Anybody know where to find people with permanent lithium neurotoxiicity?

sog210 · 12-03-2010, 12:37 PM

Hi everyone,
I am trying to get ideas on where to find people who have had neurotoxicity from chronic lithium poisoning?
Any ideas? If so that would be great.
Sog

palm · 12-03-2010, 02:22 PM

Hi,

See this blog entry by Bob Fiddaman on Susan Schechter, the author of the popular blog, 'If you're going through hell keep going'.

She is in the hospital of kidney dialysis after being on lithium for 25 years.

Good luck and I so sorry for your difficulties.

Palm

sog210 · 12-03-2010, 02:47 PM

Thanks, I already read it.

Any ideas on where to find people with mjor chemical or metal brain damage? I may try contacting John Hopkins again.

Is there a listing of all the different support forums ot just forums online?????

Thanks,
Sog

walden · 12-03-2010, 03:42 PM

Did you ever think about stem cells?

LCrawford67 · 12-03-2010, 03:45 PM

Sog, you've asked us this many, many times before. We don't know any more about it than you do and all you can do is Google.

scotty · 12-03-2010, 04:03 PM

Quote:

Originally Posted by walden

Did you ever think about stem cells?

Walden, you keep throwing this out like it's a possibility of being used. NO ONE is going to use stem cells for this. They are barely using stem cells for diseases that it is known to work for.

walden · 12-03-2010, 04:10 PM

Stem cells, theoretically, can work for every kind of brain injury.

Junior · 12-03-2010, 04:52 PM

It would be very dangerous using stem cell therapy when we don't know exactly how these medications work. Nor do we know exactly what causes the various mental illnesses. Hence the reason for the vast amount of problems experienced by people taking psychotropic medications.

scotty · 12-03-2010, 04:57 PM

Quote:

Originally Posted by Junior

It would be very dangerous using stem cell therapy when we don't know exactly how these medications work. Nor do we know exactly what causes the various mental illnesses. Hence the reason for the vast amount of problems experienced by people taking psychotropic medications.

Exactly! Stem cell isn't the magic cure for everything(minimally successful in traumatic brain injury), and it's use in this application is rampant speculation not based in the reality of the current use of stem cells.

LCrawford67 · 12-03-2010, 05:06 PM

Magic cure or not....do you honestly think anyone could afford such a thing? Seriously, that's not even realistic.

sog210 · 12-03-2010, 08:00 PM

Does anyone know where to find a listing of forums??? Like is there a yellow pages for the different forums?

scotty · 12-03-2010, 09:47 PM

Quote:

Originally Posted by sog210

Does anyone know where to find a listing of forums??? Like is there a yellow pages for the different forums?

Just google for them.

Pat Shields · 12-03-2010, 09:54 PM

My question is, do you want to find PEOPLE with the problem, or do you want to find people DISCUSSING the problem? If you want to find the actual people, get a job as a nurses' aide on a psych ward. You will find them.

If you want to join discussions, do like Laurie said and Google it. OR maybe better, go to Dogpile and get a LOT of results.

sog210 · 12-04-2010, 03:56 PM

What is dog pile?

LCrawford67 · 12-04-2010, 04:06 PM

Quote:

Originally Posted by sog210

What is dog pile?

A search engine, just like Google is.

12-03-2010, 12:37 PM	#1
sog210 Join Date: Mar 2010 Posts: 291	Anybody know where to find people with permanent lithium neurotoxiicity? Hi everyone, I am trying to get ideas on where to find people who have had neurotoxicity from chronic lithium poisoning? Any ideas? If so that would be great. Sog __________________ Seroquil - began to feel depressed, Mute. Celexa/Trazadone--To reverse or fix this. Lithium 1,350 mg-felt like a dead Mellarill also w lithium(although only 5 nights) zombie/memory problems/ mentally sluggish. Lithium/Perhenazine- months-vision problems,zombie. Lithium/Zyprexa--lobotomy/robot. Abilify/Lamital MY BRAIN IS DAMAGED *All of these combos at high dose/time - HELP! Is this Permanent? I am semi-mentally handicapped, brain disabled. Damaged memory.

12-03-2010, 02:22 PM	#2
palm Join Date: Aug 2006 Posts: 2,532	Re: Anybody know where to find people with permanent lithium neurotoxiicity? Hi, See this blog entry by Bob Fiddaman on Susan Schechter, the author of the popular blog, 'If you're going through hell keep going'. She is in the hospital of kidney dialysis after being on lithium for 25 years. Good luck and I so sorry for your difficulties. Palm __________________ Was on a cocktail of meds for 15 years. Finished taper in June 2010

12-03-2010, 02:47 PM	#3
sog210 Join Date: Mar 2010 Posts: 291	Re: Anybody know where to find people with permanent lithium neurotoxiicity? Thanks, I already read it. Any ideas on where to find people with mjor chemical or metal brain damage? I may try contacting John Hopkins again. Is there a listing of all the different support forums ot just forums online????? Thanks, Sog __________________ Seroquil - began to feel depressed, Mute. Celexa/Trazadone--To reverse or fix this. Lithium 1,350 mg-felt like a dead Mellarill also w lithium(although only 5 nights) zombie/memory problems/ mentally sluggish. Lithium/Perhenazine- months-vision problems,zombie. Lithium/Zyprexa--lobotomy/robot. Abilify/Lamital MY BRAIN IS DAMAGED *All of these combos at high dose/time - HELP! Is this Permanent? I am semi-mentally handicapped, brain disabled. Damaged memory.

