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Old 08-12-2008, 09:02 PM   #1
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Doctors Appointment - utterly disgusted

Today I went to see my MD for a new compounding prescription. My last taper to 14mg has been very tough and I have decided to slow down the process. I had planned on having my doc write a prescription for 1mg decreases every 12 weeks, allowing for ample time to stabilize (previous prescription was for 6 weeks). I even brought my father along. That's right, I'm 29 years old and I brought my dad. The reason I took him along was that I have a very close relationship with him and I have been sharing my w/d journey all along with him. Not only that, he also was on Paxil for many years (7 or 8 years) and was able to successfully taper off (luckily, he only went as high as 20mg and not the 30 I took for over 4 years). I also didn't want my doctor to bully me around or refuse the prescription.

So in comes my doctor. I explain to him that my w/d has been extremely bad the past 6 weeks. He right away suggests that it is time to switch from Paxil to a newer SSRI. I tell him that ain't going to happen. He shakes his head and suggests that I then should look at taking two different SSRIs as the same time. More drugs are all I need! I tell him know. He starts to get the picture that I want to stick to the slow taper program. I tell him that I am looking for a new prescription that is for 12 weeks / 1mg drop. He looks at me like I am an idiot. "You know that means you will only be at 10mg within a year," he replies. If that’s what it takes, so be it. He is very reluctant but knows that I am not going to budge. He writes the script.

I then bring up the pins and needles that I have been receiving in my limbs. He says that it is because of my anxiety. When I hyperventilate, I am getting too much oxygen in my blood and not getting enough carbon monoxide out. This is effected the ph of my blood, hence my nervous system reacts with the pins and needles sensations. I tell him first that my anxiety has been fine. I have been practicing breathing techniques the past 6 months and it is fine. He still argues that it is from anxiety. I try and drop the subject as I know understand there is no changing the thought process of my doc. He believes in the whole chemical imbalance theory and he is sticking with it. No point arguing, so I get up to leave.

Before he opens the door to exit, he turns to my dad and me and says, "Dan, you may just be one of those people that have to stay on Paxil the remainder of your life. It is like insulin for diabetics. Many people take SSRIs for their whole life. Plus, because of the length that you have been on Paxil, you may never be able to get off it."

Thanks for the encouraging words doc! Did you just say that people many people take SSRIs for their whole life? I have been on Paxil for 14 years, almost the length that it has been on the market. Give me a break.

After leaving the doctors office, my dad and I both came to the conclusion that I need to find a new doctor to deal with. However, I know that it is going to be hard to find a doctor that will actually listen to my story and support my cause. I have an appointment with my Psychologist tomorrow and I will see if she can give me some direction.

And the journey continues!
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Old 08-12-2008, 09:31 PM   #2
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Re: Doctors Appointment - utterly disgusted

Wow you have a right to be disgusted. Time to find a new Physician. I would look for a good Psychiatrist who really knows their medications and is willing to work with you to go SSRI free. I dont believe in the whole maybe you need to be on SSRI's for your whole life crap. They make these drugs and suddenly people have to be on them for ever? Bull ****!

Good luck! This site is great for support. You are not alone.
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Old 08-12-2008, 09:39 PM   #3
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Re: Doctors Appointment - utterly disgusted

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After leaving the doctors office, my dad and I both came to the conclusion that I need to find a new doctor to deal with. However, I know that it is going to be hard to find a doctor that will actually listen to my story and support my cause.
As long as he is still writing the prescriptions for what you want and need, I wouldn't switch. Finding a doc who understands withdrawal is rare. Work with your psychologist instead...and go to the GP when you need a script and ignore him!
And remember....down the line you can visit and make him eat his words!
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Old 08-12-2008, 09:49 PM   #4
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Re: Doctors Appointment - utterly disgusted

Scotty is right. Just one more physician who will hopefully learn about this process.
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Old 08-13-2008, 12:33 AM   #5
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Re: Doctors Appointment - utterly disgusted

