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General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without.

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Old 07-05-2012, 03:24 PM   #1
Bruno2006
 
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withdrawal and fibro or Cfs

Can going cold turkey cause fibromyalgia or chronic fatigue syndrome or are these solely wd symptoms that SHOULD go away? I have many symptoms of fibro and cfs and can hardly function and am naturally worried that me going cold turkey has caused another "disease" ow whatever.
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2008: Fast Paxil taper failed, back on effexor (225mg)
2009: stopped effexor cold turkey because I could not afford it, switched to zoloft (100mg)
2010: Zoloft taper failed, switched to celexa (30mg)
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"Pain in life is inevitable but suffering is not. Pain is what the world does to you, suffering is what you do to yourself. Pain is inevitable, suffering is optional."
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Old 07-05-2012, 03:27 PM   #2
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Re: withdrawal and fibro or Cfs

Good question i too am very interested in reading replies to this.
May I ask what are your fibro symptoms
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2000 Effexor for arm pain from keyboard, told I had a chemical imbalance it would fix my arm not infrmd of its nature , CT off Effexor psych panic tearful
2000-2010 paroxetine(paxil) 2failed attempts to quit
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Old 07-05-2012, 03:50 PM   #3
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Re: withdrawal and fibro or Cfs

My body hurts all over, I have alternating joint pain (currently in hips), SEVERE fatigue, tingling/needle sensations in feet, memory/cognitive problems, and of course the anxiety and depression. I wonder what the connection between fibro/cfs and antidepressants as they use those drugs to "treat" them.
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2010: Zoloft taper failed, switched to celexa (30mg)
October 2011: Tapered celexa in one week

"Pain in life is inevitable but suffering is not. Pain is what the world does to you, suffering is what you do to yourself. Pain is inevitable, suffering is optional."
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Old 07-05-2012, 03:56 PM   #4
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Re: withdrawal and fibro or Cfs

Having Hypothyroidism myself; when I hear symptoms that could be hypothyroidism, of course, I always think "get your thyroid checked".
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Old 07-05-2012, 04:20 PM   #5
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Re: withdrawal and fibro or Cfs

My thyroid is good luckily.
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2009: stopped effexor cold turkey because I could not afford it, switched to zoloft (100mg)
2010: Zoloft taper failed, switched to celexa (30mg)
October 2011: Tapered celexa in one week

"Pain in life is inevitable but suffering is not. Pain is what the world does to you, suffering is what you do to yourself. Pain is inevitable, suffering is optional."
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Old 07-05-2012, 04:27 PM   #6
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Re: withdrawal and fibro or Cfs

Quote:
Originally Posted by Bruno2006 View Post
Can going cold turkey cause fibromyalgia or chronic fatigue syndrome or are these solely wd symptoms that SHOULD go away? I have many symptoms of fibro and cfs and can hardly function and am naturally worried that me going cold turkey has caused another "disease" ow whatever.
Fibromyalgia = pain. CFS=tired. All part of withdrawal and not a disease process. Look at it this way...why have these diagnosis' exploded in the past decade with no known cause(it's about 10 years that the use of ssri's exploded too)? It's withdrawal.
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Old 07-05-2012, 05:06 PM   #7
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Re: withdrawal and fibro or Cfs

What about people who develop these symptoms without use of anti depressants. I think it's a bit short sighted to blame it purely on medication. Also cfs involves pain symptoms, in fact they both share each others symptoms.

I believe there is a large psychological factor involved in those illnesses so maybe that's why it could also be linked to AD's.

Not directly disagreeing there Scotty it's just I had many of those symptoms before Paxil. I think this was related to anxiety and trauma in my past.

