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| General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without. |
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#1 |
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Join Date: Nov 2007
Location: Canada
Posts: 496
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Doctors Appointment - utterly disgusted
Today I went to see my MD for a new compounding prescription. My last taper to 14mg has been very tough and I have decided to slow down the process. I had planned on having my doc write a prescription for 1mg decreases every 12 weeks, allowing for ample time to stabilize (previous prescription was for 6 weeks). I even brought my father along. That's right, I'm 29 years old and I brought my dad. The reason I took him along was that I have a very close relationship with him and I have been sharing my w/d journey all along with him. Not only that, he also was on Paxil for many years (7 or 8 years) and was able to successfully taper off (luckily, he only went as high as 20mg and not the 30 I took for over 4 years). I also didn't want my doctor to bully me around or refuse the prescription.
So in comes my doctor. I explain to him that my w/d has been extremely bad the past 6 weeks. He right away suggests that it is time to switch from Paxil to a newer SSRI. I tell him that ain't going to happen. He shakes his head and suggests that I then should look at taking two different SSRIs as the same time. More drugs are all I need! I tell him know. He starts to get the picture that I want to stick to the slow taper program. I tell him that I am looking for a new prescription that is for 12 weeks / 1mg drop. He looks at me like I am an idiot. "You know that means you will only be at 10mg within a year," he replies. If that’s what it takes, so be it. He is very reluctant but knows that I am not going to budge. He writes the script. I then bring up the pins and needles that I have been receiving in my limbs. He says that it is because of my anxiety. When I hyperventilate, I am getting too much oxygen in my blood and not getting enough carbon monoxide out. This is effected the ph of my blood, hence my nervous system reacts with the pins and needles sensations. I tell him first that my anxiety has been fine. I have been practicing breathing techniques the past 6 months and it is fine. He still argues that it is from anxiety. I try and drop the subject as I know understand there is no changing the thought process of my doc. He believes in the whole chemical imbalance theory and he is sticking with it. No point arguing, so I get up to leave. Before he opens the door to exit, he turns to my dad and me and says, "Dan, you may just be one of those people that have to stay on Paxil the remainder of your life. It is like insulin for diabetics. Many people take SSRIs for their whole life. Plus, because of the length that you have been on Paxil, you may never be able to get off it." Thanks for the encouraging words doc! Did you just say that people many people take SSRIs for their whole life? I have been on Paxil for 14 years, almost the length that it has been on the market. Give me a break. After leaving the doctors office, my dad and I both came to the conclusion that I need to find a new doctor to deal with. However, I know that it is going to be hard to find a doctor that will actually listen to my story and support my cause. I have an appointment with my Psychologist tomorrow and I will see if she can give me some direction. And the journey continues!
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Since95 aka Dan -On Paxil for 15-1/2 years. Completed 2-1/2 year taper from 40mgs Paxil - 0. Med free August 24, 2009! |
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#2 |
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Join Date: Aug 2008
Posts: 51
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Re: Doctors Appointment - utterly disgusted
Wow you have a right to be disgusted. Time to find a new Physician. I would look for a good Psychiatrist who really knows their medications and is willing to work with you to go SSRI free. I dont believe in the whole maybe you need to be on SSRI's for your whole life crap. They make these drugs and suddenly people have to be on them for ever? Bull ****!
Good luck! This site is great for support. You are not alone. |
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#3 | |
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Administrator
Join Date: Feb 2004
Location: new jersey
Posts: 46,993
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Re: Doctors Appointment - utterly disgusted
Quote:
And remember....down the line you can visit and make him eat his words!
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AKA Laurie "Faith is taking the first step even when you don't see the whole staircase." MLK |
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#4 |
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Join Date: Aug 2008
Posts: 51
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Re: Doctors Appointment - utterly disgusted
Scotty is right. Just one more physician who will hopefully learn about this process.
