Chronic Fatigue Syndrome after full discontinuation of ADs???

BlueEyes · 12-02-2007, 07:51 AM

I've been doing lots of research on the internet, and I keep coming across one common theme - it seems that there are some people who, after fully coming off of ADs, end up with Chronic Fatigue Syndrome(CFS)....

Just curious....

Terri

texgirl · 12-02-2007, 08:39 AM

Fatigue is one of the most common and pervasive symptoms of SSRI withdrawal. Since doctors for the most part refuse to recognize that there is such a thing as SSRI withdrawal, they have to diagnose patients with something they do believe in, so they call it CFS.

mapleleafgirl25 · 12-02-2007, 09:37 AM

yes..that is so true..i have been tired for the last 10 months..and it doesnt help when you dont sleep a full night ever..since the w/d messes your ciridian cycles..i think that is also why we are all so tired..as we never manage to get into the deep sleep..

texgirl · 12-02-2007, 09:42 AM

Paxil messed up my sleep so bad I was sure I would never get a good night's sleep again. That's how I got hooked on benzos. Now finally, 4 months off all the meds, my sleep cycle has finally, mostly, returned to what it was before. Most nights I sleep deeply and have regular (still crazy but no longer violent or terrifying) dreams.

mapleleafgirl25 · 12-02-2007, 09:44 AM

i wont take anything for sleep..i just dont want to put anything else into my body..i just figure that it will eventually go back to its regular cycle naturally..so for now i will just have to deal with the occassional full 6 hr sleep..mostly i get the sleep 2 hrs..wake up..sleep 2 hrs..wake up..ect..

LCrawford67 · 12-02-2007, 11:40 AM

Quote:

Originally Posted by texgirl

Fatigue is one of the most common and pervasive symptoms of SSRI withdrawal. Since doctors for the most part refuse to recognize that there is such a thing as SSRI withdrawal, they have to diagnose patients with something they do believe in, so they call it CFS.

Amen! It's a made up "disease" and it's just part of the w/d process. It doesn't last.

Peggy · 12-02-2007, 03:19 PM

Quote:

Originally Posted by mapleleafgirl25

..mostly i get the sleep 2 hrs..wake up..sleep 2 hrs..wake up..ect..

This 2 hours on(sleep) 2 hours off (awake) is my nights routine anymore too. I am so sick of it.

Dawn B. · 12-02-2007, 04:15 PM

Amen! It's a made up "disease" and it's just part of the w/d process. It doesn't last.

Yes, Laurie, but there was one person posting here that said they have had bad fatigue for 3 years after being totally off Paxil. Maybe it's something else causing it with them.

LCrawford67 · 12-02-2007, 08:10 PM

Dawn, there's certainly exceptions to every rule and nothing is out of the question when it comes to these drugs. But, most of us have experienced horrible fatigue at some point during w/d and it's passed. My point is, this is caused from the SSRIs and not a "disease."

As Texgirl said, "Fatigue is one of the most common and pervasive symptoms of SSRI withdrawal. Since doctors for the most part refuse to recognize that there is such a thing as SSRI withdrawal, they have to diagnose patients with something they do believe in, so they call it CFS."

Dawn B. · 12-02-2007, 09:35 PM

Hi Laurie,
I do understand what you mean, and what you are getting at. It would not surprise me if doctors prescribe Paxil for CFS. I'll bet they do. I myself have experience the fatigue from w/d.

scotty · 12-02-2007, 09:37 PM

That is exactly what they prescribe. Chronic fatigue is a symptom, not disease.

Scott · 12-02-2007, 10:02 PM

it's common to be labeled with chronic fatigue or fibromyalgia after withdrawal

Dawn B. · 12-02-2007, 10:05 PM

Does anyone remember the big uproar with the lawsuit against Dow Corning for silicone implants? They claimed they caused CFS and Fibromyalgia and all sorts of other illnesses. Personally, I think there are a LOT of things that can cause these symptoms.

LCrawford67 · 12-03-2007, 04:18 AM

Yes, I do remember that! That was because of the chemicals leaking out of the implants, wasn't it?

