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Old 07-26-2011, 09:48 AM   #1
Jmarie
 
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"Doc" says my taper is taking too long and is cutting me off

So I had a very disappointing appointment with my "doctor" today. I put doctor in quotes cause she is actually a physician's assistant. I liked her a lot as she would always listen to my concerns and input and didn't have that air of arrogance that doctors usually seem to have. Well, I asked her for the liquid Paxil and she agreed but said she is only giving me one refill because I am taking too long with my taper and should be done already. She said if I want more Paxil I will have to find someone else willing to prescribe it to me. I wanted to cry right then and there. Does she really think I WANT to go this slow? If I COULD get off easily, I would. She also ordered an EEG to see if my sleep jerks could really be mini seizures cause she can't see how the Paxil WD could be causing them.

Then she had me meet with the counselor there who talked to me about my WD and said she had helped many people get off AD's and had NEVER met anyone who had physical symptoms WHILE tapering, only when the meds were stopped completely. She told me "I guess it's possible you could be the rare case that does, but I've never seen it." I told her it wasn't rare and about all the people at PP who are going through the same thing and she seemed surprised but wrote down the web address and said she would definitely check it out.

So I am pretty frustrated and don't know what to do exactly. I'm hoping the counselor can convince the doc to keep doling out the Paxil but from what little I have spoken to her it seems she will eventually agree that my taper is taking way too long. I am not working and don't have a ton of money to "interview" doctors until I find one who is willing to prescribe me Paxil while letting me go at my own pace. It looks like I have no other choice though. Really frustrated with the whole medical establishment right now, tbh.
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2009: 20mg-14mg
2010: 14mg-10.5mg
2011: 10.5-7.6mg
2012: 7.5-6.8mg
2013: 6.7-6.3mg
02/24/14: 6.2mg
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07/15/14: 6.0mg
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Old 07-26-2011, 10:03 AM   #2
nickels
 
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Re: "Doc" says my taper is taking too long and is cutting me off

wow, I'm sorry about this Jess. I can only imagine your frustration...my dr felt the same way as yours but did keep writing my script.

How long does your script normally last? My doctor was still writing me a script for a daily 20mg dose...I would just use the bottle till it was empty, as I got lower, the script lasted longer. So, depending on how much your dr is writing the dose for, you at least have some time to search for a new dr.

It is really hard to get thru to some doctors, but i'm hoping the counselor can help you out if changing doctors isn't an option.

Have you thought about upping the size of your drops just a bit?
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Old 07-26-2011, 10:25 AM   #3
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Re: "Doc" says my taper is taking too long and is cutting me off

Quote:
Originally Posted by nickels View Post
wow, I'm sorry about this Jess. I can only imagine your frustration...my dr felt the same way as yours but did keep writing my script.

How long does your script normally last? My doctor was still writing me a script for a daily 20mg dose...I would just use the bottle till it was empty, as I got lower, the script lasted longer. So, depending on how much your dr is writing the dose for, you at least have some time to search for a new dr.

It is really hard to get thru to some doctors, but i'm hoping the counselor can help you out if changing doctors isn't an option.

Have you thought about upping the size of your drops just a bit?
Yes, she wrote me a prescription for liquid Paxil with one refill. At my current dose 250ml will last me two months so I have 4 months to find a new doc. I also have a couple more appointments with the counselor and I am planning on talking to her about my tapering and hopefully she can convince the doc that my taper plan is what is best for me.

I have definitely thought of taking bigger drops but it just scares me cause I am still having such trouble even with these small drops. I just really don't want to crash and have to go back up cause it has taken me so long to get where I am. I think I may just be one of the unlucky ones who is super sensitive to drops in dosage like Songbird, Betsy, etc. It's just really hard for me to take that leap of faith when I am having such a tough time as it is.
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5% or less drops every 3-6 weeks
2009: 20mg-14mg
2010: 14mg-10.5mg
2011: 10.5-7.6mg
2012: 7.5-6.8mg
2013: 6.7-6.3mg
02/24/14: 6.2mg
04/24/14: 6.1mg
07/15/14: 6.0mg
09/15/14: 5.9mg


"For I know the thoughts that I think toward you, says the Lord, thoughts of peace and not of evil, to give you a future and a hope."
Jeremiah 29:11
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Old 07-26-2011, 03:36 PM   #4
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Re: "Doc" says my taper is taking too long and is cutting me off

I'm so sorry this happened. How heartless can a "doctor" be. I think you know your body better than they do. This really angers me. I hope you get some help with this and don't have to taper faster than your body wants you to.
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Old 07-26-2011, 05:52 PM   #5
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Re: "Doc" says my taper is taking too long and is cutting me off

So sorry to hear this Jess. Maybe if she checks this place out she will believe you and be prepared to prescribe more Paxil. Let's hope!
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Old 07-27-2011, 04:41 AM   #6
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Re: "Doc" says my taper is taking too long and is cutting me off

sorry jess. that is one rubbish assistant. x
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Old 07-27-2011, 04:52 AM   #7
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Re: "Doc" says my taper is taking too long and is cutting me off

Make an appointment with the doctor in the practice. Explain what you are doing and why.
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Old 07-27-2011, 05:00 AM   #8
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Re: "Doc" says my taper is taking too long and is cutting me off

Jess,

Your post greatly bothers me because I could have easily have been in your situation. I heard the exact same arguments from my psychiatrist.

