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Health Challenges Anxiety, depression, OCD, headaches, weight and more.

Adverse Drug Reaction Reporting    FDA Warnings    Published Withdrawal Studies    Pregnancy Warnings    Forum Psychology

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Old 04-22-2008, 05:40 PM   #1
hindsight20
 
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Paxil Child

I am new to this website, but I really wish I would have found it earlier. I have a story to share to see if there are other mothers/fathers out there that have similar situations. We are in desperate need of finding out what is wrong with our son. Or methods that might help him.

Let me start with the beginning: I had a very hard first trimester carrying my son. I had to go to the doctor every other day to check to see if I had started miscarrying. Once things seemed to level off, my doctors wanted me to start Paxil. I wouldn’t do it at first. Then after several doctors wore me down that it “would be better for the baby”, I thought they knew what they were talking about. I didn’t start until after my first trimester.

In the seventh month, they found a hole in my son’s heart. Because of it, they induced me at 38 weeks. He seemed to be fine. A very quiet baby. Almost perfect. He didn’t want to breast feed, which was fine since I had severe post-partum. At three weeks old, he went into the hospital for stomach surgery for Pyloric Stenosis. At six months old, he had his first of two surgeries for a hernia and hydroseal (not sure about the spelling). He had fluid trapped in his legs all the way down to his knees. It looked like he had liposuction when they were finished.

He had seizures at two and a half that came on suddenly, lasted for two weeks, then just faded away. He’s always had a tremor when he tries to do fine motor skills. He seems to want to talk but his brain and mouth don’t work together, so it comes out in gibberish (he does talk when he does it slowly). He has terrible anxiety problems. He chews his fingernails past the quick. When he doesn’t have fingernails, he chews on his finger pads til they bleed. He’s four now, and can barely use a fork or spoon. He hates to color because he fights the tremors and has a hard time controlling his hands.

The doctors are stumped. We’re going for an MRI because he has had all the testing available. I just want to know if there are other parents out there that took Paxil and have children like mine. I worry sometimes about the future since I don’t have anything to compare this with.

I was on Paxil very briefly with my daughter (she is 13 months younger). She had a hole in her heart, which resolved (his did at six months old). And she had Pyloric Stenosis surgery at three weeks too (no one in our family knows of it ever happening, nor did the doctor that did both surgeries). She had colic which lead into horrible anger. By two she was in special classes to curb it. My son has scars from “playing” with her. She seems to be doing good these days. She had speech therapy and is coming along.

I worry more about my son. He’s too “high functioning” to be in special ed classes. But he doesn’t fit in with a normal class setting or playgroups. He's extremely smart, but needs help.

Sorry this is so long.
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Old 04-22-2008, 05:49 PM   #2
LCrawford67
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Re: Paxil Child

Welcome, Hindsight!

I see you've visited the Paxil/Pregnancy warnings thread and I hope that was of some help to you.

I can't speak for the other problems you mentioned, but heart defects appear to be the most common problem with babies who's mothers have taken Paxil.

Others will be chiming in, who have much more knowledge. I just wanted to extend you a very warm Paxil Progress welcome!
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Old 04-22-2008, 05:51 PM   #3
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Re: Paxil Child

You need to get in on the class action law suit now. The heart problems are very likely paxil related. Otherwise, there is almost no research done to prove or disprove what paxil does to a fetus.

Personally, I started paxil at 9 weeks pregnant and my daughter is perfectly fine today. She did have some withdrawal issues that I could only see in hindsight (after I was through my own withdrawal and could see something other than myself). But, there is very good reason that from the time you and I were pregnant (my daughter turns four next month), paxil went from being a category B drug to being a category D drug. This drug is NOT safe for use in pregnancy at all.
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Old 04-22-2008, 07:05 PM   #4
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Re: Paxil Child

Thank y'all for the warm welcome. This site is amazing. I've learned a whole lot, literally over night. I am involved in a law suit right now. We started right after my daughter was born and we could see the differences between the two. My daughter has come a long way from where she was a year ago with her anger. However, my son moves forward two steps and back one. It seems to be around growth spurt time. Lately, he's been having paranoid thoughts about aliens coming to get him (used to be monsters). He has to have the light on in the car even during the day. He also doesn't process social situations correctly. If another boy in class is a bully, he brings that behavior home. He just started biting a couple of weeks ago. He has to have strick routines (I used to joke about him putting me on one as a baby). And many doctors diagnosis him with Autism, but when they observe him, they say he can't have it. They say he's Autistic-like. We've gone round and round hoping to find a way to get him to a "happy place" so that he won't have problems when he starts school. It makes my brain hurt anymore trying to figure this out.
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Old 04-22-2008, 08:20 PM   #5
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Re: Paxil Child

Welcome Hindsight! I wish we had more to offer in the way of proof of what paxil "can" do to a developing fetus, but sadly I believe we are just starting to see the effects of years of doctors prescribing it to pregnant woman. Just like it has taken years to get any acknowledgement of withdrawal, the pregnancy effects will take just as long.

It sounds like you've gotten your children into some great programs, and that is where your priority has to be know. But that doesn't mean that we all shouldn't be fighting for the truth about the effects of these drugs.