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#5 | |
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Join Date: Nov 2007
Location: Canada
Posts: 496
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Re: Doctors Appointment - utterly disgusted
Quote:
__________________
Since95 aka Dan -On Paxil for 15-1/2 years. Completed 2-1/2 year taper from 40mgs Paxil - 0. Med free August 24, 2009! |
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#6 | |
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Join Date: Sep 2003
Location: somewhere in between
Posts: 11,591
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Re: Doctors Appointment - utterly disgusted
Quote:
you can always send him to http://breggin.com/ of course he may not go at all because that would be admitting he's wrong
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Scott aka Scott What has happened to it all? Crazy, some are saying Where is the life that I recognize? Gone away But I won't cry for yesterday There's an ordinary world Somehow I have to find And as I try to make my way To the ordinary world I will learn to survive surviving an ssri reaction alternative anxiety treatments |
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#7 |
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Join Date: Aug 2006
Posts: 2,532
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Re: Doctors Appointment - utterly disgusted
When I started tapering and told my psychiatrist how slowly I wanted to do it, he said I would never get off the meds. My sm--rt a--s response was "well, according to my spreadsheet (thank you Laurie C), I will be off on such and such date."
Anyway, his attitude was that it just wasn't done that way. I held my ground and I think he has come to respect the way I do things when he saw I wasn't going to change my ways. As long as your doctor cooperates with how you want to do things, I agree with Laurie about not switching. But I definitely understand your frustrations. By the way, we should start a thread of all the doctors who have made the stupid insulin analogy. My psychiatrist never did or at least, I don't remember him saying it. Palm |
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#8 |
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Join Date: Jun 2006
Location: NE Ohio
Posts: 3,181
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Re: Doctors Appointment - utterly disgusted
It has been my opinion all through this that the only thing I need my doc for is to write scripts that I need, including tests. I don't care if he believes me. I keep doc visits short and sweet. I agree that they will come to respect what you are doing when you stop trying to convince them. And you have to make it seem like its their idea. Its all in how you phase it. Docs don't like it when you might know more than they do. Just make sure you add in those phases l like thank you for being so helpful/understanding, etc.
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Diane On Paxil for 5+ years Weaned from 40mg to 15 over a 1 1/2 year period. From 15mg-0 May/June 06 (before finding PP) Protracted w/d from c/t. First 10 mths up and down but tolerable. Akathesia hit at 11 months. Many months of terrible mental and physical torture. 3/09 started Prozac but too stimulating. Currently on 15mg Lexapro and feeling so much better. Not all who waunder are lost. |
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#9 |
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Join Date: Aug 2007
Location: new york
Posts: 3,158
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Re: Doctors Appointment - utterly disgusted
how frustrating for you...I just don't understand why he wouldn't continue writing the scripts for the small drops? If that is how you feel comfortable, he should understand that. Have you thought about getting the liquid paxil? This way you can do the drops yourself?
on a positive note...I think its great that you have your dad's support...he sounds like a great guy!
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2000 - 20mgs Paxil for GAD & Panic Attacks 2001 - 30mgs increased to 40mgs 2006 - back down to 20mgs - poop out 2/2007 - C/T off 20mgs - went back on at 10mgs 7/2007 - stabilized then started my taper off of 10mgs 8/2007 - down to 5mgs then found PP and began 10% taper 10/15/2008 - 0! 2/2009 - started CBT to finally work on anxiety |
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#10 | |
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Join Date: Jul 2005
Location: Texas
Posts: 13,812
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Re: Doctors Appointment - utterly disgusted
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Katesmom aka Kim started Paxil Oct. 2003 for PIH Paxil free since 19 Jul 2005 ". . .the cruelest lies are often told without a word. . .the kindest truths are often spoken, never heard." -- Ben Folds |
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#11 |
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"doesn't use the big stamp"
Join Date: Nov 2006
Location: Oklahoma
Posts: 6,601
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Re: Doctors Appointment - utterly disgusted
You could always tell him that you want to stay at 10 mg from now on and then cut pills until you are done. My doctor refused to prescribe me the liquid because I was getting my tapering information from a website (hmmm... wonder which one - lol) and I wouldn't follow the drug reps tapering schedule. When I got down to 10 mg I called the office and told them that I wanted to start taking 10 mg. I am pretty sure that I didn't even mention that I was chopping them up for tapering. They called in a prescription for the 10 mg pills for one year - as far as they are concerned I am still on 10 mg of Paxil a day even though I have nearly been off for a whole year. Some of those pieces got pretty small towards the end but it can be done.
