our logo
Freedom is in you...
You are enough. You are your solution.  
Go Back   paxilprogress > Paxil > General Discussion
User Name
Password
Register Moderation Guidelines Members List Calendar Search Today's Posts Mark Forums Read

General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without.

Adverse Drug Reaction Reporting    FDA Warnings    Published Withdrawal Studies    Pregnancy Warnings    Forum Psychology

Reply
 
Thread Tools
Old 04-07-2012, 02:11 AM   #1
Hikingsd
 
Hikingsd's Avatar
 
Join Date: Apr 2012
Location: San Diego, Ca
Posts: 10
New to posting on this board

Hi,

I found this site in Sept 2011 in preparation for Paxil tapering in October 2011.

In Oct I went from 20mg to 10mg and had withdrawals. But nothing compared to what I am going through now.

It is all physical that I can tell. Although after reading something 2 days ago I did cry quite a bit. The info stated that withdrawals can last for 2-6 weeks or longer. There is no way I can go through this for that long.

When I was talking to my PCP (I have not had a psych doc since 1996) about tapering completely off I mentioned that I read that going from 20mg to 10mg was a big jump she stated that it was not. That 10mg is a starting dose. I had already tapered to 10mg at this time.

Here are the withdrawals I am experiencing-
  • nausea, vertigo, headaches, chills and what I call pings (blacking out sensation with eye and/or head movement) (possibly what others call "zaps" but I only experience the sensation in my head). I am unable to verbalize my words when people are asking me questions. Highly sensitive to noise and light. I also have a stuffy nose and generalized aching that might be related (or not).

Last night I found a post that stated cold or hot packs to the head might help. I tried both and cold packs seemed to give me a couple of minutes of relief.

I am looking for support and/or suggestions on how to get through the withdrawals. Restarting Paxil is not an option. I am not going through these withdrawals again. If the withdrawals continue as strongly as they have been this past week I will be contacting my PCP for medicine options to help get me through it. If anyone has any suggestions on medication that might help, I am open to them.

I eat a whole foods, plant-based diet (vegan). I do not ingest caffeine or alcohol and do my best to avoid added sugar. I began eating this way around June of last year. I hike and strength train twice a week and do yoga once a week. Exercising and sleep seem to help with some of the withdrawals but it doesn't last long.

Thank you for listening and for the support.
__________________
June 1996 started Paxil 20mg
2004- stopped Paxil cold turkey
2 months after stopping cold turkey- began Paxil 20mg again
Oct 2011- Paxil 10mg
April 1-4 2012- Paxil 5mg
April 5-present- Paxil 0mg
Hikingsd is offline   Reply With Quote
Old 04-07-2012, 02:19 AM   #2
TryingtoGetWell
 
TryingtoGetWell's Avatar
 
Join Date: Mar 2007
Posts: 8,682
Re: New to posting on this board

Welcome, Hikingsd!

I'm a little confused by the taper schedule in your sig:
Quote:
June 1996 started Paxil 20mg
2004- stopped Paxil cold turkey
2 months after stopping cold turkey- began Paxil 20mg again
Oct 2011- Paxil 10mg
April 1-4 2012- Paxil 5mg
April 5-present- Paxil 0mg
Am I correct that after going down to 10 mg in October, you stayed on that dose or tapered to 5 as of April 1, stayed at 5 from April 1-4 only, then discontinued the med as of April 5?
__________________
5/93 - Started paxil after 6 years sensory distortions from benzo WD/low-dose reinst.+chronic medical problems/pain -
20 mg/day; yrs later 15 mg
3/30/06 - 20 mg
4/21/06 - 15 mg
4/27/06 - 10 mg
5/17/06 - 5 mg (none 5/20)
5/21-24/06 - 2.5 mg (5/22 - none)
5/25/06 - d/cd paroxetine
Felt better than in years, then gradual WD symptoms
6/17/06 - Bolted awake in blind terror, started E-ticket ride to hell
2010 - Leaving hell for balmier climate!
(Still on my pre-paxil 0.5 mg clonazepam)
TryingtoGetWell is offline   Reply With Quote
Old 04-07-2012, 02:25 AM   #3
Hikingsd
 
Hikingsd's Avatar
 
Join Date: Apr 2012
Location: San Diego, Ca
Posts: 10
Re: New to posting on this board

Correct. I was on 10mg from Oct to April 1st. I cut down to 5mg on April 1st and discontinued April 5th. I completely discontinued because it was either that or start up again on 10mg.
__________________
June 1996 started Paxil 20mg
2004- stopped Paxil cold turkey
2 months after stopping cold turkey- began Paxil 20mg again
Oct 2011- Paxil 10mg
April 1-4 2012- Paxil 5mg
April 5-present- Paxil 0mg
Hikingsd is offline   Reply With Quote
Old 04-07-2012, 02:40 AM   #4
TryingtoGetWell
 
TryingtoGetWell's Avatar
 
Join Date: Mar 2007
Posts: 8,682
Re: New to posting on this board

I'll be honest. You tapered MUCH too fast.