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As long as he is still writing the prescriptions for what you want and need, I wouldn't switch. Finding a doc who understands withdrawal is rare. Work with your psychologist instead...and go to the GP when you need a script and ignore him!
And remember....down the line you can visit and make him eat his words!
The only problem I have Laurie is I know he won't write me a script for .5mg for when I hit 10mgs. He said once I get to 10mgs, I might as well stop, as 9mg of Paxil won't effect me. But I guess I can worry about that once I get to 10mg (hopefully by 2019).
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Old 08-13-2008, 12:42 AM   #6
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Re: Doctors Appointment - utterly disgusted

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Before he opens the door to exit, he turns to my dad and me and says, "Dan, you may just be one of those people that have to stay on Paxil the remainder of your life. It is like insulin for diabetics. Many people take SSRIs for their whole life. Plus, because of the length that you have been on Paxil, you may never be able to get off it."
i've learned over time not to let this response bother me any more it's so common.. who am i kidding, it's frustrating as hell... you'd be surprised how many times i've seen people face doctors like this and it's sad you have to come to the point of doing it on your own. But honestly when you're dealing with this, you don't need the validation of a doctor who doesn't understand what you're going through.

you can always send him to http://breggin.com/

of course he may not go at all because that would be admitting he's wrong
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Old 08-13-2008, 04:42 AM   #7
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Re: Doctors Appointment - utterly disgusted

When I started tapering and told my psychiatrist how slowly I wanted to do it, he said I would never get off the meds. My sm--rt a--s response was "well, according to my spreadsheet (thank you Laurie C), I will be off on such and such date."

Anyway, his attitude was that it just wasn't done that way. I held my ground and I think he has come to respect the way I do things when he saw I wasn't going to change my ways.

As long as your doctor cooperates with how you want to do things, I agree with Laurie about not switching. But I definitely understand your frustrations.

By the way, we should start a thread of all the doctors who have made the stupid insulin analogy. My psychiatrist never did or at least, I don't remember him saying it.

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Old 08-13-2008, 06:23 AM   #8
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Re: Doctors Appointment - utterly disgusted

It has been my opinion all through this that the only thing I need my doc for is to write scripts that I need, including tests. I don't care if he believes me. I keep doc visits short and sweet. I agree that they will come to respect what you are doing when you stop trying to convince them. And you have to make it seem like its their idea. Its all in how you phase it. Docs don't like it when you might know more than they do. Just make sure you add in those phases l like thank you for being so helpful/understanding, etc.
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Old 08-13-2008, 07:16 AM   #9
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Re: Doctors Appointment - utterly disgusted

how frustrating for you...I just don't understand why he wouldn't continue writing the scripts for the small drops? If that is how you feel comfortable, he should understand that. Have you thought about getting the liquid paxil? This way you can do the drops yourself?

on a positive note...I think its great that you have your dad's support...he sounds like a great guy!
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Old 08-13-2008, 08:45 AM   #10
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Re: Doctors Appointment - utterly disgusted

Quote:
Originally Posted by scotty View Post
As long as he is still writing the prescriptions for what you want and need, I wouldn't switch. Finding a doc who understands withdrawal is rare. Work with your psychologist instead...and go to the GP when you need a script and ignore him!
And remember....down the line you can visit and make him eat his words!
This is my thinking as well. It seems like that he is willing to do what you ask but that he doesn't believe that it is necessary. If you stick to your guns about the lower doses, he may well work with you. In fact, if you stick with him, he might just learn something.
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Old 08-13-2008, 11:41 AM   #11
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Re: Doctors Appointment - utterly disgusted

You could always tell him that you want to stay at 10 mg from now on and then cut pills until you are done. My doctor refused to prescribe me the liquid because I was getting my tapering information from a website (hmmm... wonder which one - lol) and I wouldn't follow the drug reps tapering schedule. When I got down to 10 mg I called the office and told them that I wanted to start taking 10 mg. I am pretty sure that I didn't even mention that I was chopping them up for tapering. They called in a prescription for the 10 mg pills for one year - as far as they are concerned I am still on 10 mg of Paxil a day even though I have nearly been off for a whole year. Some of those pieces got pretty small towards the end but it can be done.
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Old 08-13-2008, 03:37 PM   #12
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Re: Doctors Appointment - utterly disgusted

I just got back from my psychologist appointment today. She gave me the same advice that many of you have given in this thread. Keep uing the doctor for the scripts. I don't need his validation. I have my wife, family, friends and PP for that. It may get tricky when I need to get below 10mg but I will worry about that when the time comes.

