our logo
Freedom is in you...
You are enough. You are your solution.  
Go Back   paxilprogress > Paxil > General Discussion
User Name
Password
Register Moderation Guidelines Members List Calendar Search Today's Posts Mark Forums Read

General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without.

Adverse Drug Reaction Reporting    FDA Warnings    Published Withdrawal Studies    Pregnancy Warnings    Forum Psychology

Reply
 
Thread Tools
Old 12-04-2008, 03:46 PM   #1
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

I have heard from some on the forum experiencing this weird phenomenon. Medicine cannot explain it and any cases I found online are antidepressant or benzodiazepine withdrawal related.

It is sleep state misperception. Basically one is not aware of being asleep. My brain remains fully active during sleeping. I will lie down in bed for hours with the brain seemingly all the time “on”. I think I am awake but I am not. I know it because in sleeping institute I was told so.

On sleeping pills I got more ‘aware’ of sleeping but now when I tapered the dose of sleeping meds down this weird sleeping is back.

If it happened to you please share your experience. I am looking for any explanations and solutions. How long does it take to start sleeping ‘normally’? Is it something that does get better with time? What is causing it?

Thanks for any input.
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-04-2008, 05:40 PM   #2
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Anybody
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-04-2008, 06:03 PM   #3
scotty
Administrator
 
scotty's Avatar
 
Join Date: Feb 2004
Location: new jersey
Posts: 49,443
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

There have been reports that paxil doesn't allow the body to hit the "sleep paralysis" state. This is what is suspect in the nighttime suicides in children. The vivid nightmares are able to be physically acted on, when in normal sleep the body would not move. Without that state of paralysis, the whole sleep perception cycle would be altered.
__________________
AKA Laurie

"Faith is taking the first step even when you don't see the whole staircase."
MLK
scotty is offline   Reply With Quote
Old 12-04-2008, 06:07 PM   #4
LCrawford67
Moderator
"Freakishly Optimistic"
 
LCrawford67's Avatar
 
Join Date: Mar 2006
Location: Ohio
Posts: 34,688
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Vivid nightmares and dreams are certainly prevelant while on Paxil, so that makes perfect sense.
__________________
aka LC
aka Laurie C.


Paxil, 20 mg since 1997, for IBS
Two unsuccessful attempts to quit.
Started tapering 11/27/06
PAXIL FREE 12/29/07


Today is the best day, EVER!
LCrawford67 is offline   Reply With Quote
Old 12-04-2008, 06:51 PM   #5
Bern
 
Bern's Avatar
 
Join Date: Oct 2004
Location: NJ
Posts: 3,424
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

I had a dream the other night that I was a lesbian.
__________________
PAXIL FREE SINCE 2009!!! Spent a total of 11 years on Paxil.

I have been taking Anafranil since 2005.

Alcohol free since 1/1/08.......Last drink was 12/31/07
Bern is offline   Reply With Quote
Old 12-04-2008, 07:08 PM   #6
LCrawford67
Moderator
"Freakishly Optimistic"
 
LCrawford67's Avatar
 
Join Date: Mar 2006
Location: Ohio
Posts: 34,688
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by Bern View Post
I had a dream the other night that I was a lesbian.
LOL!!! Bern, you're too precious!
__________________
aka LC
aka Laurie C.


Paxil, 20 mg since 1997, for IBS
Two unsuccessful attempts to quit.
Started tapering 11/27/06
PAXIL FREE 12/29/07


Today is the best day, EVER!
LCrawford67 is offline   Reply With Quote
Old 12-04-2008, 11:28 PM   #7
Zant808
 
Join Date: Aug 2007
Location: USA
Posts: 309
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

I guess this is what I've been experiencing. This is scary stuff. I hope two 10mg valiums didn't cause this to become permanent.
__________________
Down to 750mg Depakote ER. Please remember to avoid all alcohol and caffeine (GABA affecting agents) forever in the future after you are done withdrawing!
Zant808 is offline   Reply With Quote
Old 12-05-2008, 02:33 AM   #8
Zant808
 
Join Date: Aug 2007
Location: USA
Posts: 309
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