Hischildvalda · 12-03-2007, 04:24 PM

I have had fibromyalgia and chronic fatigue syndrome since 1999. My dr. put me on Paxil as a pain blocker in January 2001. So with fatigue already a part of my life, withdrawing makes it worse. Taking 50 mg. of Provigil to counteract the fague, which helps.

scotty · 12-03-2007, 04:54 PM

Quote:

Originally Posted by Hischildvalda

I have had fibromyalgia and chronic fatigue syndrome since 1999. My dr. put me on Paxil as a pain blocker in January 2001. So with fatigue already a part of my life, withdrawing makes it worse. Taking 50 mg. of Provigil to counteract the fague, which helps.

You might want to read this.

http://www.pharmcast.com/warninglett...phalon0102.htm

Hischildvalda · 12-03-2007, 05:02 PM

Thanks for the heads up, Scotty. I knew it was too good to be true! On the plus side it's wonderful not being so tired that I can't get out of bed. On the other hand . . . .

I will do some research to go along with your link.

scotty · 12-03-2007, 05:18 PM

Quote:

Originally Posted by Hischildvalda

Thanks for the heads up, Scotty. I knew it was too good to be true! On the plus side it's wonderful not being so tired that I can't get out of bed. On the other hand . . . .

I will do some research to go along with your link.

Here's a more recent warning:
http://www.webmd.com/sleep-disorders...l-new-warnings

We had a big discussion about this at work. There are MANY night shift nurses who use this drug....they are having a hard time getting off it.

mapleleafgirl25 · 12-03-2007, 06:52 PM

my doctor prescribed me a sleeping pill when i was going through that high anxiety as i had not slept in weeks..he told me it was the one he was going to take on his vacation to Australia and was very mild..well...i never took it..but i did eventually look it up..as i had never heard of it before..it is called something different here in Canada BUT in the USA its Lunesta and Ambien..i wont be taking it ever..i hate not sleeping that great..but i do want my sleep cycle to return to its state naturally!

Dawn B. · 12-03-2007, 09:12 PM

Laurie,
Yes, that implant lawsuit was due to leaking implants and silicone going into the body, and migrating all over too boot. I have a sister in law that had this happen, and she does have fibromyalgia, but who knows if it's related. Could be, might not be.
My point was that I have heard so many 'things' that cause CFS, or Fibro. Maybe they do cause it. I think when there is something wrong with the body, fatigue and pain is a typical reaction.
So what is this drug, Provigil supposed to do?
I have a huge problem with docs tyring to cover up infirmities with drugs, rather than finding the root cause of it.
I found a homeopath last year because they try to find the root cause, not fill you with drugs. I will say, she had helped lots of people get off SSRIs and said I am one of the toughest cases she has had. Though she said once a man came to her having CT'd and was so bad, he was like a heroine addict with no drugs, and she had to send him to the ER.
<><

12-02-2007, 07:51 AM	#1
BlueEyes Join Date: Oct 2006 Location: Northern New Jersey Posts: 885	Chronic Fatigue Syndrome after full discontinuation of ADs??? I've been doing lots of research on the internet, and I keep coming across one common theme - it seems that there are some people who, after fully coming off of ADs, end up with Chronic Fatigue Syndrome(CFS).... Just curious.... Terri __________________ On Prozac/Trazodone since 1991 Weaned myself off Trazodone 2006 Started off at 25 mg of Prozac in 2006 Did my own slow wean of 1 mg every 4-6 weeks LAST DAY OF PROZAC - August 13, 2009!!!! Major setback after 5 days on bc pills - Started Citalopram 20 mg 5/10 -Back on Prozac/Trazodone combo by 10/2010