Nickels, they don't have liquid paxil available in Canada. I wish they did because it costs me $24 everytime I pick up a new script.

Scotia, thanks for the advice but that sounds like too much work. The compounding prescription is so nice becuase I can just pop it once a day knowing that it is the exact measurement.
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Old 08-13-2008, 03:51 PM   #13
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Re: Doctors Appointment - utterly disgusted

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Scotia, thanks for the advice but that sounds like too much work.
I'm dividing up 20mg pills with a pill cutter now and it's not actually that bad.

I bought a 7-day pill keeper from the drugstore and cut my pills for the week every Sunday afternoon. It takes maybe 5 minutes that once a week; then during the week I just take that day's pill parts.
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Old 08-13-2008, 03:58 PM   #14
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Re: Doctors Appointment - utterly disgusted

Carolyn, after being on this drug for 14 years, I plan to taper .5mgs from 10mg down. I don't know how accurate I can be with a pill cutter for such a small amount.
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Old 08-13-2008, 08:33 PM   #15
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Re: Doctors Appointment - utterly disgusted

All I can do is give support, Dan. Nothing to add. Just chuckled a bit again at the stupidity of docs -- that insulin analogy gets me every time.
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Old 08-13-2008, 09:43 PM   #16
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Re: Doctors Appointment - utterly disgusted

I got my doctor to give me 40mgs that I cut down myself. the script cost the same for 10mgs as it does for 40.

As far as being on Paxil the rest of your life - I really doubt you signed up for that when you started!!!
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Old 08-14-2008, 10:44 AM   #17
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Re: Doctors Appointment - utterly disgusted

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Today I went to see my MD for a new compounding prescription. My last taper to 14mg has been very tough and I have decided to slow down the process. I had planned on having my doc write a prescription for 1mg decreases every 12 weeks, allowing for ample time to stabilize (previous prescription was for 6 weeks). I even brought my father along. That's right, I'm 29 years old and I brought my dad. The reason I took him along was that I have a very close relationship with him and I have been sharing my w/d journey all along with him. Not only that, he also was on Paxil for many years (7 or 8 years) and was able to successfully taper off (luckily, he only went as high as 20mg and not the 30 I took for over 4 years). I also didn't want my doctor to bully me around or refuse the prescription.

So in comes my doctor. I explain to him that my w/d has been extremely bad the past 6 weeks. He right away suggests that it is time to switch from Paxil to a newer SSRI. I tell him that ain't going to happen. He shakes his head and suggests that I then should look at taking two different SSRIs as the same time. More drugs are all I need! I tell him know. He starts to get the picture that I want to stick to the slow taper program. I tell him that I am looking for a new prescription that is for 12 weeks / 1mg drop. He looks at me like I am an idiot. "You know that means you will only be at 10mg within a year," he replies. If that’s what it takes, so be it. He is very reluctant but knows that I am not going to budge. He writes the script.

I then bring up the pins and needles that I have been receiving in my limbs. He says that it is because of my anxiety. When I hyperventilate, I am getting too much oxygen in my blood and not getting enough carbon monoxide out. This is effected the ph of my blood, hence my nervous system reacts with the pins and needles sensations. I tell him first that my anxiety has been fine. I have been practicing breathing techniques the past 6 months and it is fine. He still argues that it is from anxiety. I try and drop the subject as I know understand there is no changing the thought process of my doc. He believes in the whole chemical imbalance theory and he is sticking with it. No point arguing, so I get up to leave.

Before he opens the door to exit, he turns to my dad and me and says, "Dan, you may just be one of those people that have to stay on Paxil the remainder of your life. It is like insulin for diabetics. Many people take SSRIs for their whole life. Plus, because of the length that you have been on Paxil, you may never be able to get off it."

