hell and a sticky handshake!!

xoxoxoxxox

zappelina · 11-05-2005, 12:09 PM

Quote:

Originally Posted by MizzB

Im sending you lots of white light and strength. go give 'em hell and a sticky handshake!!

xoxoxoxxox

Thanks for the white light! I´ll give them a sticky handshake allright and make sure my hands are really sticky on Wednesday, I know how to by now, and I´ll kick some a** as well! Please read the new thread about damage proof that I have posted in the general discussion. Dynamite from the country of Alfred Nobel!

dar7726 · 11-05-2005, 01:14 PM

Way to go Zappelina, I'm so excited for you. Awareness is sometimes all we have, even if it is a hard pill for some to swallow.

Darlene

eileen · 11-07-2005, 12:13 PM

Good for you zappenila, I'm so proud of you. You have done a lot of work even in your weakened condition. Good Luck on Wednesday.
eileen

zappelina · 11-08-2005, 06:34 AM

Thanks a lot! Will prepare myself a bit today and take a last look at my material. Will kick some doctor´s a** tomorrow, it needs to be done regardless of what state I´m in, someone has to do it and who can do it better than a prolonged withdrawal sufferer?

eileen · 11-08-2005, 08:13 AM

Hi Zapp, It would be nice if you could leave the print of you boot on some rear ends, that would stay there for awhile. Unfortunately it is not allowed. Sighhhhhhhhhhhh. I'm sure you will be good with the words however from your posts in here. Good Luck
eileen

scotty · 11-08-2005, 10:18 AM

Zap, just picture all of us standing behind you!! We ARE there!!

Shellshock · 11-08-2005, 10:33 AM

Hi Zap,

We haven't corresponded in a while, but I just want to say how very brave I think you are are to be tackling something so important whilst suffering like you do.

You go girl and the very best of luck to you!!

Shellshock x

zappelina · 11-08-2005, 11:00 AM

Thanks for the encouragement everone! I´m normally not afraid of speaking in front of people but I´m a tiny bit nervous about this. I´ll visualize you all sitting there beside me and I´ll imagine nurse Laurie´s caring hand on my shoulder and I´ll do just fine if I´m not too dizzy and my breathing isn´t too bad. Lots of sufferers here in Sweden are behind me as well.

MizzT · 11-08-2005, 11:15 AM

i think its incredible that you are able to do this....AND have all your ducks in a row and so much info for them! Not to mention all the unbelievable symptoms that you can walk in and actually show them! we ARE all behind you!!! we ARE there patting you on the back and with a strong hand on your shoulder!!!!

wishing you much strength and love and light! you will do GREAT!!!!!

Shellshock · 11-09-2005, 05:48 PM

Is it today that Zap had her appointment?

If so, has anyone heard any news from her?

Hope it went well for her, will await an update !

Shellshock

eileen · 11-09-2005, 06:51 PM

Zapp is probably exhausted after all that. She is so very brave. I can't wait to hear from her either.
eileen

MizzT · 11-09-2005, 07:13 PM

i figure she was exhausted too. just waiting patiently.
ZAPPPPP What happened??????
inquiring minds want to know!

11-04-2005, 07:47 AM	#1
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,389	Step towards awareness? Hi friends! Pease, keep your fingers crossed for me on Wednesday next week! We (a guy from a drug awareness org and I) have managed to schedule a meeting with a doctor who is the head of the department for drug side effects at our equivalent of the FDA. Another doc who is a general practitioner will also attend. I have written a report about the SSRI withdrawal problems including doctors reports, neonatal withdrawal syndrome, personal experiences, a summary of all the problems reported on this and other forums, the reports I have recieved about common unexplained strange blood test results etc. and this will be handed over to them. Hope we can make them listen and take it seriously. Will tell you about it next week. __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-04-2005, 08:00 AM	#2
rdjanis "has a lavender scented keyboard" Join Date: Mar 2004 Location: Ontario Posts: 22,238	Re: Step towards awareness? This is great news zappeline! Wishing you a successful meeting with them!! __________________ Rita

11-04-2005, 08:42 AM	#3
scotty Administrator & Advocate Join Date: Feb 2004 Location: new jersey Posts: 38,590	Re: Step towards awareness? Good for you Zappeline! If I can help with any information, just ask!! __________________ AKA Laurie "If you can find a path with no obstacles, it probably doesn't lead anywhere." ~Frank A. Clark

11-04-2005, 08:50 AM	#4
Delynbetter Join Date: May 2005 Location: Texas Posts: 10,518	Re: Step towards awareness? Woohoo Zapp! Start the educating!

