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Freedom is in you...
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| General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without. |
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#1 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,183
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Could I get some thoughts and opinions
I'm really in a spot where I need some help to sort out what is going on with me. I'm 20 months post c/t. I posted earlier this week I was going back on buspar because I felt I was perhaps going through buspar w/d. I have only been taking 5mg at night because I really don't want to go back on it and am wondering if maybe I am just going through another rough wave instead. I thought that surely this cannot be another wave this bad after I went through the horrible 11-14 month nightmare. I thought it was just supposed to keep getting better after that, which it was, until this started about 7 weeks ago.
My light and sound sensitivities are back big time. My hearing is really messed up. I have anxiety that fluctuates and can be as high as 7 and as low as 2 or 3. My self esteem is fluctuating along with hit. Having all the self-doubts. My negative and paranoid thoughts are fluctuating along with it also. Most nights I am not sleeping well at all. I'm not so sure things are really getting worse by the week like I have said, or if I am just getting tired of fighting it and am really worn down. It gets exhausting keeping busy enough to fight back the anxiety and running from the thoughts. Some days I get windows thoughout the day. I worry that this will not end but reality tells me that it has passed before and should pass this time too. Does anyone post c/t remember having this hit around this time? I keep blaming myself thinking I have done something wrong to cause this. The whole self doubt thing that seems to come with all this stuff. sigh.
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Diane On Paxil for 5+ years Weaned from 40mg to 15 over a 1 1/2 year period. From 15mg-0 May/June 06 (before finding PP) Protracted w/d from c/t. First 10 mths up and down but tolerable. Akathesia hit at 11 months. Many months of terrible mental and physical torture. 3/09 started Prozac but too stimulating. Currently on 15mg Lexapro and feeling so much better. Not all who waunder are lost. |
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#2 |
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Join Date: Nov 2007
Location: London (UK)
Posts: 409
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Re: Could I get some thoughts and opinions
Hey,
Sorry I can't say if it's normal or not. But I'd suggest you keep a journal, to better keep track of how you're feeling. I know on really bad days it seems like I forget the good days. Are there other things going on in your life right now that would cause mental or physical stress? Hang in there
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Esperance 20 mg in '03 for Fibromyalgia Two failed attempts to reduce the dose Nov 2007 - 20 mg gradually reducing to 5 mg So far so good. . . -------------------------- Hope doesn't come from calculating whether the good news is winning out over the bad. It's simply a choice to take action. Anna Lappe |
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#3 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,183
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Re: Could I get some thoughts and opinions
Thanks esperance. No, actually things are going very well. I have been putting my life back together, have made new friends, my best friend just moved back to town after many years of being away. Besides this, no stress at all. I was doing very well at 'living' again.
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Diane On Paxil for 5+ years Weaned from 40mg to 15 over a 1 1/2 year period. From 15mg-0 May/June 06 (before finding PP) Protracted w/d from c/t. First 10 mths up and down but tolerable. Akathesia hit at 11 months. Many months of terrible mental and physical torture. 3/09 started Prozac but too stimulating. Currently on 15mg Lexapro and feeling so much better. Not all who waunder are lost. |
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#4 |
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Join Date: Jul 2005
Location: Portugal
Posts: 3,696
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Re: Could I get some thoughts and opinions
I really dont know what to say, i'm right behind you at 16mth off, i'm not doing very well at the moment, i guess it's another wave...
when we think we are doing great there comes another horrible wave that makes this exhausting... hang in there...
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2002- 10mg diazepam(for a neck pain) 2003- 20mg seroxat(for benzo wd) 2005-stopped diazepam (1 year taper plus acupuncture) 2006-stopped paxil (1 year taper) 3 years free from drugs |
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#5 |
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Moderator
"Everybody poops" Join Date: Mar 2006
Location: Ohio
Posts: 26,493
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Re: Could I get some thoughts and opinions
Diane, you could be going through Buspar w/d. You were off for a while and just went back on this week. Give it a few days to see how you feel.