Look up TMS with links to Frued. Doctor John Sarnoff has some interesting theories but I think it's all mainly caused by anxiety and CNS.
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Old 07-05-2012, 05:15 PM   #8
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Re: withdrawal and fibro or Cfs

This is the million dollar question for me...I've been experience fibro symptoms for the past 6 months of my taper. I've had all the tests, and all normal. So far the only diagnosis I have is thoracic outlet syndrome (compression of nerves in the neck causing pain and pins and needles in arms and hand), but over the months the pain has spread all over my body and I generally feel like I have the flu/been run over by a truck. All the doctors can say is that I'm suffering from 'central sensitisation' of the nervous system, which is what they think happens in fibro. I've been offered neurotonin and amitriptyline to settle the mis-firing nerves down but haven't taken them as the whole idea was to be drug-free!

Unfortunately I had a major crash last week after reaching zero paxil, and I'm now reinstating at 10mg. The really interesting thing is, since going back up in dose, the pain is 50% better. So yes, I do think w/d can mimic fibro, by sensitising the cns and affecting pain receptors. I actually have my follow up with the neurologist tomorrow and I'm going to ask his opinion on this. When he looked at my brain scan back in march he actually joked that it looked relatively normal after 12 years on paroxetine!
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Old 07-05-2012, 05:33 PM   #9
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Re: withdrawal and fibro or Cfs

Iwas dx with fibro about three years into paxil...about ten years ago. I know without hesitation it is not psychological or emotional pain. However, though I am only two months into my taper I have noticed a direct corralation between fibro pain & fatigue and where I am in the wd process. It is amazing how my fibro symptoms suddenly come & go accordong to the timing of my wd schedule!
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Old 07-05-2012, 05:56 PM   #10
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Re: withdrawal and fibro or Cfs

Quote:
Originally Posted by Massive View Post
What about people who develop these symptoms without use of anti depressants. I think it's a bit short sighted to blame it purely on medication. Also cfs involves pain symptoms, in fact they both share each others symptoms.
Never said that it didn't exist, but if it exists only when someone is going through withdrawal, then it's the withdrawal.
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Old 07-05-2012, 07:14 PM   #11
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Re: withdrawal and fibro or Cfs

Quote:
Originally Posted by klm207 View Post
When he looked at my brain scan back in march he actually joked that it looked relatively normal after 12 years on paroxetine!
Phew...perhaps we will all be ok after all then, ive been curious about investigating a brain scan myself.
was it a PET, or MRI. what does relatively normal mean anyway. Its all relative isnt it.
Relatively normal for a paroxetine brain or rel normal for a virgin brain (as babs calls it).
Did the frontal lobe look ok.
Im sorry to ask such silly questions but im paranoid.
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8 feb12 windows of nrmlty(16 mnths)
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Old 07-05-2012, 07:28 PM   #12
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Re: withdrawal and fibro or Cfs

I had the unfortunate run in with paxil for 2 months in 95 quit cold turkey, was so confused with the hellish wdl symptoms i thought it was me. Anyway to cut a long story short 3 years later started to get pain in wrists and arm from keyboard use. This spread up arm into shoulder and tingling down right side of face and across right chest area. Was fired b/c couldnt do job anymore .Labelled with RSI, OSS, fibro, CP syndrome.
It made me incredably fatigued and brain fog, zero energy. I was told it was due to the CNS damage. I now wonder if that was done earlier from 2 months on paxil....perhaps im just being paranoid again.
Thats my story with fibro.
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2000 Effexor for arm pain from keyboard, told I had a chemical imbalance it would fix my arm not infrmd of its nature , CT off Effexor psych panic tearful
2000-2010 paroxetine(paxil) 2failed attempts to quit
Jan10- Sept10 clueless 9 mnth self calc taper hell
28 Sept10 drug free..psych & emot. torture
8 feb12 windows of nrmlty(16 mnths)
28 Sept12 stabilising (24 mnths) (what anightmare)
2013;If I was enmy cmbtnt and nz army did this to me someone would be dragged to the Hague and jailed!
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Old 07-05-2012, 10:14 PM   #13
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Re: withdrawal and fibro or Cfs

