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General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without.

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Old 03-28-2012, 02:41 PM   #1
Lindelea
 
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about being gentle when giving advice

I think most of us are in this forum for knowledge about the drugs we are taking or used to take and for REASSURANCE. I've read post of people who are desperate, I myself have posted here while being in despair, and most of the time I've run into amazing people who have helped me and I'm thankful for it.

But sometimes I've read posts that end up increasing my anxiety, the worst of it.. is that MOST of us are here because of Anxiety issues or depression, that's why I think we should be very careful about HOW we say things, and the information we give. I'm not telling you to tell lies, not at all, we should be honest all the time, but if somebody comes here saying he or she couldn't sleep last night cause he or she had an awful headache, I wouldn't say things like "oh no, that's so dangerous, you'll probably end up crazy and haivng insomnia, you'll have brain damage and I heard that a person died because of that".. COME ON PEOPLE! -_- be logic.

I mean, somebody just told me that my medical doctor was trying to shut down my brain cause I started taking Lamictal... so, my medical doctor apparently is trying to kill me and all those who take Lamictal are brain dead.

Not fair at all, I'm not asking you to encourage ppl to take meds, not at all, I'm just asking you to be gentle and sympathetic.
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(I've also tried Lamictal and Trileptal)
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Old 03-28-2012, 02:50 PM   #2
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Re: about being gentle when giving advice

I know the feeling. I take the replies as suggestions, since there is no actual medical advise. Always talk to your doctor, they see cases on a daily basis, specially if they are psyc. These drugs come with a set of side effects and need to be evaluated and see if the benefits outweighs the side effects.
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Old 03-28-2012, 02:57 PM   #3
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Re: about being gentle when giving advice

Totally, that's what I did and that's what we all should do, find a good md, read about the meds, talk to people who have been on it, stuff like that... but I just can't stand people who end up scaring me or scaring others, I mean, I couldn't sleep yesterday because of something I read here, I suffer from anxiety.... so.
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This is an unknown awareness

(I've also tried Lamictal and Trileptal)
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Old 03-28-2012, 03:04 PM   #4
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Re: about being gentle when giving advice

Lindelea,

My therapist told me to be careful about the internet and forums. Even not to read them much. They are full of horror stories. PP seems to be a good one filled with caring people that have suffered, but of course you will hear these scary comments every now and then. Just have to be aware of it.

PS: I am back on the brand name Paxil as I had issues with the generics. I would *never* mention this to my mom. She complains about generics and dont want to scare her.
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Old 03-28-2012, 03:14 PM   #5
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Re: about being gentle when giving advice

My therapist told me the same thing, he told me searching on the internet could make my condition worst (and yesterday and today It has done it), but you know, I've foudn relief in here and I like to share with ppl who understand me and who know how I feel.

PS: it's too bad that the generic brand failed, when I tried to reinstate paxil like a month ago I asked my psychiatrist if I could get the generic one she told me some of her patients have had trouble with them, so I sticked to Paxi (even tho it didn't work)
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This is an unknown awareness

(I've also tried Lamictal and Trileptal)
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Old 03-28-2012, 03:56 PM   #6
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Re: about being gentle when giving advice

I always try to remember the worst days that I experienced when I post here, and write with those feelings in mind. When I was at my worst, there was no consolation or logic that could persuade me, but I would cling to compassion like a life preserver.
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Old 03-28-2012, 04:11 PM   #7
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Re: about being gentle when giving advice

Yours may not last 12 months everyone is different. I think it's a combo of all three. I just press on everyday and tell myself this will pass one day although I'm losing hope and think this is the real me now....
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Old 03-28-2012, 05:04 PM   #8
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Re: about being gentle when giving advice

I know the feeling! When I first posted here, it felt like I was being accused of being a drug addict because I take stimulants for add.
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Old 03-28-2012, 05:12 PM   #9
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Re: about being gentle when giving advice

Quote:
Originally Posted by Lindelea View Post
I mean, somebody just told me that my medical doctor was trying to shut down my brain cause I started taking Lamictal... so, my medical doctor apparently is trying to kill me and all those who take Lamictal are brain dead.

Not fair at all, I'm not asking you to encourage ppl to take meds, not at all, I'm just asking you to be gentle and sympathetic.