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aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 If the only prayer you said in your whole life was, "thank you," that would suffice. ~Meister Eckhart Thanksgiving, man. Not a good day to be my pants. ~Kevin James |
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#6 |
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The original" F$%^you "gal,
from the cranky corner! Join Date: May 2006
Posts: 2,977
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Re: Could I get some thoughts and opinions
Buspar is one med we don't see so much around here. The only active member I can think of right now who's been on it was Carrie (csnyder), who if I recall CT'd with no trouble.
That said, Diane, the possibility of w/d from any psychotropic drug would not surprise me at this point, especially in your super-sensitive condition from CTing off Paxil. I certainly don't think that going on 5 mg of Buspar in an attempt to stablize and then doing a slow wean is going to hurt, and it may help. I don't know anything about the properties of Buspar or how long it takes to become effective, but I agree with LC that you may need to give it more time to see the effects. Beyond that, I have to believe that you've just hit another post-Paxil wave and that it will pass. I like Esperance's suggestion that you keep a journal. I know that when I feel good I tend to think it will last forever, and then when I get hit with a rough patch I start believing that I've slid completely back to the bottom of the slope and will never recover. My therapist talks a lot about having someone to help you "hold the memory" of when you felt good, who can remind you of those times when you get a bad spell. If you don't have anyone who can do that for you (like a therapist or trusted friend), a journal might help. Of course, isn't that what we do here for each other every day??? Hugs to you, sweetie, I do believe you'll see the light again soon.
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Completely free from psychiatry since 8/5/07 If we are fools enough to remain at the mercy of the people who want to sell us happiness, it will be impossible for us to ever be content with anything. How would they profit if we became content? (Thomas Merton) |
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#7 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,183
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Re: Could I get some thoughts and opinions
csnyder and I have talked about it when she went off. The difference is that I am not on any AD and she is and I wonder if that makes a difference of feeling w/d symptoms or not. When I started taking buspar before it took 5 days until I noticed some difference and almost 2 weeks before the full effect was felt, so your right, some more time and it might help.
I'm pretty good at the positive self talk and using coping skills. It's easy for me to remember how good I felt a couple of months ago because that is my goal to get back to and that is what keeps me going. I KNOW that it passed before and that waves always pass. Impatience in the process is where I struggle Thanks for the words of encouragement.
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Diane On Paxil for 5+ years Weaned from 40mg to 15 over a 1 1/2 year period. From 15mg-0 May/June 06 (before finding PP) Protracted w/d from c/t. First 10 mths up and down but tolerable. Akathesia hit at 11 months. Many months of terrible mental and physical torture. 3/09 started Prozac but too stimulating. Currently on 15mg Lexapro and feeling so much better. Not all who waunder are lost. |
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#8 |
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"has a lavender scented keyboard"
Join Date: Mar 2004
Location: Ontario
Posts: 22,238
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Re: Could I get some thoughts and opinions
Sorry your having a rough time of it. I don't know much about buspar so decided to google. Loads of stuff on it, and what you feeling could very well be due to the buspar. Here is what Breggin says about it:
side effects and withdrawal symptoms BUSPAR is an anti-anxiety agent that is not chemically or pharmacologically related to benzodiazepines, barbiturates or sedative drugs, but rather activates Serotonin and acts on Dopamine receptors. BUSPAR belongs to the azaspirodecanedione class of compounds and has been promoted as non-sedative, non-addictive and relatively safe. According to Dr. Peter Breggin, like all minor tranquilizers, BUSPAR is habit forming, addictive and can cause life-threatening neurological reactions. The side effects are similar to benzodiazepines and abrupt withdrawal can cause the same rebound insomnia, depression, anxiety, headaches and nausea. All tranquilizers alter the sleep architecture in the same way that benzodiazepines do - by reducing the amounts of restorative Rapid Eye Movement (REM) sleep and increasing the non-restorative sleep patterns. This can result in daytime drowsiness and poor cognitive function. Therefore only short-term use of BUSPAR is recommended and discontinuation should be with a gradual dose reduction.
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Rita |
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#9 | |
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Join Date: May 2003
Posts: 3,058
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Re: Could I get some thoughts and opinions
Quote:
Diane, sounds like Buspar is a factor here. Plus, you probably are hyper-sensitive. You've got some good supporters here.
