My dream

texgirl · 10-06-2006, 10:37 AM

I just had an amazing phone call from my mom, who'is an amazing person. She's been through the ups and downs of Paxhell with me, and is always calm and supportive and really, really wise. Anyway, I was talking to her last night about my latest fear (see "Scary phone call from doctor" if you don't know what I'm referring to) and I dissolved in tears telling her that I feel so guilty about my anxiety because it's paralyzing me and keeping me from doing what I want to do more than anything in the world, which is to help others. She called me back this morning to say that I need to remember that before I took an SSRI there was nothing wrong with me, and that once I get these drugs out of my system I will be okay again and able to go for my dreams. She also said that I need to trust that God is working for me even if I can't hear him, that he's there in the support I get from Paxil Progress, from my therapist, my family and friends . . .

Anyway, that brings me to my dream. I want to get drug-free and find a way to take the information we're all gaining here from each other onto a larger stage. I'm not sure how this would work, really. I was just thinking, wouldn't it be wonderful if there were a place that people like us could go (physically, not just in cyberspace) to deal with the problems of withdrawal? If we could find supportive doctors, counselors, a network of professionals and recovered laypersons to provide support for others in this situation? As far as I know, most traditional rehabs don't deal with w/d from ADs. But as we all know, this problem is mushrooming, and it's only going to get worse the longer these drugs are out there and more and more people begin to have problems with w/d or poopout. This forum is a godsend, but to turn it into an actual PLACE, with people you could physically laugh and cry with, and HUG . . .

Oh, well. That is my dream.

Delynbetter · 10-06-2006, 10:39 AM

Some have been working on this. Money to start it and insurance coverage for the patients are a big hurdle. It will happen some day.

texgirl · 10-06-2006, 10:41 AM

Well, I want it duly noted that I intend to be part of it one day.

LCrawford67 · 10-06-2006, 10:41 AM

That's a beautiful dream, Tex. And I believe it'll happen one day, we're meant to be together.

Homerbcool · 10-06-2006, 10:53 AM

BUILD IT AND THEY WILL COME..except the funds for these centers will come from GSK, LILLY wt all as part of the settlement for screwing over millins and millions and fro putting the nations securioty at risk..Hey now there is an angle to play out...

Anyhow, in the settlemetn GSK etall, will be forced to finacne these centers...but not be a aprt of them..."SEND US THE MONEY"...

Hey a fella can dream too cant he....

texgirl · 10-06-2006, 10:57 AM

Maybe this could be similar to the lawsuits the tobacco companies went through a few years ago settling with the survivors of those who died of lung disease. In other words, "Fund this center for getting people off your damn drugs or we'll totally bankrupt you."

I know, I'm very naive.

Amaya's Nana · 10-06-2006, 10:59 AM

Quote:

Originally Posted by texgirl

Maybe this could be similar to the lawsuits the tobacco companies went through a few years ago settling with the survivors of those who died of lung disease. In other words, "Fund this center for getting people off your damn drugs or we'll totally bankrupt you."

I know, I'm very naive.

That's not naive!!! That's enlarging your vision

LCrawford67 · 10-06-2006, 11:01 AM

Not naive at all!

texgirl · 10-06-2006, 11:02 AM

I don't have the first idea how one goes about becoming an activist for this sort of thing. We need Laurie (Scotty) to jump in here!

texgirl · 10-06-2006, 12:28 PM

The model that comes to mind is the Midwest Center for Stress and Anxiety, which was founded through the activism of a recovered anxiety sufferer, Lucinda Bassett, in conjunction with a family physician, Dr. Philip Fisher, who'd become frustrated with the "revolving door" system of patients on drugs who never seemed to get better and wanted to find a way of treating anxiety and depression through behavioral changes and thought replacement therapy. I have no idea how the MWC grew from that idea into the company it is today, but there should be a seed of hope and inspiration there.

LCrawford67 · 10-06-2006, 12:30 PM

Maybe you could contact someone there, Lucinda herself, and find out.

texgirl · 10-06-2006, 12:33 PM

I actually have an email and telephone relationship with Carolyn Dickman, the educational director of the MWC. Might be a place to start.

Good thinking, LC!

10-06-2006, 10:37 AM	#1
texgirl The original" F$%^you "gal, from the cranky corner! Join Date: May 2006 Posts: 2,977	My dream I just had an amazing phone call from my mom, who'is an amazing person. She's been through the ups and downs of Paxhell with me, and is always calm and supportive and really, really wise. Anyway, I was talking to her last night about my latest fear (see "Scary phone call from doctor" if you don't know what I'm referring to) and I dissolved in tears telling her that I feel so guilty about my anxiety because it's paralyzing me and keeping me from doing what I want to do more than anything in the world, which is to help others. She called me back this morning to say that I need to remember that before I took an SSRI there was nothing wrong with me, and that once I get these drugs out of my system I will be okay again and able to go for my dreams. She also said that I need to trust that God is working for me even if I can't hear him, that he's there in the support I get from Paxil Progress, from my therapist, my family and friends . . . Anyway, that brings me to my dream. I want to get drug-free and find a way to take the information we're all gaining here from each other onto a larger stage. I'm not sure how this would work, really. I was just thinking, wouldn't it be wonderful if there were a place that people like us could go (physically, not just in cyberspace) to deal with the problems of withdrawal? If we could find supportive doctors, counselors, a network of professionals and recovered laypersons to provide support for others in this situation? As far as I know, most traditional rehabs don't deal with w/d from ADs. But as we all know, this problem is mushrooming, and it's only going to get worse the longer these drugs are out there and more and more people begin to have problems with w/d or poopout. This forum is a godsend, but to turn it into an actual PLACE, with people you could physically laugh and cry with, and HUG . . . Oh, well. That is my dream. __________________ Completely free from psychiatry since 8/5/07 If we are fools enough to remain at the mercy of the people who want to sell us happiness, it will be impossible for us to ever be content with anything. How would they profit if we became content? (Thomas Merton)