12-03-2010, 03:42 PM	#4
walden Join Date: Sep 2010 Location: Rome Posts: 131	Re: Anybody know where to find people with permanent lithium neurotoxiicity? Did you ever think about stem cells?

12-03-2010, 03:45 PM	#5
LCrawford67 Moderator "Everybody poops" Join Date: Mar 2006 Location: Ohio Posts: 34,485	Re: Anybody know where to find people with permanent lithium neurotoxiicity? Sog, you've asked us this many, many times before. We don't know any more about it than you do and all you can do is Google. __________________ aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 Today is the best day, EVER!

12-03-2010, 04:10 PM	#7
walden Join Date: Sep 2010 Location: Rome Posts: 131	Re: Anybody know where to find people with permanent lithium neurotoxiicity? Stem cells, theoretically, can work for every kind of brain injury.

12-03-2010, 04:52 PM	#8
Junior Join Date: Aug 2009 Location: Melbourne, Australia Posts: 6,671	Re: Anybody know where to find people with permanent lithium neurotoxiicity? It would be very dangerous using stem cell therapy when we don't know exactly how these medications work. Nor do we know exactly what causes the various mental illnesses. Hence the reason for the vast amount of problems experienced by people taking psychotropic medications. __________________ 2009 23 Sept - 40mg; 12 Dec -30mg; 2010 16 Jan-25mg; 12 Feb-20mg; 3 May-25mg 28 June-30mg; 10 Sept-25mg; 24 Sept-27.5mg 17 Dec-26mg - stopped stuffing around and got sensible 201116 Jan-25mg; 22 Feb-24mg; 25 Mar-23mg ;24 April-22mg; 26 May-21mg; 5 July-22mg; 5 Sept-21mg; 4 Oct-20mg; 8 Nov-19mg; 4 Dec-18mg; 20124 Jan-17mg; 13 Feb-16mg; 21 June-15mg; 5 Aug-14mg; 17 Sept-13mg, 18 Dec-12.5mg 201327 Jan-12mg, 11 Mar-11.5mg, 2 May-11mg

12-03-2010, 05:06 PM	#10
LCrawford67 Moderator "Everybody poops" Join Date: Mar 2006 Location: Ohio Posts: 34,485	Re: Anybody know where to find people with permanent lithium neurotoxiicity? Magic cure or not....do you honestly think anyone could afford such a thing? Seriously, that's not even realistic. __________________ aka LC aka Laurie C. Paxil, 20 mg since 1997, for IBS Two unsuccessful attempts to quit. Started tapering 11/27/06 PAXIL FREE 12/29/07 Today is the best day, EVER!

12-03-2010, 08:00 PM	#11
sog210 Join Date: Mar 2010 Posts: 291	Re: Anybody know where to find people with permanent lithium neurotoxiicity? Does anyone know where to find a listing of forums??? Like is there a yellow pages for the different forums? __________________ Seroquil - began to feel depressed, Mute. Celexa/Trazadone--To reverse or fix this. Lithium 1,350 mg-felt like a dead Mellarill also w lithium(although only 5 nights) zombie/memory problems/ mentally sluggish. Lithium/Perhenazine- months-vision problems,zombie. Lithium/Zyprexa--lobotomy/robot. Abilify/Lamital MY BRAIN IS DAMAGED *All of these combos at high dose/time - HELP! Is this Permanent? I am semi-mentally handicapped, brain disabled. Damaged memory.

12-03-2010, 09:54 PM	#13
Pat Shields Ms. Pee Pee!! Join Date: Jan 2004 Location: Ft. Leonard Wood/Lebanon, Missouri area Posts: 8,405	Re: Anybody know where to find people with permanent lithium neurotoxiicity? My question is, do you want to find PEOPLE with the problem, or do you want to find people DISCUSSING the problem? If you want to find the actual people, get a job as a nurses' aide on a psych ward. You will find them. If you want to join discussions, do like Laurie said and Google it. OR maybe better, go to Dogpile and get a LOT of results.

12-04-2010, 03:56 PM	#14
sog210 Join Date: Mar 2010 Posts: 291	Re: Anybody know where to find people with permanent lithium neurotoxiicity? What is dog pile? __________________ Seroquil - began to feel depressed, Mute. Celexa/Trazadone--To reverse or fix this. Lithium 1,350 mg-felt like a dead Mellarill also w lithium(although only 5 nights) zombie/memory problems/ mentally sluggish. Lithium/Perhenazine- months-vision problems,zombie. Lithium/Zyprexa--lobotomy/robot. Abilify/Lamital MY BRAIN IS DAMAGED *All of these combos at high dose/time - HELP! Is this Permanent? I am semi-mentally handicapped, brain disabled. Damaged memory.

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