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1/05/07 20mg-17.5 1/20 17.5-15 2/24 15-12.5 3/08 12.5-10 3/29 10-7.5 4/12 7.5-5 6/15 5-3.75 6/30 3.75-2.5 7/28 2.5-1.5ish 8/11 1.5-1 8/25 1- zero "Keep lighting candles, eventually nobody will be in the dark" me "Time does not come in pill form" me http://www.slappyintheface.com |
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#12 |
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Join Date: Nov 2007
Location: Canada
Posts: 496
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Re: Doctors Appointment - utterly disgusted
I just got back from my psychologist appointment today. She gave me the same advice that many of you have given in this thread. Keep uing the doctor for the scripts. I don't need his validation. I have my wife, family, friends and PP for that. It may get tricky when I need to get below 10mg but I will worry about that when the time comes.
Nickels, they don't have liquid paxil available in Canada. I wish they did because it costs me $24 everytime I pick up a new script. Scotia, thanks for the advice but that sounds like too much work. The compounding prescription is so nice becuase I can just pop it once a day knowing that it is the exact measurement.
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Since95 aka Dan -On Paxil for 15-1/2 years. Completed 2-1/2 year taper from 40mgs Paxil - 0. Med free August 24, 2009! |
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#13 | |
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Hmm, horse penis and lemongrass?>
Join Date: Jul 2008
Location: SF Bay Area, CA
Posts: 4,510
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Re: Doctors Appointment - utterly disgusted
Quote:
I bought a 7-day pill keeper from the drugstore and cut my pills for the week every Sunday afternoon. It takes maybe 5 minutes that once a week; then during the week I just take that day's pill parts.
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10mg: May 2002 - August 2007 for panic disorder. 20mg: August 2007 - August 2008; doubled dose after hitting poop-out. Started Cognitive Behavioral Therapy in August 2007. Recommended! Tried to taper too fast in July 2008 and went back to 20mg. Started to taper on August 2, 2008. Dropped by 8% to 10% every three weeks. Switched to liquid at 9.2mg on March 6, 2009. PAXIL FREE: June 27, 2010 |
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#14 |
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Join Date: Nov 2007
Location: Canada
Posts: 496
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Re: Doctors Appointment - utterly disgusted
Carolyn, after being on this drug for 14 years, I plan to taper .5mgs from 10mg down. I don't know how accurate I can be with a pill cutter for such a small amount.
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Since95 aka Dan -On Paxil for 15-1/2 years. Completed 2-1/2 year taper from 40mgs Paxil - 0. Med free August 24, 2009! |
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#15 |
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Join Date: Apr 2006
Location: East Setauket, NY
Posts: 1,698
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Re: Doctors Appointment - utterly disgusted
All I can do is give support, Dan. Nothing to add. Just chuckled a bit again at the stupidity of docs -- that insulin analogy gets me every time.
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Cathy Zoloft 150 mg. June '97, CT September '97, 2 wks brain zaps, then fine. Prescribed for "the blues" September '99 Paxil 20 mg - life problems Switched Paxil CR 2004 CR 2005 recalled Switch generic Paroxotine 2003 start poop-out April 21, 2006 CT April 21, 2010 Paxil-free 4 yrs! ADVICE: NEVER CT Am I better? I would say I am now traumatized by the withdrawal. The depression is constant and deep, but not suicidal. Can sleep, but now always tired. |
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#16 |
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Join Date: Jun 2007
Location: Montreal, QC Vancouver, BC
Posts: 653
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Re: Doctors Appointment - utterly disgusted
I got my doctor to give me 40mgs that I cut down myself. the script cost the same for 10mgs as it does for 40.
As far as being on Paxil the rest of your life - I really doubt you signed up for that when you started!!!
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Paxil - 2000-2006 40mgs, weight gain of 50 pounds tapered for one month as I had to get off due to behavior issues. late Dec 2006....last paxil 3 months of major w/d. supplements: b-complex, mags, fish oil, 5htp, vit c "Your Mileage WILL Vary" should be stamped across every drug dispensed. Your doc shouldn't poo-poo your reaction. You live inside your body. You know what's happening in there. |
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#17 | |
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Join Date: Feb 2007
Location: Persona Non Grata... I am No Expert on Nothing
Posts: 3,104
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Re: Doctors Appointment - utterly disgusted
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I think your doctor show a serious lack of imagination especially for him to spew out this famous one liner "Dan, you may just be one of those people that have to stay on Paxil the remainder of your life. It is like insulin for diabetics. Many people take SSRIs for their whole life. Plus, because of the length that you have been on Paxil, you may never be able to get off it. That my friend is right out og the GSK brochure, I think your comeback line on this one is, eh Doc..which GSK conference was that , that you picked up this one.....or was that on the little booklet they gave you? As folks are saying, use this doctor as your "utility" nothing more...you know the facts, just stick to your guns. Regards, Johnny |
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#18 |
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Join Date: Jul 2005
Location: Texas
Posts: 13,812
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Re: Doctors Appointment - utterly disgusted
You would be better off with a metal nail file and a jeweler's scale. Some on here have done that with some success.