And that person apologized immediately after her original post and clarified what she meant; it was a wording issue. She also simply posted a link to the FDA drug info site and wrote about a drug she had first hand experience with. So, I'm not exactly sure what you're taking offense to.

And the bottom is this; you know what this board is about and these drugs and their downfalls are the reason this site exists. You choose what you put in your body, but don't act shocked when people express their opinions and experiences; and those experiences aren't gentle at all for just about everyone here.
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Old 03-28-2012, 06:30 PM   #10
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Re: about being gentle when giving advice

I think being careful how things are worded is a good thing and should be practised. However, how often does someone get it wrong in real life? We are all human. We are all imperfect.

The only thing I would say is that there are some on here who have been through an extremely bad time due to doctors and the over-prescribing of psychotropic drugs. Understandably these people have a very dim view of ALL such drugs and their responses to questions / threads etc will reflect this. We all are entitled to our opinion.

My view is that we need to use the "I" word to pass on info rather than point the finger and say "you". In addition, we all have a choice as to what we DO with the information given. We can CHOOSE to be offended, upset or otherwise. Or NOT. Sometimes, if someone has said something that sounds harsh, simply asking them to clarify can alleviate a lot of emotional distress. The majority of the time things are not meant to sound the way they come across.

Just my opinion
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Old 03-28-2012, 07:13 PM   #11
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Re: about being gentle when giving advice

I haven't paid attention to the thread that you are referring to, but don't think that everyone on here is going to make comments that are going to scare you. Everyone has different experiences and because someone had something bad happen to them doesn't mean that it's going to happen to you. I can understand how it's difficult for someone with anxiety to realize that people are just saying what's happened to them.
This place has some very supportive, insightful people who have experienced a lot and can give really good advice. They can really offer help when you need it.
However, if seeing bad experiences is too anxiety-causing for you, maybe it'll be better to take a step back from the forum. It depends on what's healthier for you.
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Old 03-29-2012, 06:24 AM   #12
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Re: about being gentle when giving advice

Nobody here is going to swaddle you in a warm blanket and rock you till you feel better. We are all here because of experiences we've had with certain drugs and to share opinions and advice.

Nobody is trying to scare you or hurt you in any way - if anything, they are trying to help.

I have an anxiety disorder too, and when I find that i'm getting overwhelmed or afraid by what i'm seeing here, I take a step away for however long and put things into perspective.

Attacking people who are trying to help/inform/educate you is just going to alienate others as well.

Saying you are not seeing your neurologist because its 'too many doctors' after an EEG showed irregular brain activity is just ridiculous. You wouldn't go to a urologist with a broken leg. People specialize for years in certain fields for a reason - to become experts in those fields. Your psychiatrist treats psychiatric illness, not neurological disfunction.

ultimately, it's up to you what you decide to do.

I would however recommend being a bit less nasty towards people here. They are just trying to help. You may not always get the answers you want, but there is a wealth of information on this board. If it makes you too anxious then take a step back.
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Old 04-10-2012, 11:02 PM   #13
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Re: about being gentle when giving advice

I curtail the amount of researching, and disclosing of my story on the Internet, for this very reason. There are a few details to my story that I left out here, for instance, knowing full well that I would go absolutely dangerously ballistic as soon as some misguided "misery loves company" type inevitably responded with the very comment(s) that I could least handle hearing. I am an extremely sensitive person in general; to boot, my actual psych problem is medical/hypochondriac OCD. I try to listen to my own doctor(s) and family who have known me all my life, and use Internet groups and medical sites in a VERY limited way. I did years of serious damage via Internet obsessions and compulsions in the past, including forum (not this one) flame wars that actually caused me serious mental-health damage as a result. I really do believe that too much of this type of atmosphere can turn a good thing bad, and that not every personality type is well-equipped for the "play at your own risk" ethos of the Internet in general. There seems to be an almost jeering sort of disdain toward sensitive people on many sites, as if provoking the already-vulnerable were some kind of sport, and as if the lack of a hard and callous personality were the individual's own fault. I guard myself like crazy now; in no way do I feel comfortable disclosing it all, even at a moderated site like this one.
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