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Are we anti-med? I thought we were pro-heal? There's no SSRI on the market that cures anything. Therefore, SSRIs are anti-heal.. Darcy Baston There is more than lies within those shiny brochures in the a pharma reps' trunk.Sometimes you have to look beyond the marketing machine to get the facts. Laurie Yorke |
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#10 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,183
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Re: Could I get some thoughts and opinions
Thanks Rita. I have looked up information on it and get so much that the more I read the more confused I get. I trust Breggin's opinion. I assume I fall into the long term use, I was on it 7 months. I wonder about the 'can cause life-threatening neurological reactions'. While using, from long term use, going off to fast? Its kind of freaking me out. I wonder what 'life-threatening neurological reactions' means. I am assuming I don't have that. I DO have the symptoms of abrupt w/d. The one thing I noticed during this phase was stabbing headaches, which I did not get with paxil w/d.
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Diane On Paxil for 5+ years Weaned from 40mg to 15 over a 1 1/2 year period. From 15mg-0 May/June 06 (before finding PP) Protracted w/d from c/t. First 10 mths up and down but tolerable. Akathesia hit at 11 months. Many months of terrible mental and physical torture. 3/09 started Prozac but too stimulating. Currently on 15mg Lexapro and feeling so much better. Not all who waunder are lost. |
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#11 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,183
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Re: Could I get some thoughts and opinions
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#12 |
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"has a lavender scented keyboard"
Join Date: Mar 2004
Location: Ontario
Posts: 22,238
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Re: Could I get some thoughts and opinions
I think perhaps they are talking seizures and such when he wrote that. There are a number of things these meds can cause. You wouldn't be posting here if this were your problem. The goal wasn't to scare you, but show you it is most probably the busbar your feeling, and this too shall pass.
Take care.
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Rita |
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#13 |
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"has a lavender scented keyboard"
Join Date: Mar 2004
Location: Ontario
Posts: 22,238
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Re: Could I get some thoughts and opinions
When my mom stopped her elavil it took her hours to fall asleep on her own. She slept for a few hours at a time. BUT, she felt better than when she took the elavil to sleep and slept the night through. Much more energy through the day now. Says alot.
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Rita |
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#14 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,183
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Re: Could I get some thoughts and opinions
Thank you all for helping me figure this out! It takes a load of my overly strained brain.
So to correct things,,,When I was taking it I took 10mgs at night and 5 mgs in the am. The first night back on I took 10mgs at night but didn't sleep well at all and was up and down all night, that was Tuesday. The 3 nights since then I have taken 5mg at night and thats all. Do you think I need to get back on the 15 mgs total like before or will this be like the AD's and I can start back on a lower dose to ease symptoms. I am just having a hard time making decisions right now. Maybe a happy medium of 10 mgs total for a day will help symptoms. I will go on that for 1 week and see how it goes. Sound ok?
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Diane On Paxil for 5+ years Weaned from 40mg to 15 over a 1 1/2 year period. From 15mg-0 May/June 06 (before finding PP) Protracted w/d from c/t. First 10 mths up and down but tolerable. Akathesia hit at 11 months. Many months of terrible mental and physical torture. 3/09 started Prozac but too stimulating. Currently on 15mg Lexapro and feeling so much better. Not all who waunder are lost. |
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#15 |
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Join Date: Dec 2005
Location: Long Island NY
Posts: 3,118
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Re: Could I get some thoughts and opinions
Hope you feel better.
Pokie
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Been on this crap since 1995 First taper 10% 2006 20mg to 8mgs crashed My 2nd Taper attempt! 10/01/08 40mgs 12/9/08 36mgs 01/09/09 33mgs ![]() 02/09/09 30mgs 03/12/09 27mgs 04/28/09 24mgs 05/24/09 23mgs 06/09 CBT started 07/21/09 22.5mgs 08/12/09 22mgs 09/03/09 21.5mgs 09/24/09 21mgs 10/16/09 20.5mgs 11/07/09 20mgs |
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#16 |
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"Stinks of lavender"
Join Date: Jul 2004
Location: Canada
Posts: 10,381
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Re: Could I get some thoughts and opinions
Nicemom, it's all about quality of life. If what you are feeling is seriously interfering with your overall quality of life, then you have to do what you need to do.