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Katesmom aka Kim started Paxil Oct. 2003 for PIH Paxil free since 19 Jul 2005 ". . .the cruelest lies are often told without a word. . .the kindest truths are often spoken, never heard." -- Ben Folds |
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#19 |
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Regina Benzodictius
Join Date: May 2006
Posts: 6,077
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Re: Doctors Appointment - utterly disgusted
Next time your doc trots out the insulin theory (believe me, dozens if not hundreds of us have heard it), you might respond: "But insulin is given to regulate blood sugar levels, which can be tested. What test would you suggest I take to check the levels of my 'brain chemicals'?" He won't know what to say, because no such test exists.
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Adverse reaction to Lexapro led to Paxil, 10 months use, 2005. One month taper. Benzos (Xanax, then Klonopin), 2-1/2 years use, 2005-2007. 8 month taper. Completely free from psychiatry since 8/5/07 Face. Accept. Float. Let Time Pass. — Dr. Claire Weekes We either make ourselves miserable or we make ourselves happy. The amount of work is the same. — Carlos Castañeda |
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#20 | |
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Join Date: Nov 2007
Location: Florida
Posts: 613
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Re: Doctors Appointment - utterly disgusted
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Sure...it is some extra work in having to make the measurements yourself, but as long as one is comfortable using the scale (and of course not all folks are) you also have precise control over the rate of your taper as well. |
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#21 | |
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Join Date: Nov 2007
Location: Florida
Posts: 613
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Re: Doctors Appointment - utterly disgusted
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Oh! Good one tex! |
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#22 | |
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"doesn't use the big stamp"
Join Date: Nov 2006
Location: Oklahoma
Posts: 6,601
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Re: Doctors Appointment - utterly disgusted
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__________________
1/05/07 20mg-17.5 1/20 17.5-15 2/24 15-12.5 3/08 12.5-10 3/29 10-7.5 4/12 7.5-5 6/15 5-3.75 6/30 3.75-2.5 7/28 2.5-1.5ish 8/11 1.5-1 8/25 1- zero "Keep lighting candles, eventually nobody will be in the dark" me "Time does not come in pill form" me http://www.slappyintheface.com |
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#23 |
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Regina Benzodictius
Join Date: May 2006
Posts: 6,077
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Re: Doctors Appointment - utterly disgusted
Well, I can't take credit for it; I stole it from Laurie (Scotty).
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__________________
Adverse reaction to Lexapro led to Paxil, 10 months use, 2005. One month taper. Benzos (Xanax, then Klonopin), 2-1/2 years use, 2005-2007. 8 month taper. Completely free from psychiatry since 8/5/07 Face. Accept. Float. Let Time Pass. — Dr. Claire Weekes We either make ourselves miserable or we make ourselves happy. The amount of work is the same. — Carlos Castañeda |
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#24 |
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Join Date: Sep 2005
Location: Canada
Posts: 10,524
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Re: Doctors Appointment - utterly disgusted
Dan, I'm dropping .5mg every thirty days since I was at 9mg. I'm also on since '95 but slowly getting to the end of it and you will also. Good Luck!
Eileen
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June 13/07-reducing by .05mg. every four weeks to present. October 29/08-Paxil Free 2006-Cut Trazodone from 150mg to 100mg. Sept 07/09- Trazodone 75mg. 4/10 Weaning Benzo. 12/11 Benzo Free! Started this journey of horror with AD's in 1994, Put on Paxil 30 mg in Feb/1995 I will survive! |
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#25 |
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Join Date: Nov 2007
Location: Canada
Posts: 496
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Re: Doctors Appointment - utterly disgusted
Thanks for the post Eileen. I needed that today. Expereincing horrible dizziness today. Think I'll take a nap.
__________________
Since95 aka Dan -On Paxil for 15-1/2 years. Completed 2-1/2 year taper from 40mgs Paxil - 0. Med free August 24, 2009! |
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