Withdrawal doesn't cause fibro or CFS. I had them before w/d. Some of the symptoms are similar, but that's it.
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Old 07-06-2012, 08:59 AM   #14
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Re: withdrawal and fibro or Cfs

Yes-if you did not have it before the drugs, then it is prob WD. I had the EXACT same symptoms for 9 months after I took my last pill. I had horrible shooting pain in areas of my arms and legs-the EXACT same areas that they use to diagnose FM-I thought I was doomed forever with FM and CFS. In the first few months off, I also had more of an aching pain-like the flu. I also had such SEVERE fatigue that I couldn't move. I also had strange body temperature problems. My temp would not go above 96 degrees F and I had the chills a lot. I would get hot and cold-SAME symptoms as Hypothryroid so of course I thought I had thyroid issues as well but it turns out that I was fine. Guess what though? These symptoms are GONE now so it definately was WD for me.....!!
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Old 07-06-2012, 09:16 AM   #15
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Re: withdrawal and fibro or Cfs

Quote:
Originally Posted by scotty View Post
Fibromyalgia = pain. CFS=tired. All part of withdrawal and not a disease process. Look at it this way...why have these diagnosis' exploded in the past decade with no known cause(it's about 10 years that the use of ssri's exploded too)? It's withdrawal.
Exactly! I tried to timeline the introduction to CFS and Fibro and they seem to pop up right about the time SSRIs became the thing. I am a firm believer that they are not diseases at all and just side effects of using SSRIs.

Just my opinion of course but I will never take anything for a condition that doesn't have a blood test to confirm a condition ever again.
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Old 07-06-2012, 10:05 AM   #16
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Re: withdrawal and fibro or Cfs

Ever since I reinstated and tapered off, I have had muscle pain in my legs and some nerve pain.

Sometimes I wonder I should reinstate to a lower dosage (paxil) but not sure this will work or just ride it out... Emotionally I am doing OK but it is the physical pain that is making me upset.

All tests come back negative. What specialists did you see that diagnosed you with Fibro? I was prescribed lyrica by my neurologist but have yet to take it.
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Old 07-06-2012, 10:16 AM   #17
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Re: withdrawal and fibro or Cfs

Quote:
Originally Posted by Backtopaxil View Post
Ever since I reinstated and tapered off, I have had muscle pain in my legs and some nerve pain.

Sometimes I wonder I should reinstate to a lower dosage (paxil) but not sure this will work or just ride it out... Emotionally I am doing OK but it is the physical pain that is making me upset.

All tests come back negative. What specialists did you see that diagnosed you with Fibro? I was prescribed lyrica by my neurologist but have yet to take it.
I'd ride it out if I were you. If you arn't having mental problems I wouldn't tempt them.
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Old 07-06-2012, 10:29 AM   #18
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Re: withdrawal and fibro or Cfs

Thanks for all the responses. I think I will wait it out as it appears to be wd.

I do find relief with tumeric, tho. Seems any anti inflammatory substance helps a lot. I am having a few symptoms similar to original symptoms I experienced after quitting the drug (I.e. Neck pain). The joint pain alternates. I had left shoulder pain for 3 months, then it faded away and now its in my hips and right elbow. Quite strange but whatever. I just meditate and everything gets better lol.
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2010: Zoloft taper failed, switched to celexa (30mg)
October 2011: Tapered celexa in one week

"Pain in life is inevitable but suffering is not. Pain is what the world does to you, suffering is what you do to yourself. Pain is inevitable, suffering is optional."
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Old 07-06-2012, 10:42 AM   #19
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Re: withdrawal and fibro or Cfs

Quote:
Originally Posted by markca View Post
I had the unfortunate run in with paxil for 2 months in 95 quit cold turkey, was so confused with the hellish wdl symptoms i thought it was me. Anyway to cut a long story short 3 years later started to get pain in wrists and arm from keyboard use. This spread up arm into shoulder and tingling down right side of face and across right chest area. Was fired b/c couldnt do job anymore .Labelled with RSI, OSS, fibro, CP syndrome.
It made me incredably fatigued and brain fog, zero energy. I was told it was due to the CNS damage. I now wonder if that was done earlier from 2 months on paxil....perhaps im just being paranoid again.
Thats my story with fibro.