Very, very few doctors have any idea how slowly most people need to taper in order to get off these meds safely and with quality of life.

I understand totally how unthinkable the idea of going back on the med is, but you could save yourself possibly years of hurt by updosing to the last dose where you felt comfortable (probably 10 mg. if you were okay on that), stabilizing at that dose, then tapering as this group recommends - by tiny decreases of 10% at most of your previous (most recent, not original) dose, and dropping every 3-6 weeks when you've stabilized at each dose.

Don't be alarmed! Although this is a slow taper, this does NOT mean going through withdrawal all over again. Just the opposite. You're already starting to experience withdrawal. The updosing to do a slow taper is to get off the med in a way that minimized withdrawal symptoms and allows people to live their lives while doing so.

I don't know where you read 2-6 weeks of withdrawal. That is true for some people, but too many people who taper too quickly go through years of withdrawal, not just weeks. I was one of them. I didn't know about the very slow taper.

The reason for doing this (especially with people who have previously gone off psychotropic meds, whose nervous systems often become sensitized, affecting subsequent withdrawals) is because these meds work by changing neuroreceptor sites, and there is a healing process involved in restoring those neuroreceptors back to normal. Too often what we see here is that people can spend time tapering slowly, with drops small enough for the nervous system to heal, or they can spend at least as long suffering from overwhelming the nervous system and its healing capacity from a cold-turkey or too-fast taper.

There is a lot of information - and support! - for how to do this. But I really urge you to read more on this site and consider going back to the last dose you were OK on, then staying there while we help you come up with a taper plan where you can heal most readily and avoid the kind of suffering you're experiencing (and even worse symptoms you may yet experience).

I'm not trying to alarm you. I just want people to avoid the needless degree of horror I went through.
__________________
5/93 - Started paxil after 6 years sensory distortions from benzo WD/low-dose reinst.+chronic medical problems/pain -
20 mg/day; yrs later 15 mg
3/30/06 - 20 mg
4/21/06 - 15 mg
4/27/06 - 10 mg
5/17/06 - 5 mg (none 5/20)
5/21-24/06 - 2.5 mg (5/22 - none)
5/25/06 - d/cd paroxetine
Felt better than in years, then gradual WD symptoms
6/17/06 - Bolted awake in blind terror, started E-ticket ride to hell
2010 - Leaving hell for balmier climate!
(Still on my pre-paxil 0.5 mg clonazepam)
TryingtoGetWell is offline   Reply With Quote
Old 04-07-2012, 04:31 AM   #5
jr1985
 
jr1985's Avatar
 
Join Date: Jan 2012
Posts: 442
Re: New to posting on this board

TryingtoGetWell gave some excellent advise. But I would suggest trying a smaller dose of 5mg. People who try to go back on their original dose sometimes find they can no longer tolerate it and it can make things worse.

Reinstating sounds like a good idea, I did it and feel much better compared to how I was in withdrawal
__________________
2003-2005: Paroxetine
2006-2009: Citalopram
2009-2011: Effexor
Aug/Sept 11: Effexor -> Mirtazapine
Oct: C/T Mirtazapine -> Effexor
Nov/Dec: Fast Tapered Effexor - w/d hell
5/2/12: Reinstated Effexor 37.5mg
20/2/12: Updosed 75mg
9/3/12: Dropped 37.5mg
30/4/12: 33.8mg
1/5/12: 37.5mg
4/5/12: 35.6mg
19/6/12: Dropped 2.5%
23/6/12: 35.6mg
29/6/12: 37.5mg
30/6/12: 35.6mg
17/7/12: 37.5mg
Yes, I know it's messy...
jr1985 is offline   Reply With Quote
Old 04-07-2012, 05:12 AM   #6
Hikingsd
 
Hikingsd's Avatar
 
Join Date: Apr 2012
Location: San Diego, Ca
Posts: 10
Re: New to posting on this board

Thank you all for the feedback.

