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Old 06-30-2009, 04:28 PM   #1
Goldenbawls
 
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Went to neuro today!!!!!

Hey guys. went to neuro today and went through my physical issues. To my surprise he did not dismiss the paxil link and said it was indeed possible as not enough research was done to the withdrawal aspect before it flooding onto the market. He also went on to say that few more people are filtering through to him with these vague kinda symptoms that dont seem to follow any neurological pattern. He said my system was probably slightly out of whack and may need a very small doseage of anti depressant to knock it back into shape, seeing my reaction to that idea he did go on to say it was not to be described for anti depressant properties and as an example he said if it was effective for depression at 250mg, he would prescribe a 25mg dose. he did not mention what class of anti-depressant that would be as i have to wait for mri appointment first. Crazy stuff
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on seroxat jan99-may2000. cold turkeyed but no real problems.

back on seroxat sept07-jan08. cold turkeyed and still feel poopppp. one year on both times on 20mg.
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Old 06-30-2009, 04:51 PM   #2
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Re: Went to neuro today!!!!!

So are you going back on a small dose? I don't think you meant you are. Sounds like what my latest doctor told me..
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Old 06-30-2009, 05:23 PM   #3
altostrata
 
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Re: Went to neuro today!!!!!

Interesting. It makes sense that people with withdrawal syndrome would give up on psychiatrists and go to neurologists.
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'97-'99 Prozac 10mg, tapered, no problem
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1/06-5/07 Vits C, D3, E, mag, zinc, fish oil, acupuncture, whey protein isolate, melatonin help
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Recovering with aid of an extraordinary MD. See http://www.paxilprogress.org/forums/...?p=582889#post
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Old 07-01-2009, 11:00 AM   #4
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Re: Went to neuro today!!!!!

The Neurologist said (in part)
Quote:
"not enough research was done to the withdrawal aspect"
"more people with these vague kinda symptoms that dont seem to follow any neurological pattern".
"my system was probablyslightly out of whack and may need a very small doseage of anti depressant to knock it back into shape"
Read: Looks like he's guessing.

It doesn't sound very scientific. Does he have any evidence that "smaller doses of anti-depressants knock things back into shape".
In my opinion; smaller doses cause damage at a slower pace and therefore you don't realize what's happening while you slowly maim the neurons in your brain.

So the class of anti-depressant depends on the MRI results? What is the MRI going to show? Exactly where/what the damage is? I doubt it. I would ask. I would also ask how long he expects you to have to be on a low dose of an SSRI. How long has it taken other patients' systems to get knocked back into shape? Will you see results on a 2nd MRI? What if this low dose doesn't relieve your symtoms? What's the next step; increase, change brands?

Sorry, I think you are being conned.

Was there pharmaceutical paraphenalia in his office? Check for pens, post it notes, clocks, hand sanitizers, pamphlets... you might be able to guess which drug (or who makes it) is going to cure you before he tells you.

I thought my psychiatrist/neurologist was so smart and conservative; in 2000 she took me off of stimulants that another doc prescribed because "they are addictive, you just end up needing more, they were probably causing my agitation and insomnia” Fast forward 8 years; she prescribed an SNRI, an anti-convulsant, lithium and a brand new STIMULANT.

I also went to a neurologist to try and get an assesment of the damage after withdrawaling. He wanted to do an MRI to rule out a brain tumor and an EEG to rule out seizures. If both were negative; his diagnosis would be: "mental illness, because depression is like diabetes, and I have a history of it".
In actuality, I had a history of being lied to and drugged. My memory loss and cognitive problems (inablity to complete a thought or sentence) was not depression.

Quote:
It makes sense that people with withdrawal syndrome would give up on psychiatrists and go to neurologists.
Yes, but you might find (as I did), not all are as different as people think.

Please don't take my anger as being directed at you, it's directed at the doctor's (in many different specialties) taking advantage of all of us.

Best of Luck!
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'95 Zoloft
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'01 added Lamictal 200mg, quit Dexedrine
'03-'04 added Trileptal, switched to Celexa
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Old 07-01-2009, 11:35 AM   #5
altostrata
 
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Re: Went to neuro today!!!!!