5:10 AM and I cannot sleep a wink!!! What scares me more is that I feel refreshed even though I haven't slept in days. What the hell is going on???
__________________
Down to 750mg Depakote ER. Please remember to avoid all alcohol and caffeine (GABA affecting agents) forever in the future after you are done withdrawing!
Zant808 is offline   Reply With Quote
Old 12-05-2008, 05:17 AM   #9
texgirl
Regina Benzodictius
 
texgirl's Avatar
 
Join Date: May 2006
Posts: 6,980
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by iwowi View Post
I have heard from some on the forum experiencing this weird phenomenon. It is sleep state misperception. Basically one is not aware of being asleep. My brain remains fully active during sleeping. I will lie down in bed for hours with the brain seemingly all the time “on”. I think I am awake but I am not.
This describes my experience to a T, not just during AD and benzo withdrawal but the whole time I was on benzos. I would sometimes lie in bed shaking in terror because I couldn't tell if I was awake or asleep. The crazy dreams didn't help.

I'm guessing Rozerem is the culprit here. The sleep state misperception should abate once you allow your brain chemistry to balance itself naturally. I sleep fine now. I slept 7 hours last night even knowing that I have to confront a co-worker at work first thing this morning. During the bad insomnia times, a thing like that would have kept me up all night.
__________________
Adverse reaction to Lexapro led to Paxil, 10 months use, 2005. One month taper.
Benzos (Xanax, then Klonopin), 2-1/2 years use, 2005-2007. 8 month taper (via compounding).
Completely free from psychiatry since 8/5/07

Face. Accept. Float. Let Time Pass. — Dr. Claire Weekes

We either make ourselves miserable or we make ourselves happy. The amount of work is the same. — Carlos Castaρeda
texgirl is offline   Reply With Quote
Old 12-05-2008, 10:07 AM   #10
Zant808
 
Join Date: Aug 2007
Location: USA
Posts: 309
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

I didn't sleep again last night. I just laid there all night. I got a "beneficial side effect" though. It appears that there is absolutely no tension or stiffness in my muscles. Its almost like the feeling you get when you take your first valium pill. Maybe this is a withdrawal effect from the two pills I took around 11/29? Or is this some sort of side effect of not sleeping for days?
__________________
Down to 750mg Depakote ER. Please remember to avoid all alcohol and caffeine (GABA affecting agents) forever in the future after you are done withdrawing!
Zant808 is offline   Reply With Quote
Old 12-05-2008, 12:41 PM   #11
babs
"dare to suck big!"
 
babs's Avatar
 
Join Date: Mar 2005
Location: San Diego, CA
Posts: 8,082
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by Bern View Post
I had a dream the other night that I was a lesbian.
Hey, some woman was hitting on me in a dream last week ... was that you, Bern????
__________________
Babs

Paxil 20mg 1994-2005
2 failed attempts to quit
Tapered Jan-April 2005 (because I didn't know better!)
Paxil-free since May 1, 2005
babs is offline   Reply With Quote
Old 12-05-2008, 01:27 PM   #13
Bern
 
Bern's Avatar
 
Join Date: Oct 2004
Location: NJ
Posts: 3,424
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by babs View Post
Hey, some woman was hitting on me in a dream last week ... was that you, Bern????
lol......in my dream, I was hitting on a woman in my support group. She has the same name as me, and we were supposed to all get together and hang out. But that dream really freaked me out.
__________________
PAXIL FREE SINCE 2009!!! Spent a total of 11 years on Paxil.

I have been taking Anafranil since 2005.

Alcohol free since 1/1/08.......Last drink was 12/31/07
Bern is offline   Reply With Quote
Old 12-05-2008, 04:53 PM   #14
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by pokie View Post
Babs,
You sure it was not just a really femmy guy? LOL
I am so glad you are back. I have had quite bad 2 weeks because I tried to taper the sleeping medicine too fast so I wasn't keeping up with everything that is happening on the forum. Now I am up in dose and feeling a little better. I am so glad to hear from you. You made my day .....
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-05-2008, 05:05 PM   #15
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by texgirl View Post
This describes my experience to a T, not just during AD and benzo withdrawal but the whole time I was on benzos. I would sometimes lie in bed shaking in terror because I couldn't tell if I was awake or asleep. The crazy dreams didn't help.