Thanks for the encouraging words doc! Did you just say that people many people take SSRIs for their whole life? I have been on Paxil for 14 years, almost the length that it has been on the market. Give me a break.

After leaving the doctors office, my dad and I both came to the conclusion that I need to find a new doctor to deal with. However, I know that it is going to be hard to find a doctor that will actually listen to my story and support my cause. I have an appointment with my Psychologist tomorrow and I will see if she can give me some direction.

And the journey continues!


I think your doctor show a serious lack of imagination especially for him to spew out this famous one liner


"Dan, you may just be one of those people that have to stay on Paxil the remainder of your life. It is like insulin for diabetics. Many people take SSRIs for their whole life. Plus, because of the length that you have been on Paxil, you may never be able to get off it.


That my friend is right out og the GSK brochure, I think your comeback line on this one is, eh Doc..which GSK conference was that , that you picked up this one.....or was that on the little booklet they gave you?

As folks are saying, use this doctor as your "utility" nothing more...you know the facts, just stick to your guns.

Regards, Johnny
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Old 08-14-2008, 03:49 PM   #18
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Re: Doctors Appointment - utterly disgusted

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Carolyn, after being on this drug for 14 years, I plan to taper .5mgs from 10mg down. I don't know how accurate I can be with a pill cutter for such a small amount.
You would be better off with a metal nail file and a jeweler's scale. Some on here have done that with some success.
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Old 08-14-2008, 04:02 PM   #19
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Re: Doctors Appointment - utterly disgusted

Next time your doc trots out the insulin theory (believe me, dozens if not hundreds of us have heard it), you might respond: "But insulin is given to regulate blood sugar levels, which can be tested. What test would you suggest I take to check the levels of my 'brain chemicals'?" He won't know what to say, because no such test exists.
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Old 08-15-2008, 07:47 AM   #20
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Re: Doctors Appointment - utterly disgusted

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You would be better off with a metal nail file and a jeweler's scale. Some on here have done that with some success.
Yes Kim...that is exactly what I did and it worked great. I was able to taper all the way down to 0.05 mg!

Sure...it is some extra work in having to make the measurements yourself, but as long as one is comfortable using the scale (and of course not all folks are) you also have precise control over the rate of your taper as well.
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Old 08-15-2008, 07:48 AM   #21
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Re: Doctors Appointment - utterly disgusted

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Next time your doc trots out the insulin theory (believe me, dozens if not hundreds of us have heard it), you might respond: "But insulin is given to regulate blood sugar levels, which can be tested. What test would you suggest I take to check the levels of my 'brain chemicals'?" He won't know what to say, because no such test exists.

Oh! Good one tex!
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Old 08-15-2008, 08:55 AM   #22
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Re: Doctors Appointment - utterly disgusted

Quote:
Next time your doc trots out the insulin theory (believe me, dozens if not hundreds of us have heard it), you might respond: "But insulin is given to regulate blood sugar levels, which can be tested. What test would you suggest I take to check the levels of my 'brain chemicals'?" He won't know what to say, because no such test exists.
You could also add that insulin is given to a diabetic because the body doesn't produce enough insulin. Therefore, the body is insufficient in insulin. My body has never produced Paxil and therefore does not need it to function. There is no such thing as an antidepressant deficiency.
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Old 08-15-2008, 11:14 AM   #23
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Re: Doctors Appointment - utterly disgusted

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Oh! Good one tex!
Well, I can't take credit for it; I stole it from Laurie (Scotty).
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Old 08-15-2008, 01:07 PM   #24
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Re: Doctors Appointment - utterly disgusted

Dan, I'm dropping .5mg every thirty days since I was at 9mg. I'm also on since '95 but slowly getting to the end of it and you will also. Good Luck!
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Old 08-15-2008, 02:26 PM   #25
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Re: Doctors Appointment - utterly disgusted

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Dan, I'm dropping .5mg every thirty days since I was at 9mg. I'm also on since '95 but slowly getting to the end of it and you will also. Good Luck!
Eileen
Thanks for the post Eileen. I needed that today. Expereincing horrible dizziness today. Think I'll take a nap.
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