If the neurologist was sharper, he would have recognized the pattern as autonomic instability.
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'97-'99 Prozac 10mg, tapered, no problem
'02-'04 Paxil 10mg, tapered 1mg/wk Oct '04
10/04-12/04 Hypomania, sweating, brain zaps
12/04-7/05 Insomnia, weepy, pseudo-anxiety, anorgasmia
1/05-1/06 Wellbutrin 100-250mg
9/05-4/06 Disabled -- fatigue
1/06-5/07 Vits C, D3, E, mag, zinc, fish oil, acupuncture, whey protein isolate, melatonin help
1/08-1/09 Disabled -- severe insomnia
Recovering with aid of an extraordinary MD. See http://www.paxilprogress.org/forums/...?p=582889#post
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Old 07-01-2009, 01:04 PM   #6
Goldenbawls
 
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Re: Went to neuro today!!!!!

If the neurologist was sharper, he would have recognized the pattern as autonomic instability...............................Have you been told that altostrata??????
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on seroxat jan99-may2000. cold turkeyed but no real problems.

back on seroxat sept07-jan08. cold turkeyed and still feel poopppp. one year on both times on 20mg.
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Old 07-01-2009, 01:09 PM   #7
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Re: Went to neuro today!!!!!

Has anyone tried it before with success? I guess it could work but it depends on exactly what the problem is?
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Old 07-01-2009, 01:13 PM   #8
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Re: Went to neuro today!!!!!

Quote:
Originally Posted by NoRx4me View Post
The Neurologist said (in part)

Read: Looks like he's guessing.

It doesn't sound very scientific. Does he have any evidence that "smaller doses of anti-depressants knock things back into shape".
In my opinion; smaller doses cause damage at a slower pace and therefore you don't realize what's happening while you slowly maim the neurons in your brain.

Was there pharmaceutical paraphenalia in his office? Check for pens, post it notes, clocks, hand sanitizers, pamphlets... you might be able to guess which drug (or who makes it) is going to cure you before he tells you

Best of Luck!
The guy was greek so interpreted wat he was saying the best i could. He never said it was going to be a ssri class just some kind of anti depressant. Whether there is proof to the low dose working who knows, The fact that he was open to the POSSIBILITY of it been paxil related made me take more note as to what he said. With regards the paraphenelia, now you mention it he did have GSK motif on his socks
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on seroxat jan99-may2000. cold turkeyed but no real problems.

back on seroxat sept07-jan08. cold turkeyed and still feel poopppp. one year on both times on 20mg.
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Old 07-01-2009, 01:16 PM   #9
Goldenbawls
 
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Re: Went to neuro today!!!!!

Quote:
Originally Posted by NewQuestions View Post
Has anyone tried it before with success? I guess it could work but it depends on exactly what the problem is?
Not sure they know exactly what the problem is. from the way he was speaking did sound like he has had success with it but iv been off for 18months now, prob would not take anything he prescribed anyways
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on seroxat jan99-may2000. cold turkeyed but no real problems.

back on seroxat sept07-jan08. cold turkeyed and still feel poopppp. one year on both times on 20mg.
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Old 07-01-2009, 03:05 PM   #10
altostrata
 
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Re: Went to neuro today!!!!!

Quote:
Originally Posted by Goldenbawls View Post
If the neurologist was sharper, he would have recognized the pattern as autonomic instability...............................Have you been told that altostrata??????
Yes, I'm being treated for it. I'm just about fully recovered. See my topic http://www.paxilprogress.org/forums/...ad.php?t=15807