12-02-2007, 08:39 AM	#2
texgirl Regina Benzodictius Join Date: May 2006 Posts: 6,147	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Fatigue is one of the most common and pervasive symptoms of SSRI withdrawal. Since doctors for the most part refuse to recognize that there is such a thing as SSRI withdrawal, they have to diagnose patients with something they do believe in, so they call it CFS. __________________ Adverse reaction to Lexapro led to Paxil, 10 months use, 2005. One month taper. Benzos (Xanax, then Klonopin), 2-1/2 years use, 2005-2007. 8 month taper. Completely free from psychiatry since 8/5/07 Face. Accept. Float. Let Time Pass. — Dr. Claire Weekes *We either make ourselves miserable or we make ourselves happy. The amount of work is the same.* — Carlos Castañeda

12-02-2007, 09:37 AM	#3
mapleleafgirl25 Join Date: Aug 2004 Location: Vancouver, Canada Posts: 2,641	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? yes..that is so true..i have been tired for the last 10 months..and it doesnt help when you dont sleep a full night ever..since the w/d messes your ciridian cycles..i think that is also why we are all so tired..as we never manage to get into the deep sleep.. __________________ 3rd attempt at withdrawal going slow..compounded pills Taper: 05/27/2010 - 03/12/12: Tapered From 20mgs - 6.2 (2years) 04/11/2012 - 6.0 05/10/2012 - 5.8 06/09/2012 - 5.6 07/09/2012 - 5.4 80/08/2012 - 5.2 09/07/2012 - 5.0 10/07/2012 - 4.8 11/06/2012 - 4.6 12/06/2012 - 4.4 01/04/2013 - 4.2 02/03/2013 - 4.0 03/05/2013 - 3.8 04/04/2013 - 3.6 05/05/2013 - 3.4 06/04/2013 - 3.2

12-02-2007, 09:42 AM	#4
texgirl Regina Benzodictius Join Date: May 2006 Posts: 6,147	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Paxil messed up my sleep so bad I was sure I would never get a good night's sleep again. That's how I got hooked on benzos. Now finally, 4 months off all the meds, my sleep cycle has finally, mostly, returned to what it was before. Most nights I sleep deeply and have regular (still crazy but no longer violent or terrifying) dreams. __________________ Adverse reaction to Lexapro led to Paxil, 10 months use, 2005. One month taper. Benzos (Xanax, then Klonopin), 2-1/2 years use, 2005-2007. 8 month taper. Completely free from psychiatry since 8/5/07 Face. Accept. Float. Let Time Pass. — Dr. Claire Weekes *We either make ourselves miserable or we make ourselves happy. The amount of work is the same.* — Carlos Castañeda

12-02-2007, 09:44 AM	#5
mapleleafgirl25 Join Date: Aug 2004 Location: Vancouver, Canada Posts: 2,641	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? i wont take anything for sleep..i just dont want to put anything else into my body..i just figure that it will eventually go back to its regular cycle naturally..so for now i will just have to deal with the occassional full 6 hr sleep..mostly i get the sleep 2 hrs..wake up..sleep 2 hrs..wake up..ect.. __________________ 3rd attempt at withdrawal going slow..compounded pills Taper: 05/27/2010 - 03/12/12: Tapered From 20mgs - 6.2 (2years) 04/11/2012 - 6.0 05/10/2012 - 5.8 06/09/2012 - 5.6 07/09/2012 - 5.4 80/08/2012 - 5.2 09/07/2012 - 5.0 10/07/2012 - 4.8 11/06/2012 - 4.6 12/06/2012 - 4.4 01/04/2013 - 4.2 02/03/2013 - 4.0 03/05/2013 - 3.8 04/04/2013 - 3.6 05/05/2013 - 3.4 06/04/2013 - 3.2

12-02-2007, 04:15 PM	#8
Dawn B. Join Date: Aug 2007 Location: Ramona, CA. Posts: 1,351	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Amen! It's a made up "disease" and it's just part of the w/d process. It doesn't last. Yes, Laurie, but there was one person posting here that said they have had bad fatigue for 3 years after being totally off Paxil. Maybe it's something else causing it with them. __________________ Mt 19:26 'With God, all things are possible' Started Paxil 2000 for post partem anxiety Happily on it until it pooped out 2/07 Started cutting down way too fast 7/07 from 20 mg. to 10 mg. and got very sick. Found PP, went back to 13 mg. Waited and waited and never stablized. Began slow wean, down to 7 mg. over a year. Never felt well. Trashed the paxil at 7 mg. in Aug. '08.