I'm guessing Rozerem is the culprit here. The sleep state misperception should abate once you allow your brain chemistry to balance itself naturally. I sleep fine now. I slept 7 hours last night even knowing that I have to confront a co-worker at work first thing this morning. During the bad insomnia times, a thing like that would have kept me up all night.
I am so glad to hear that this stuff can get eventually resolved. I do agree with the getting of Rozerem advice but after the last 2 weeks meltdown I decided to slow down the taper. This Rozerem crap is definitely addictive and getting of it needs to be done slowly. It has Paxil like delayed reaction effect and the withdrawal can be very nasty. I wish I never touched this junk but it is too late.

I am not sure how much Rozerem is contributing to the sleep state misperception because I had it before I even went on this drug but anything is possible.

I do also experience the crazy dreams.

Thanks Texgirl. Knowing that this is not something permanent made me feel better.
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-05-2008, 05:11 PM   #16
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by Zant808 View Post
I didn't sleep again last night. I just laid there all night. I got a "beneficial side effect" though. It appears that there is absolutely no tension or stiffness in my muscles. Its almost like the feeling you get when you take your first valium pill. Maybe this is a withdrawal effect from the two pills I took around 11/29? Or is this some sort of side effect of not sleeping for days?
Hang in there Zant. I do not think Valium made you permanently damaged. Whatever it is (withdrawal or not) I hope it gets resolved soon. When you tired lay down, close your eyes and rest. If you rested after lying down then you probably slept.

I hope things get better for you soon.
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-05-2008, 05:14 PM   #17
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Laurie and Scotty .... as always thanks for the information.
Bern, Pokie and Babs ... YOU GIRLS ARE REALLY FUNNY
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-06-2008, 08:29 AM   #18
bethy08
 
Join Date: Nov 2008
Posts: 13
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

i tried 3 different ssris for about 2 and a half months and had manic reactions to all of them. I've been off of them for a little over a month,im now on klonopin . The whole time till this day i feel like im awake but i still dream,its weird!!! my boyfriend says im snoring away but I feel like i didnt sleep a wink! It happens especially when i try to take a nap in the daytime!
bethy08 is offline   Reply With Quote
Old 12-06-2008, 08:37 AM   #19
Mixter
 
Join Date: Sep 2008
Location: Sweden
Posts: 2,643
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

I had this before I got back on Efexor.. it is a miserable feeling. Now starting I can "really" sleep, on one occassion I had really deep sleep.. feeling like awoke from the dead. really scary. but at least better than this ****.
__________________
SSRIs since -03, Celexa and Effexor.

Ct benzos,Lyrica and Remeron -06/07
Ct taper Effexor 300-75mg summer -08
Ct 8 yr tobacco habit.
Reinstated too late 3 mos out.
Was upto 450 mg Effexor (equiv 120 mg Celexa).

Switched to Celexa 20mg at 23 nov 2012 because cant stand being on Effexor XR.

Diagnosed with Lyme (had it since 6 yrs old - 1987)
Treatment ongoing

Went back to 20 mg 1st June 2013.
Still too sick - Lyme. Seroquel 100 mg,
Depression is nearly gone, sleep good.
Mixter is offline   Reply With Quote
Old 12-06-2008, 01:17 PM   #20
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Bethy and Mixter .... Thanks guys for sharing. It makes me feel better knowing that this weird sleeping thing happens to others in withdrawal. At least I know I am not damaged and that this is antidepressant’s withdrawal caused.

You got to admit guys that this is a pure torture not to be able to tell if you slept or not.