10-06-2006, 10:39 AM	#2
Delynbetter Join Date: May 2005 Location: Texas Posts: 10,518	Re: My dream Some have been working on this. Money to start it and insurance coverage for the patients are a big hurdle. It will happen some day. __________________ Diagnosed anxiety/panic disorder without agoraphobia 1989. Talk/music therapy. Major anxiety and mild depression in 2004 from situational stressors. Began Paxil CR 25mg, 10/04. Quit cold-turkey 5/5/05 as demanded by doctor. Found paxilprogress 5/17/05. Began Paxil CR 12.5mg 5/17/05. Weaned 4 1/2 months. During taper - anx/panic/depression, manic episodes, agoraphobia, suicidal ideation, many other physical symptoms. Paxil-free 10/2/05.

10-06-2006, 10:41 AM	#3
texgirl The original" F$%^you "gal, from the cranky corner! Join Date: May 2006 Posts: 2,977	Re: My dream Well, I want it duly noted that I intend to be part of it one day. __________________ Completely free from psychiatry since 8/5/07 If we are fools enough to remain at the mercy of the people who want to sell us happiness, it will be impossible for us to ever be content with anything. How would they profit if we became content? (Thomas Merton)

10-06-2006, 10:41 AM	#4
LCrawford67 Moderator "Everybody poops" Join Date: Mar 2006 Location: Ohio Posts: 26,493	Re: My dream That's a beautiful dream, Tex. And I believe it'll happen one day, we're meant to be together. __________________ aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 If the only prayer you said in your whole life was, "thank you," that would suffice. ~Meister Eckhart Thanksgiving, man. Not a good day to be my pants. ~Kevin James

10-06-2006, 10:53 AM	#5
Homerbcool "colors outside the lines" Join Date: Jan 2005 Posts: 15,949	Re: My dream BUILD IT AND THEY WILL COME..except the funds for these centers will come from GSK, LILLY wt all as part of the settlement for screwing over millins and millions and fro putting the nations securioty at risk..Hey now there is an angle to play out... Anyhow, in the settlemetn GSK etall, will be forced to finacne these centers...but not be a aprt of them..."SEND US THE MONEY"... Hey a fella can dream too cant he.... __________________ That's one of the curses of anxiety--we make possibilities into certainties.....Tim

10-06-2006, 10:57 AM	#6
texgirl The original" F$%^you "gal, from the cranky corner! Join Date: May 2006 Posts: 2,977	Re: My dream Maybe this could be similar to the lawsuits the tobacco companies went through a few years ago settling with the survivors of those who died of lung disease. In other words, "Fund this center for getting people off your damn drugs or we'll totally bankrupt you." I know, I'm very naive. __________________ Completely free from psychiatry since 8/5/07 If we are fools enough to remain at the mercy of the people who want to sell us happiness, it will be impossible for us to ever be content with anything. How would they profit if we became content? (Thomas Merton)

10-06-2006, 11:01 AM	#8
LCrawford67 Moderator "Everybody poops" Join Date: Mar 2006 Location: Ohio Posts: 26,493	Re: My dream Not naive at all! __________________ aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 If the only prayer you said in your whole life was, "thank you," that would suffice. ~Meister Eckhart Thanksgiving, man. Not a good day to be my pants. ~Kevin James

10-06-2006, 11:02 AM	#9
texgirl The original" F$%^you "gal, from the cranky corner! Join Date: May 2006 Posts: 2,977	Re: My dream I don't have the first idea how one goes about becoming an activist for this sort of thing. We need Laurie (Scotty) to jump in here! __________________ Completely free from psychiatry since 8/5/07 If we are fools enough to remain at the mercy of the people who want to sell us happiness, it will be impossible for us to ever be content with anything. How would they profit if we became content? (Thomas Merton)

10-06-2006, 12:28 PM	#10
texgirl The original" F$%^you "gal, from the cranky corner! Join Date: May 2006 Posts: 2,977	Re: My dream The model that comes to mind is the Midwest Center for Stress and Anxiety, which was founded through the activism of a recovered anxiety sufferer, Lucinda Bassett, in conjunction with a family physician, Dr. Philip Fisher, who'd become frustrated with the "revolving door" system of patients on drugs who never seemed to get better and wanted to find a way of treating anxiety and depression through behavioral changes and thought replacement therapy. I have no idea how the MWC grew from that idea into the company it is today, but there should be a seed of hope and inspiration there. __________________ Completely free from psychiatry since 8/5/07 If we are fools enough to remain at the mercy of the people who want to sell us happiness, it will be impossible for us to ever be content with anything. How would they profit if we became content? (Thomas Merton)

10-06-2006, 12:30 PM	#11
LCrawford67 Moderator "Everybody poops" Join Date: Mar 2006 Location: Ohio Posts: 26,493	Re: My dream Maybe you could contact someone there, Lucinda herself, and find out. __________________ aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 If the only prayer you said in your whole life was, "thank you," that would suffice. ~Meister Eckhart Thanksgiving, man. Not a good day to be my pants. ~Kevin James

10-06-2006, 12:33 PM	#12
texgirl The original" F$%^you "gal, from the cranky corner! Join Date: May 2006 Posts: 2,977	Re: My dream I actually have an email and telephone relationship with Carolyn Dickman, the educational director of the MWC. Might be a place to start. Good thinking, LC! __________________ Completely free from psychiatry since 8/5/07 If we are fools enough to remain at the mercy of the people who want to sell us happiness, it will be impossible for us to ever be content with anything. How would they profit if we became content? (Thomas Merton)

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