What did you take to alleviate the symptoms? Seems that the over the counter stuff does not help me at all.
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Old 07-06-2012, 11:39 AM   #20
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Re: withdrawal and fibro or Cfs

Hello everyone,
I am in my seventh without Paxil and also I have back pain and leg. I think to stop antidepressants it is the most common (there are some messages here that speak of this). It is clear that WD has something to do with this kind of problem. I hope that it will improve over time because before Paxil I did'nt this problem.
Anna.
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Old 07-06-2012, 03:38 PM   #21
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Re: withdrawal and fibro or Cfs

My experience was as soon as I W/D off 3/4 benzos and Effexor, all CFS an FM symptoms dissappeared. I looked up side effects of long term use of benzos and every symptom that had been balled into a syndrome was there. I've been on opiates even for "Non-Malignamt Pain Control" with FM diagnosis. I don't even keep Tylenol nor need it now.

However, and perhaps this should be another thread, has there ever been a co-relation of diabetes onset with Effexor withdrawal. Have had non-stop yeast infections, UTIs and now extreme fatigue along with all the wonderful other withdrawal symptoms so I was just tested for diabetes. My risk factors r that I'm a white female not getting enough exercise. Been at this a year with hardcore withdrawal and frankly not motivated to do the walking I did especially living in an unsafe area and with Depressive symptoms really flaring.

Interesting though the CFS and FM symptoms brought up though my experience was quite different.

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Old 07-06-2012, 03:45 PM   #22
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Re: withdrawal and fibro or Cfs

No,..personally i am 100% convinced this isnt possible. I spend hours and hours and hours during many nights reading on this forum. Even back to 2002. And i read the most worst cases. But never did i find anyone who got a permanent disease or something that didnt left him or her in 4 years.

A friend of mine has CFS and has had it for many years.
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Old 07-09-2012, 05:01 PM   #23
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Re: withdrawal and fibro or Cfs

well my joint pain has been getting worse. My left thumb is getting stiff and I have had a headache the last couple days. I have been taking some ibuprofen and resting a lot but it hasnt been so good. I feel like an old man and am only 28!
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2010: Zoloft taper failed, switched to celexa (30mg)
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"Pain in life is inevitable but suffering is not. Pain is what the world does to you, suffering is what you do to yourself. Pain is inevitable, suffering is optional."
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Old 07-09-2012, 07:25 PM   #24
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Re: withdrawal and fibro or Cfs

I get extreme fatigue in windows still. It is very bad sometimes I can barley get up because it takes so much effort. I also get quite a few other symptoms all at the same time. Fever like symptoms, constant thirst and urination, frequent mouth ulcers and migraines.

I believe all this is due to withdrawal and will get better with time.
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Old 07-10-2012, 12:32 AM   #25
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Re: withdrawal and fibro or Cfs

Quote:
Originally Posted by Bruno2006 View Post
My body hurts all over, I have alternating joint pain (currently in hips), SEVERE fatigue, tingling/needle sensations in feet, memory/cognitive problems, and of course the anxiety and depression. I wonder what the connection between fibro/cfs and antidepressants as they use those drugs to "treat" them.
All of these symptoms can also be a sign of overbreathing. Some of the research I have read on overbreathing/ chronic hyperventilation points it to being one of the root causes of fibro and/or cfs. It was a very eye opening moment for me when I read that from various sources because when I was at my worst I had people telling me "maybe you have fibro"... "maybe you have cfs"... when really... I had chronic overbreathing/hyperventilation and it is something that doesn't always present itself in obvious ways.
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