Thankfully, he agreed to do it my way even though was quite obvious, he thought what I wanted to do was silly.

I don't understand what the problem is even if the PA thinks you should be done with your taper. She is getting more money from you and you're not doing anything dangerous.

One argument that I used when the compound pharmacist said I was tapering too slowly with Wellbutrin XL, was to ask him if what I was doing was dangerous. When of course, his response was "no", I asked him what the problem was. That shut him up.

I am wondering if the counselor would be willing to advocate for you with the PA using a similar type argument regarding the dangerousness of the practice.

By the way, is seeing the doctor in the practice a possibility? Could the counselor help you with advocacy efforts in dealing with him/her?

I really feel for you in this situation and hope you can find a successful resolution.

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Old 07-27-2011, 07:48 AM   #9
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Re: "Doc" says my taper is taking too long and is cutting me off

Hi Jess,
I agree with Scotty. You need to be proactive here. Sit down with another doc and state your case. It is important.
GC
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Old 07-27-2011, 04:09 PM   #10
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Re: "Doc" says my taper is taking too long and is cutting me off

This is ridiculous, I just don't understand that mentality. How does the PA think this will be a "better" choice for you. Even if they think you can taper faster this is ridiculous.

Also if you want to go faster you know you don't have to totally reinstate if you crash.... if you go faster and have really bad days you can just go back up to your most previous dose, or even just ride our ur current dose for a few extra weeks (I had to do that myself a few times when I had some bad days)

That way you can risk more without feeling that you'll lose everything. I dont know your situation and that may not be right for you, but I figured I'd throw it out there.
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Fine for about 5 wks then became depressed
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Old 07-27-2011, 04:45 PM   #11
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Re: "Doc" says my taper is taking too long and is cutting me off

Quote:
Originally Posted by scotty View Post
Make an appointment with the doctor in the practice. Explain what you are doing and why.
It's not a practice, it's a public clinic for uninsured people. They assign you someone and that is the only person you can meet with unless that person refers you to a specialist for some reason.

The weird thing is that I she wasn't even my main Paxil provider and she has only written me a couple of prescriptions for it. For the past few years I have been getting my Paxil from a walk in clinic. They talk to me for a few minutes and I tell them "Paxil's great, it helps me so much!" and they write me a prescription for 6 refills! But since the last prescription lasted me a year and I haven't been there in that long I was worried they might not write me another one and the visit alone costs 60 bucks. They also have a high turnover rate and it's a new doctor every time I go there. So it's sort of a crapshoot, but at the moment it looks as if it's my only option.
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Paxil since Mar.1998
5% or less drops every 3-6 weeks
2009: 20mg-14mg
2010: 14mg-10.5mg
2011: 10.5-7.6mg
2012: 7.5-6.8mg
2013: 6.7-6.3mg
02/24/14: 6.2mg
04/24/14: 6.1mg
07/15/14: 6.0mg
09/15/14: 5.9mg


"For I know the thoughts that I think toward you, says the Lord, thoughts of peace and not of evil, to give you a future and a hope."
Jeremiah 29:11
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Old 08-01-2011, 04:44 AM   #12
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Re: "Doc" says my taper is taking too long and is cutting me off

this happened to me too...I was given the choice of either abrubtly ending my taper or admitting that I 'need' the meds and agreeing to a larger dose. I should've fought it but I was so tired and had nobody to support me, I let two doctors bully me into taking the larger dose...now I'm starting another taper from an even higher dose.

Like you Jess I'm stuck with a couple of crummy doctors at a clinic because I can't afford to pay someone who actually knows what they're talking about (mostly because I'm paying through the nose for counselling so I can go back to work so I can pay for...cycle goes on) I really wish doctors would admit when they don't know about something rather than bluffing and hoping they're right, which I'm convinced the large majority of doctors in my country do when it comes to mental health.

I feel your pain (and it makes me angry)
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06.09.11 - 18mg
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Old 08-01-2011, 10:57 AM   #13
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Re: "Doc" says my taper is taking too long and is cutting me off

I can imagine How you feel, this is why I am doing my tapering privately, I actually call in for my refills and pay the money and keep the pills on the side. My Doctor would do the same thing as yours. I could go to another so I am not as scared. My doctor is tapering me me now at big drops over 6 months time and I have my pills saved up for this exact problem.

Unfortunately "she" has you in a bad place. I don't know what I would do with the liquid, the pills Are great for stock piling so that there is no threat.

This makes me so angry that Doctors are so ignorant about the tapering withdrawals.

Does this "person" know there are Pdocs that specialize in getting a person off of medications? I bet she does not.