12-02-2007, 08:10 PM	#9
LCrawford67 Moderator "Everybody poops" Join Date: Mar 2006 Location: Ohio Posts: 34,485	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Dawn, there's certainly exceptions to every rule and nothing is out of the question when it comes to these drugs. But, most of us have experienced horrible fatigue at some point during w/d and it's passed. My point is, this is caused from the SSRIs and not a "disease." As Texgirl said, "Fatigue is one of the most common and pervasive symptoms of SSRI withdrawal. Since doctors for the most part refuse to recognize that there is such a thing as SSRI withdrawal, they have to diagnose patients with something they do believe in, so they call it CFS." __________________ aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 Today is the best day, EVER!

12-02-2007, 09:35 PM	#10
Dawn B. Join Date: Aug 2007 Location: Ramona, CA. Posts: 1,351	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Hi Laurie, I do understand what you mean, and what you are getting at. It would not surprise me if doctors prescribe Paxil for CFS. I'll bet they do. I myself have experience the fatigue from w/d. __________________ Mt 19:26 'With God, all things are possible' Started Paxil 2000 for post partem anxiety Happily on it until it pooped out 2/07 Started cutting down way too fast 7/07 from 20 mg. to 10 mg. and got very sick. Found PP, went back to 13 mg. Waited and waited and never stablized. Began slow wean, down to 7 mg. over a year. Never felt well. Trashed the paxil at 7 mg. in Aug. '08.

12-02-2007, 09:37 PM	#11
scotty Administrator Join Date: Feb 2004 Location: new jersey Posts: 47,170	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? That is exactly what they prescribe. Chronic fatigue is a symptom, not disease. __________________ AKA Laurie "Faith is taking the first step even when you don't see the whole staircase." MLK

12-02-2007, 10:02 PM	#12
Scott Join Date: Sep 2003 Location: somewhere in between Posts: 11,591	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? it's common to be labeled with chronic fatigue or fibromyalgia after withdrawal __________________ Scott aka Scott What has happened to it all? Crazy, some are saying Where is the life that I recognize? Gone away But I won't cry for yesterday There's an ordinary world Somehow I have to find And as I try to make my way To the ordinary world I will learn to survive surviving an ssri reaction alternative anxiety treatments

12-02-2007, 10:05 PM	#13
Dawn B. Join Date: Aug 2007 Location: Ramona, CA. Posts: 1,351	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Does anyone remember the big uproar with the lawsuit against Dow Corning for silicone implants? They claimed they caused CFS and Fibromyalgia and all sorts of other illnesses. Personally, I think there are a LOT of things that can cause these symptoms. __________________ Mt 19:26 'With God, all things are possible' Started Paxil 2000 for post partem anxiety Happily on it until it pooped out 2/07 Started cutting down way too fast 7/07 from 20 mg. to 10 mg. and got very sick. Found PP, went back to 13 mg. Waited and waited and never stablized. Began slow wean, down to 7 mg. over a year. Never felt well. Trashed the paxil at 7 mg. in Aug. '08.

12-03-2007, 04:18 AM	#14
LCrawford67 Moderator "Everybody poops" Join Date: Mar 2006 Location: Ohio Posts: 34,485	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Yes, I do remember that! That was because of the chemicals leaking out of the implants, wasn't it? __________________ aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 Today is the best day, EVER!