In my opinion, and my doctor's opinion, withdrawal syndrome is unquestionably autonomic instability. For people with symptoms of anxiety, depression, and insomnia, it's more specifically hyper-reactivity of the glutamatergic system. The treatment for that is stress reduction or, if it gets too severe, as in my case, micro-doses of Lamictal, not an antidepressant.
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'97-'99 Prozac 10mg, tapered, no problem
'02-'04 Paxil 10mg, tapered 1mg/wk Oct '04
10/04-12/04 Hypomania, sweating, brain zaps
12/04-7/05 Insomnia, weepy, pseudo-anxiety, anorgasmia
1/05-1/06 Wellbutrin 100-250mg
9/05-4/06 Disabled -- fatigue
1/06-5/07 Vits C, D3, E, mag, zinc, fish oil, acupuncture, whey protein isolate, melatonin help
1/08-1/09 Disabled -- severe insomnia
Recovering with aid of an extraordinary MD. See http://www.paxilprogress.org/forums/...?p=582889#post
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Old 07-02-2009, 10:48 AM   #11
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Re: Went to neuro today!!!!!

Quote:
He never said it was going to be a ssri class just some kind of anti depressant
May I politely suggest; If you are prescribed another drug, read the label before you start it. Keeping in mind the length of trials and who wrote them, they still have plenty of info that anyone taking them should know about. Make sure it's the most recent, they often have to add "post-marketing events".

altostrata, RE:
Quote:
The treatment for that is stress reduction or, if it gets too severe, as in my case, micro-doses of Lamictal, not an antidepressant.
From reading a few of your posts on the thread you linked, it didn't sound like Lamictal worked all that great. I was on Lamictal for 8 years, it was hell to get off and I think it did A LOT of damage.

I'm not trying to argue with anyone, it just concerns me that it seems so many people are still searching for that magic pill and trusting the salesman.
Have you had any blood work to rule out other issues like hyper or hypothyroidism, etc.
__________________
'95 Zoloft
'98-'01 added Ritalin/Dexedrine
'01 added Lamictal 200mg, quit Dexedrine
'03-'04 added Trileptal, switched to Celexa
'05-'06 Lexapro, Wellbutrin, Effexor, Topamax…
1/07 Cymbalta 20mg & Lamictal decreased to 100mg
9/07 Doubled both dosages
10/07 (two weeks later) added Lithium & Vyvanse
2/08 CT Cymbalta 40mg/Zoloft 50mg for 3 weeks
3/08 CT Lithium & Zoloft
4/08 CT Vyvanse, Reduced Lamictal
9/26/08 Last Lamictal
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Old 07-02-2009, 01:05 PM   #12
altostrata
 
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Re: Went to neuro today!!!!!

Quote:
Originally Posted by NoRx4me View Post
....From reading a few of your posts on the thread you linked, it didn't sound like Lamictal worked all that great. I was on Lamictal for 8 years, it was hell to get off and I think it did A LOT of damage.

I'm not trying to argue with anyone, it just concerns me that it seems so many people are still searching for that magic pill and trusting the salesman.
Have you had any blood work to rule out other issues like hyper or hypothyroidism, etc.
I think you'd have to read my topic at least since January 2008 to understand what I've gone through.

I've been on a microdose (up to 1.07mg) of Lamictal for 18 months. Now I'm tapering off it. This part is a little rocky, but this treatment saved my life. I had intractable, untreatable insomnia from prolonged withdrawal syndrome.
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'97-'99 Prozac 10mg, tapered, no problem
'02-'04 Paxil 10mg, tapered 1mg/wk Oct '04
10/04-12/04 Hypomania, sweating, brain zaps
12/04-7/05 Insomnia, weepy, pseudo-anxiety, anorgasmia
1/05-1/06 Wellbutrin 100-250mg
9/05-4/06 Disabled -- fatigue
1/06-5/07 Vits C, D3, E, mag, zinc, fish oil, acupuncture, whey protein isolate, melatonin help
1/08-1/09 Disabled -- severe insomnia
Recovering with aid of an extraordinary MD. See http://www.paxilprogress.org/forums/...?p=582889#post
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Old 07-02-2009, 07:08 PM   #13
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Re: Went to neuro today!!!!!

Golden: Just await your MRi results and then when you go back, get all the information re. the proposed medication and treatment plan , and make an informed decision then what you personally need to do would be my advice. :-)
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