11-04-2005, 12:14 PM	#6
elisa Join Date: Jul 2004 Location: Ontario, Canada Posts: 11,509	Re: Step towards awareness? It's GREAT what you're doing Zap!! It must have been a lot of work gathering all of the information you're going to present at the meeting!! I wish you awesome success and hope that you will open some eyes in the process!! It's a BIG job that you're doing!! Thank you for bringing awareness. __________________ On A/D's since 1995, switching due to side-effects on 30 different brands of TCA's, SSRI's, SNRI's, Antipsychotics, Benzo's & Imovane. 6 ECT's. Tapering from 225 mg Effexor XR May 17, 2004. (Equiv. to 60 mg Paxil) Last taper Effexor XR Jan 17, 2006 down to ZERO. Currently protracted withdrawal. Sept 2006: 25 mg Doxepin. March 13/09: 10 mg Desipramine

11-04-2005, 12:47 PM	#7
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,389	Re: Step towards awareness? Well Elisa, I just can´t sit by and take this crap without tryig to do something about it. Must keep my mind focused on something, my body and nerve system has gone completely insane and I´ll probably have to crawl out of the house with an ice pack on my head and my bottle of lidocain for numbing my burning mouth to get through it but I´ll get there and present my material. Won´t miss this chance, no way! __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-04-2005, 01:15 PM	#8
elisa Join Date: Jul 2004 Location: Ontario, Canada Posts: 11,509	Re: Step towards awareness? Zapp, it's great that you are doing the work! Mind you, I let my fingers do the walking. A few days ago I discovered a Dutch forum so I've been posting there quite a bit as well. Most of the time I'm looking up words in the dictionary because I've forgotten so much. To top it off, many want the info in Dutch. Fact is that, as you now, the research articles are in English. Some have already visited paxilprogress. It's a long and arduous journey to bring awareness and not everyone appreciates the truth, mainly because it's scary. __________________ On A/D's since 1995, switching due to side-effects on 30 different brands of TCA's, SSRI's, SNRI's, Antipsychotics, Benzo's & Imovane. 6 ECT's. Tapering from 225 mg Effexor XR May 17, 2004. (Equiv. to 60 mg Paxil) Last taper Effexor XR Jan 17, 2006 down to ZERO. Currently protracted withdrawal. Sept 2006: 25 mg Doxepin. March 13/09: 10 mg Desipramine

11-04-2005, 03:13 PM	#9
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,389	Re: Step towards awareness? Do you speak Dutch? Good! We must keep spreading info in as many languages as we can. I´m surprised I haven´t seen any Dutch members on PP, many Dutch people speak quite good English. When I get some more energy I thought I´d start translating doctor´s reports into Swedish. I think it will be easier to get the doctors I see to read them if they´re translated and translating from English to Swedish is a piece of cake, much easier than the other way round... __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-05-2005, 07:13 AM	#12
Redking Posts: n/a	Re: Step towards awareness? good for you zapp :0) fingers crossed here !

11-05-2005, 11:16 AM	#13
MizzT Banned Join Date: Apr 2004 Location: NM Posts: 6,881	Re: Step towards awareness? good work Zapp!!!! that sounds amazing! i wish you all the luck in the world with it! im glad you are able to focus on something and hopefully find some folks to help you...and also bring awareness yet another step closer to where it needs to be!!! Im sending you lots of white light and strength. go give 'em hell and a sticky handshake!! xoxoxoxxox

11-05-2005, 01:14 PM	#15
dar7726 Banned Join Date: Apr 2004 Location: Kentucky Posts: 3,488	Re: Step towards awareness? Way to go Zappelina, I'm so excited for you. Awareness is sometimes all we have, even if it is a hard pill for some to swallow. Darlene

11-07-2005, 12:13 PM	#16
eileen Join Date: Sep 2005 Location: Canada Posts: 9,272	Re: Step towards awareness? Good for you zappenila, I'm so proud of you. You have done a lot of work even in your weakened condition. Good Luck on Wednesday. eileen __________________ June 13/07-reducing by .05mg. every four weeks to present. October 29/08-Paxil Free 2006-Cut Trazodone from 150mg to 100mg. Sept 07/09- Trazodone 75mg. Started this journey of horror with AD's in 1994, Put on Paxil 30 mg in Feb/1995 I will survive!