12-03-2007, 04:24 PM	#15
Hischildvalda Join Date: Aug 2007 Location: California Posts: 31	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? I have had fibromyalgia and chronic fatigue syndrome since 1999. My dr. put me on Paxil as a pain blocker in January 2001. So with fatigue already a part of my life, withdrawing makes it worse. Taking 50 mg. of Provigil to counteract the fague, which helps. __________________ Diagnosed with Fibromyalgia May 2000 Started Paxil, 20 mg. Jan. 2001 Reduced to 10 mg. July 18, 2007 Reduced to 5 mg. Oct. 23, 2007 Last dosage taken Nov. 11, 2007 Failed Restarted at 3 mg. Nov. 17, 2007 Reduced to 2.5 mg. Dec. 11, 2007 Liquid Paxil 1 1/2 mg. Jan. 10, 2008 skip every other day Jan. 20, 2008 Last dosage taken Feb. 7, 2008

12-03-2007, 05:02 PM	#17
Hischildvalda Join Date: Aug 2007 Location: California Posts: 31	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Thanks for the heads up, Scotty. I knew it was too good to be true! On the plus side it's wonderful not being so tired that I can't get out of bed. On the other hand . . . . I will do some research to go along with your link. __________________ Diagnosed with Fibromyalgia May 2000 Started Paxil, 20 mg. Jan. 2001 Reduced to 10 mg. July 18, 2007 Reduced to 5 mg. Oct. 23, 2007 Last dosage taken Nov. 11, 2007 Failed Restarted at 3 mg. Nov. 17, 2007 Reduced to 2.5 mg. Dec. 11, 2007 Liquid Paxil 1 1/2 mg. Jan. 10, 2008 skip every other day Jan. 20, 2008 Last dosage taken Feb. 7, 2008

12-03-2007, 06:52 PM	#19
mapleleafgirl25 Join Date: Aug 2004 Location: Vancouver, Canada Posts: 2,641	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? my doctor prescribed me a sleeping pill when i was going through that high anxiety as i had not slept in weeks..he told me it was the one he was going to take on his vacation to Australia and was very mild..well...i never took it..but i did eventually look it up..as i had never heard of it before..it is called something different here in Canada BUT in the USA its Lunesta and Ambien..i wont be taking it ever..i hate not sleeping that great..but i do want my sleep cycle to return to its state naturally! __________________ 3rd attempt at withdrawal going slow..compounded pills Taper: 05/27/2010 - 03/12/12: Tapered From 20mgs - 6.2 (2years) 04/11/2012 - 6.0 05/10/2012 - 5.8 06/09/2012 - 5.6 07/09/2012 - 5.4 80/08/2012 - 5.2 09/07/2012 - 5.0 10/07/2012 - 4.8 11/06/2012 - 4.6 12/06/2012 - 4.4 01/04/2013 - 4.2 02/03/2013 - 4.0 03/05/2013 - 3.8 04/04/2013 - 3.6 05/05/2013 - 3.4 06/04/2013 - 3.2

12-03-2007, 09:12 PM	#20
Dawn B. Join Date: Aug 2007 Location: Ramona, CA. Posts: 1,351	Re: Chronic Fatigue Syndrome after full discontinuation of ADs??? Laurie, Yes, that implant lawsuit was due to leaking implants and silicone going into the body, and migrating all over too boot. I have a sister in law that had this happen, and she does have fibromyalgia, but who knows if it's related. Could be, might not be. My point was that I have heard so many 'things' that cause CFS, or Fibro. Maybe they do cause it. I think when there is something wrong with the body, fatigue and pain is a typical reaction. So what is this drug, Provigil supposed to do? I have a huge problem with docs tyring to cover up infirmities with drugs, rather than finding the root cause of it. I found a homeopath last year because they try to find the root cause, not fill you with drugs. I will say, she had helped lots of people get off SSRIs and said I am one of the toughest cases she has had. Though she said once a man came to her having CT'd and was so bad, he was like a heroine addict with no drugs, and she had to send him to the ER. <>< __________________ Mt 19:26 'With God, all things are possible' Started Paxil 2000 for post partem anxiety Happily on it until it pooped out 2/07 Started cutting down way too fast 7/07 from 20 mg. to 10 mg. and got very sick. Found PP, went back to 13 mg. Waited and waited and never stablized. Began slow wean, down to 7 mg. over a year. Never felt well. Trashed the paxil at 7 mg. in Aug. '08.

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