We're with you all the way.
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Old 04-23-2008, 07:24 AM   #6
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Re: Paxil Child

http://healabrokenheart.org/aboutus.html

This is a friend of mine who also has two children with heart defects. We are researching whether or not their heart defects are also due to medication that was taken before and during her pregnancies. Your family is in my prayers - keep fighting the good fight !!!
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Old 04-23-2008, 01:07 PM   #7
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Re: Paxil Child

Welcome another new face. I took paxil with my 2nd son, he is ok and doesn't seem to have any issues thank goodness. I wish I knew what to tell you. But as far as I know there is very little to nil research on this for babies I know that my doctor told me that the amount of paxil that actually filters through the placenta is MINISCULE. However, there have been some reports of babies born with heart defects. I suppose it all depends how much of the drug was taken and other factors that they have no clue about yet! *hugs and prayers*
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Old 04-23-2008, 01:15 PM   #8
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Re: Paxil Child

try this site. ..they have some studies....on neonatal

http://www.antidepressantsfacts.com/...F.htm#neonatal

good solid reference material
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Feb. 21-08 Paxil 25.0 - 22.5mg
March 27-08 20.0mg
May 2-08 17.5mg
june 5-08 15.0mg
july 11-08 12.5mg nausea,heaving
july 24-08 15.0mg bit better
july 29-08 17.5mg bit better
august 4-08 20mg and staying put
March 29/10: New thyroid med Eltroxin .1mg
July 19. 2010 17.5mg
October 29 15.0mg
Dec 27 17.5mg
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Old 04-23-2008, 09:31 PM   #9
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Re: Paxil Child

I checked out both links. I appreciate them. And I agree that not enough is known to be able to formulate anything, but enough is known to speculate. I also know that the brain is not complete when the baby is born and you have up until five/six to "fix" some problems. However, many things are being discovered about the brain and placenta. When it comes to having babies and birth defects in situations like these, sometimes we get lucky, and sometimes we don't. Since reading this website and subsiquent links, I think my family falls in the middle. I really do think it favors more of the lucky verses unlucky.

I have my theories and I try hypothesises with my son's treatments. It's not about what happened in the past or placing blame. It is about getting him to be able to function without it being tourture. His happiness is my concern, as it is with my daughter. But if it is about saving lives or changing lives, I would never wish this on another parent. If I can share my experience with other parents to stop future children from going through this (potentially) then my son's disabilities have more purpose than just hindering his life.
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Old 04-24-2008, 04:36 AM   #10
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Re: Paxil Child

Hindsight...you're attitide is amazing. Early intervention is going to be key, and you're on top of that.
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Old 05-06-2008, 01:31 AM   #11
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Re: Paxil Child

Quote:
Originally Posted by Katesmom View Post
But, there is very good reason that from the time you and I were pregnant (my daughter turns four next month), paxil went from being a category B drug to being a category D drug. This drug is NOT safe for use in pregnancy at all.

If that doesn't SCREAM failure of the drug 'testing' system I don't know what does Why don't they air/err(?) on the side of caution with their classifications, especially when it comes to the possibility of hurting babies?
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Old 05-06-2008, 08:28 AM   #12
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Re: Paxil Child

I don't know. Sometimes that enters my mind, but when it does, I have to hold a part of myself responsible. The anger that I acknowledge is that they knew what they're disclosing now.

The hard part for me is that I can't hold onto much of the "what ifs" because my concentration has to be clear for my children. I have caught myself mulling the feelings over in my head and I end up snapping at my son. It’s not his fault. Without a way to outlet what’s inside, he becomes the representative. So, I don’t want that to happen. Since information about what we have to expect from our son is not available, I have to be able to keep myself in check to handle each day. Because every day is different with my son. There isn’t much in the way of a steady school program to help our family out so far. I end up working with counselors on specific problems as they arise, here at home. Like, since I started this thread, he went from being a sweet little boy that wouldn’t hurt a fly to a confused/disoriented boy that has this new frustrated rage and is losing some speech. His little sister is covered in bruises from bite marks. He even tried to bite me. And yet, when he catches himself, he acts like he didn't mean to do it and deeply regrets it, which causes more anxiety on him. Also, his hands are staying balled up, unless he concentrates to use them. I know we haven’t seen the plateau in his disorder’s development. There’s going to be more to deal with as he gets older. I have to be prepared for whatever will come next. I leave the blame game up to my lawyers. (But I pray they will take it out of Glaxo in spades!! )

We have an MRI coming up as well. The specialists are stumped, so we’re hoping this will shed some light. I will be sure to share our findings if they’re significant. It really is my deepest goal to network with other parents that might help shed some light on what we’re going through.
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Old 05-14-2008, 08:46 AM   #13
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Re: Paxil Child

Unfortunately there are a large number of Birth Defects associated with Paxil, and I assume other SSRI drugs. I know for Paxil the big defects are heart related and also clubbed foot / feet.






It looks like the issue deals with being on Paxil during the 1st trimester of pregnancy.

Not a good situation.

-Jeff

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Old 05-15-2008, 09:17 AM   #14
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Re: Paxil Child

Hi Jeff, welcome to paxilprogress. paxilprogress has all the information in regards to these medications in the articles/news section, and personal experiences throughout the forum.

Do you have direct experience with paxil, or are you trying to advertise this link? Just curious...

I'll go take a look at the site....
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Old 05-15-2008, 12:51 PM   #15
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Re: Paxil Child

Jeff, I notice that you have a forum. I have to say that our site founder has always been pretty clear about competing forums. His idea is "why?" Having all of the info and support in one spot is a much more efficient use of resources. More isn't always better.
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