I know you are tired, and I too know that you are acknowledging what you are feeling for what it is and it is most likely that the Buspar is doing a number on you. That said, I didn't know much about Buspar and googled it too and was going to post, but Rita beat me too it. You've been on the 5mgs for a short time. Stick it out a while longer and see how you feel....if you still fee like crap, go on the 10mgs....but once you stabilize, you may need to look at a much slower wean off this stuff. It's all about how you feel and your quality of life...remember that. Hugs.
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Paxilgirl Put on Paxil for situational depression in August 2003. Was also on .5 mg of Clonozapem. Started on 10mg and increased to 30mg. Weaned off during the summer of 2004. Became PAXIL FREE October 4, 2004. Completely recovered!!! |
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#17 |
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"colors outside the lines"
Join Date: Jan 2005
Posts: 15,949
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Re: Could I get some thoughts and opinions
Diane...nothing to add but a couple of good ole.....
((((HOMIE HUGS)))) ((((HOMIE HUGS))))
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That's one of the curses of anxiety--we make possibilities into certainties.....Tim |
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#18 |
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Join Date: Feb 2007
Location: Persona Non Grata... I am No Expert on Nothing
Posts: 2,894
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Re: Could I get some thoughts and opinions
Dianne...firstly my prayers are with you on this pass......
I would tend to agree with you that this is most likely related to the use of this Buspar....and to the huge "hypersensitivities" that Paxil use causes..so any change or disruption in your bodies chemistry could set this off. How long have you been off this Buspar? In the meantime, try to ride this one out, its seems that the further down the road in withdrawal, if there is a reversal it seems to have a bigger psychological impact that if it happened earlier.....I think its time to recall the ski philosophy on this one..... if you watch kids skiing downhill and they fall, they tend to get right back up and continue skiing and go on enjoying the day, adults I have observed on the other hand, tend to take each fall as a either a defeat, disgrace or some form of loss. The adults tend to tolerate a few falls , but often I see them in the ski house later...having "given up"..... I think there is something remarkable in the kids perseverance , something we lose as adults. Regards, Johnny |
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#19 |
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"has a lavender scented keyboard"
Join Date: Mar 2004
Location: Ontario
Posts: 22,238
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Re: Could I get some thoughts and opinions
I don't know much about buspar, but your plan sounds like a good one. The only thing I would suggest is give it more than one week. It seems to me when one is totally out of balance, it can take longer for these type of meds to take effect.
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Rita |
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#20 |
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Join Date: Aug 2007
Location: Ramona, CA.
Posts: 1,322
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Re: Could I get some thoughts and opinions
Hi Diane
I will be praying for you!!
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Mt 19:26 'With God, all things are possible' ![]() Started Paxil 2000 for post partem anxiety Happily on it until it pooped out 2/07 Started cutting down way too fast 7/07 from 20 mg. to 10 mg. and got very sick. Found PP, went back to 13 mg. Waited and waited and never stablized. Began slow wean, down to 7 mg. over a year. Never felt well. Trashed the paxil at 7 mg. in Aug. '08. |
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#21 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,183
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Re: Could I get some thoughts and opinions
Thanks everyone. I appreciate the good wishes and advice,,,and hugs. I will wait this out and chalk it up to another lesson learned. I have to pound it into my head ::::your system is very sensitive now, don't do anything drastic because it won't like it:::::
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Diane On Paxil for 5+ years Weaned from 40mg to 15 over a 1 1/2 year period. From 15mg-0 May/June 06 (before finding PP) Protracted w/d from c/t. First 10 mths up and down but tolerable. Akathesia hit at 11 months. Many months of terrible mental and physical torture. 3/09 started Prozac but too stimulating. Currently on 15mg Lexapro and feeling so much better. Not all who waunder are lost. |
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