11-08-2005, 06:34 AM	#17
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,389	Re: Step towards awareness? Thanks a lot! Will prepare myself a bit today and take a last look at my material. Will kick some doctor´s a** tomorrow, it needs to be done regardless of what state I´m in, someone has to do it and who can do it better than a prolonged withdrawal sufferer? __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-08-2005, 08:13 AM	#18
eileen Join Date: Sep 2005 Location: Canada Posts: 9,272	Re: Step towards awareness? Hi Zapp, It would be nice if you could leave the print of you boot on some rear ends, that would stay there for awhile. Unfortunately it is not allowed. Sighhhhhhhhhhhh. I'm sure you will be good with the words however from your posts in here. Good Luck eileen __________________ June 13/07-reducing by .05mg. every four weeks to present. October 29/08-Paxil Free 2006-Cut Trazodone from 150mg to 100mg. Sept 07/09- Trazodone 75mg. Started this journey of horror with AD's in 1994, Put on Paxil 30 mg in Feb/1995 I will survive!

11-08-2005, 10:18 AM	#19
scotty Administrator & Advocate Join Date: Feb 2004 Location: new jersey Posts: 38,590	Re: Step towards awareness? Zap, just picture all of us standing behind you!! We ARE there!! __________________ AKA Laurie "If you can find a path with no obstacles, it probably doesn't lead anywhere." ~Frank A. Clark

11-08-2005, 10:33 AM	#20
Shellshock Join Date: Sep 2005 Location: England Posts: 716	Re: Step towards awareness? Hi Zap, We haven't corresponded in a while, but I just want to say how very brave I think you are are to be tackling something so important whilst suffering like you do. You go girl and the very best of luck to you!! Shellshock x __________________ Prescribed Seroxat 20mg January 2001 (For Panic Attacks) Soon increased to 40mg (Within approx 1 Month) Started Withdrawal June 2004 Seroxat Free since Sept 2004 Nov 2007 - Still having difficult time and w/d nowhere near complete as yet

11-08-2005, 11:00 AM	#21
zappelina Join Date: Mar 2005 Location: Sweden Posts: 2,389	Re: Step towards awareness? Thanks for the encouragement everone! I´m normally not afraid of speaking in front of people but I´m a tiny bit nervous about this. I´ll visualize you all sitting there beside me and I´ll imagine nurse Laurie´s caring hand on my shoulder and I´ll do just fine if I´m not too dizzy and my breathing isn´t too bad. Lots of sufferers here in Sweden are behind me as well. __________________ AD history: Celexa 20 mg 1997-98. Quit CT, no WD problems. Paxil/Seroxat 20 mg 2001-2003 then switched to 50 mg Zoloft without any WD problems after the switch. Zoloft later increased to 75 mg. 2004 tapered Zoloft too quickly after sudden onset of muscle stiffness and extreme restlessness on full dose. Severe and prolonged WD problem with a long list of symptoms. Considerable mental but very little physical improvement so far. Last Zoloft dose April 18 2004.

11-08-2005, 11:15 AM	#22
MizzT Banned Join Date: Apr 2004 Location: NM Posts: 6,881	Re: Step towards awareness? i think its incredible that you are able to do this....AND have all your ducks in a row and so much info for them! Not to mention all the unbelievable symptoms that you can walk in and actually show them! we ARE all behind you!!! we ARE there patting you on the back and with a strong hand on your shoulder!!!! wishing you much strength and love and light! you will do GREAT!!!!!

11-09-2005, 05:48 PM	#23
Shellshock Join Date: Sep 2005 Location: England Posts: 716	Re: Step towards awareness? Is it today that Zap had her appointment? If so, has anyone heard any news from her? Hope it went well for her, will await an update ! Shellshock __________________ Prescribed Seroxat 20mg January 2001 (For Panic Attacks) Soon increased to 40mg (Within approx 1 Month) Started Withdrawal June 2004 Seroxat Free since Sept 2004 Nov 2007 - Still having difficult time and w/d nowhere near complete as yet

11-09-2005, 06:51 PM	#24
eileen Join Date: Sep 2005 Location: Canada Posts: 9,272	Re: Step towards awareness? Zapp is probably exhausted after all that. She is so very brave. I can't wait to hear from her either. eileen __________________ June 13/07-reducing by .05mg. every four weeks to present. October 29/08-Paxil Free 2006-Cut Trazodone from 150mg to 100mg. Sept 07/09- Trazodone 75mg. Started this journey of horror with AD's in 1994, Put on Paxil 30 mg in Feb/1995 I will survive!

11-09-2005, 07:13 PM	#25
MizzT Banned Join Date: Apr 2004 Location: NM Posts: 6,881	Re: Step towards awareness? i figure she was exhausted too. just waiting patiently. ZAPPPPP What happened?????? inquiring minds want to know!

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