I am hoping for more success stories about this problem getting resolved with time. Texgirl got better but her sleeping issues seem to happen on antidepressants and benzodiazepines not in withdrawal. I wonder if there is anybody on the forum who experienced sleep state misperception in withdrawal and for whom this problem got resolved.
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-07-2008, 12:04 AM   #22
Zant808
 
Join Date: Aug 2007
Location: USA
Posts: 309
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Still no sleep but I don't feel anxious or tired. This is weird. I wonder if I'll ever get to sleep again.
__________________
Down to 750mg Depakote ER. Please remember to avoid all alcohol and caffeine (GABA affecting agents) forever in the future after you are done withdrawing!
Zant808 is offline   Reply With Quote
Old 12-07-2008, 12:36 AM   #23
elixirmonkii
 
elixirmonkii's Avatar
 
Join Date: Oct 2008
Location: Northern California
Posts: 393
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Yeah, the sleep-wake thing is insane. I am currently a "sleeper", however having had periods of insomnia, id addition to periods of sleep, I thought this was interesting:

I do not get "sleepy".
I fall asleep pretty quick.
I do not feel refreshed after sleeping.
My dreams sometimes feel just as real as my real life.
I can sleep for at least 10 hours.
When I am dreaming, sometimes things are more exciting than in real life.

I read somewhere that you cannot really survive without sleep, so your brain must be shutting down at some point, even if you are still conscious. I do have a couple of theories on this, having done an evaluation. Anyways, it is obvious that the brain has to always be running in some mode, so if sleep mode is not working right, it will automatically start operating at low consumption to conserve energy. I guess this whole theory is longer than I thought, so I think I will wrap it up by saying this whole sleep-wake thing is a very important part in maintaining a positive outlook. I know this is very "scattered", sorry I guess my brain needs "sleep" even though I don't feel "tired". I will try to do more another day....
__________________
Prior to fluoxetine, I ingested a few MAOI cocktails, and had used various stimulants (ephedra) years ago. This is likely why I reacted so badly to this drug.
7/14/08 - Severe reaction to Prozac & Ativan!
7/15/08 - Discontinued all meds!

First 2 years:

Extreme Derealization/DP
Extreme agitation & akathisia
Unable to understand people
Severe negative thoughts.
Constant restlessness inside, anxiety & agitation, and anhedonia.

Now: 85% stable
elixirmonkii is offline   Reply With Quote
Old 12-08-2008, 04:04 AM   #24
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by been there done that View Post
…... Our brains are sleeping in some sense and we are not……
.....Now that I know so much more I am going to give myself at least 3 years to get my sleep and my health back.
Before I never got close to 3 years before I was put back on another AD to treat the withdrawal symptoms………
SLEEP STATE MISPERCEPTION is the real medical term to describe this sleeping disorder.

Does this weird sleeping ever gets better? Do you see any improvements? Do you think 3 years is what it takes to get ‘normal’ sleeping back?

Thanks Sandy.
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Old 12-08-2008, 04:09 AM   #25
iwowi
 
iwowi's Avatar
 
Join Date: Jun 2008
Location: Stewartstown PA
Posts: 1,150
Re: Can't tell if you are sleeping? - SLEEP STATE MISPERCEPTION

Quote:
Originally Posted by Zant808 View Post
Still no sleep but I don't feel anxious or tired. This is weird. I wonder if I'll ever get to sleep again.
Sorry Zant. I am not sleeping either. Last night I haven't slept a wink. Tonight I laid in bed for 3 hours and I think I slept but as far as my brain is concerned I didn't. Now I am up and writing. Insomnia sucks.

I feel for you my friend. Just try to rest as much as you can. This is all you can do. I hope you get some relief soon.

Hang in there.
__________________
Iwona

1992 – 1994 Zoloft
1994 – 1999 Prozac
1999 – 2007 Paxil 40 mg
April 2008 - January 2009 - severe insomnia - Rozerem
February 2009 - Prozac 10mg
PROZAC TAPER:
2009:
03/01-9mg 04/01-8mg 05/01-7mg 08/01-6.5mg 09/01-6mg 10/01-5.5mg 11/01-5mg
2010:
01/01-4.5mg 02/01-4mg 03/01-3.5mg 04/01-3mg 05/01-2.5mg 06/01-2mg 07/01-1.5mg 08/01-1mg 09/01-0.5mg 10/01-0mg
iwowi is offline   Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools

Forum Jump


All times are GMT -6. The time now is 05:50 AM.


We are not in any way affiliated with Paxil's manufacturer GlaxoSmithKline.
Our ideas and suggestions are anecdotal, inspirational, and they work.

Get the best web browser, FireFox

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.