My sibling has to suffer through the public system and believe me it is no picnic, he has been without his medication for 4 days now and calls everyday to find out way. All he gets is an answering machine.
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Old 08-02-2011, 11:35 AM   #14
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Re: "Doc" says my taper is taking too long and is cutting me off

I did this as well to an extent. Even though my doc was cool he still recommended at first a faster taper than I was ready for. I went slower and as I got to know him better he came around to the idea of a slower taper.
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Fine for about 5 wks then became depressed
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Old 08-03-2011, 02:04 PM   #15
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Re: "Doc" says my taper is taking too long and is cutting me off

Is there any chance that you could go there on a day that she is off of work and maybe see somebody else?

I had to fib to my doctor to get him to keep giving me a prescription after he told me that I didn't need the liquid and that I should just cut my dose in half for a week and then stop taking it altogether. I ended up telling him that I had decided to stay on it so he would keep writing the prescriptions and then when I tapered down to 10 mg I told him that I was cutting my dose in half like he suggested. I hated being dishonest, but I did what I had to do.
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Old 08-03-2011, 05:55 PM   #16
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Re: "Doc" says my taper is taking too long and is cutting me off

That is a terrible thing to happen to you. What is she thinking> she isn't thinking. It isn't like Paxil is a "controlled" substance like codiene - though am not sure where you are located.

I admit to lying to my psych dr. - if he knew I wanted to wean off Paxil - then he would do it in a 2 week timeframe - though I will never be able to get liquid Paxil - he doesn't "believe" in it.
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Old 08-03-2011, 10:59 PM   #17
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Re: "Doc" says my taper is taking too long and is cutting me off

WTH!!!!!!!!!!!!! I AM FREAKING ANGRY FOR YOU!

I really don't understand how a doctor can even do this.

Honestly I never told my doc that I was tapering so that I could get the full dosage and then cut it up my own way and have prescriptions last me much longer so it would be less money since I was uninsured. But with liquid, I imagine you can't really do that or it would be more difficult I dunno.

Being uninsured makes it more difficult, I know that all too well. Call around and see if there are docs you could go to who work on a sliding scale or at least let you make payments. I don't see why any doctor worth half a damn would care how long it takes you to taper.
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Old 08-03-2011, 11:45 PM   #18
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Re: "Doc" says my taper is taking too long and is cutting me off

Thanks everyone for your kind replies! Like I mentioned before it is very weird for this doctor to say this since she hasn't even been my main Paxil provider. It would be hard for me to say to her that I've decided to stay on the drug because I go to her for a lot of symptoms that are caused by WD like my insomnia, sleep jerks, stomach issues. For example, I have an EEG this Friday to see if the sleep jerks are not really mini seizures, etc. I also can't request another doc or go when she is out because at this public clinic you are assigned a doctor and can only see that doctor unless this same doctor refers you to a specialist. It is also difficult to even get an appointment and when I do get one it is usually for 4-6 weeks down the line, unless there is a sudden cancellation and they can get you in sooner.

So right now it looks as if I will have to go to the same walk in clinic that I've been getting my Paxil from for the past 3 years. The only problem with that is since they write me a prescription for 20mg pills with 5 refills and I am currently under 10mg that means the last script lasted me a year and so I haven't been back there in that long and they always have different doctors. I'm just worried that I will pay the $60 and then they will still deny me the prescription for whatever reason. Doesn't look like I have much of a choice at the moment though.

I've also decided to stick to the pills cause I am too much of a scaredy cat to switch to liquid at the moment and I would also like to stick to the 20mg since it would be cheaper to cut them in half then to switch to 10mg pills so it looks like both the scripts the doc wrote for me won't even be used. This also means I have to go to this clinic soon since I only have a couple weeks of pills left. So here's hoping it goes well and I can get my crack...er, I mean Paxil. Well that's what they make me feel like anyway with this desperate searching for someone to give me the drugs I NEED. LOL. Thanks again, guys.
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Paxil since Mar.1998
5% or less drops every 3-6 weeks
2009: 20mg-14mg
2010: 14mg-10.5mg
2011: 10.5-7.6mg
2012: 7.5-6.8mg
2013: 6.7-6.3mg
02/24/14: 6.2mg
04/24/14: 6.1mg
07/15/14: 6.0mg
09/15/14: 5.9mg


"For I know the thoughts that I think toward you, says the Lord, thoughts of peace and not of evil, to give you a future and a hope."
Jeremiah 29:11
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Old 08-04-2011, 02:12 AM   #19
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Re: "Doc" says my taper is taking too long and is cutting me off

Quote:
Originally Posted by JessG View Post
So here's hoping it goes well and I can get my crack...er, I mean Paxil. Well that's what they make me feel like anyway with this desperate searching for someone to give me the drugs I NEED. LOL. Thanks again, guys.

Blah, I remember that feeling all so well... feeling like a damn drug addict over a drug that they all told me was "not addictive". I HATED having to call my clinic about refills and such because they would almost always screw them up, I would have to call back and explain that they HAD to get me refills SOON because if not I would start experiencing nasty symptoms. I hated feeling like a damn junkie thanks to these meds. (((Jess))))
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