I appreciate the support.
__________________
June 1996 started Paxil 20mg
2004- stopped Paxil cold turkey
2 months after stopping cold turkey- began Paxil 20mg again
Oct 2011- Paxil 10mg
April 1-4 2012- Paxil 5mg
April 5-present- Paxil 0mg
Hikingsd is offline   Reply With Quote
Old 04-07-2012, 05:33 AM   #7
TryingtoGetWell
 
TryingtoGetWell's Avatar
 
Join Date: Mar 2007
Posts: 8,682
Re: New to posting on this board

Quote:
Originally Posted by Hikingsd View Post
Correct. I was on 10mg from Oct to April 1st. I cut down to 5mg on April 1st and discontinued April 5th. I completely discontinued because it was either that or start up again on 10mg.
Quote:
Originally Posted by jr1985 View Post
TryingtoGetWell gave some excellent advise. But I would suggest trying a smaller dose of 5mg. People who try to go back on their original dose sometimes find they can no longer tolerate it and it can make things worse.

Reinstating sounds like a good idea, I did it and feel much better compared to how I was in withdrawal
jr, I believe Hiking's original dose was 20 (for many years, with one c/t then reinstatement after two months) prior to dropping to 10 last October, then holding at 10 until this week, and so on.

I never reinstated, so not sure whether my suggestion of 10 was correct, or how long he should try 5 if he wants to reinstate to do a slow taper.

Hiking - you can certainly think about all this. It's a lot to wrap your mind around, I know. There's a lot of good information in stickies (threads) listed in the threads list of General Discussion forum here, by Betsy and by LCrawford67. There are spreadsheets for calculating precise doses and information on how to measure liquid (suspension) form of paxil in oral syringe, etc., as well as information in Betsy's thread about why we feel slow tapering is so important. (Click on the small green paxilprogress link near the top left of page for list of forums, then click on General Discussion - or ask for us to post direct links.)

Since you just discontinued the paxil, you don't have to decide right away. But bear in mind that there is a window of time for most people in reinstating paxil successfully, and that can be different when one has cold-turkeyed before, so if you feel you should reinstate to slow taper, it might be a good idea to do so pretty soon. The window of time varies enormously from person to person.

You could certainly try going up to 5 first, especially if you were still doing well at that dose, then see how you do over coming weeks. You would probably still be able to go back to a higher dose such as 10 for a while, from what I've read.

And feel free to ask any questions, as well as to check for more feedback here that should be forthcoming soon and in coming days.
__________________
5/93 - Started paxil after 6 years sensory distortions from benzo WD/low-dose reinst.+chronic medical problems/pain -
20 mg/day; yrs later 15 mg
3/30/06 - 20 mg
4/21/06 - 15 mg
4/27/06 - 10 mg
5/17/06 - 5 mg (none 5/20)
5/21-24/06 - 2.5 mg (5/22 - none)
5/25/06 - d/cd paroxetine
Felt better than in years, then gradual WD symptoms
6/17/06 - Bolted awake in blind terror, started E-ticket ride to hell
2010 - Leaving hell for balmier climate!
(Still on my pre-paxil 0.5 mg clonazepam)
TryingtoGetWell is offline   Reply With Quote
Old 04-07-2012, 08:04 AM   #8
jr1985
 
jr1985's Avatar
 
Join Date: Jan 2012
Posts: 442
Re: New to posting on this board

I just think it could be safer trying a small dose, then if Hiking feels better they can increase to the full dose if needed. Rather than going straight to full dose and maybe feeling worse. As they have been on 10mg for months I'd count that as the full dose. But that's just my opinion. Id wait for the resident experts to chime in.
__________________
2003-2005: Paroxetine
2006-2009: Citalopram
2009-2011: Effexor
Aug/Sept 11: Effexor -> Mirtazapine
Oct: C/T Mirtazapine -> Effexor
Nov/Dec: Fast Tapered Effexor - w/d hell
5/2/12: Reinstated Effexor 37.5mg
20/2/12: Updosed 75mg
9/3/12: Dropped 37.5mg
30/4/12: 33.8mg
1/5/12: 37.5mg
4/5/12: 35.6mg
19/6/12: Dropped 2.5%
23/6/12: 35.6mg
29/6/12: 37.5mg
30/6/12: 35.6mg
17/7/12: 37.5mg
Yes, I know it's messy...
jr1985 is offline   Reply With Quote
Old 04-07-2012, 10:21 AM   #9
babs
"dare to suck big!"
 
babs's Avatar
 
Join Date: Mar 2005
Location: San Diego, CA
Posts: 7,908
Re: New to posting on this board

Hi Hiking, and welcome to PP! I am a fellow San Diegan.

My advice would be to reinstate to 10mg immediately, wait until you feel more stable and then begin a slow taper. You essentially went off the 10mg cold turkey, and that's not a good thing and is why you feel so horrible. Stopping antidepressants isn't like pulling off a band-aid fast and it hurts more in the beginning but you get it over with quicker. Going too fast actually results in a longer withdrawal period with worse symptoms. I like to use the comparison of being in a car going 60mph, and then either throwing the car into reverse or gently tapping the brakes for 100 yards. Both will stop the car, but one method is much easier on the car!

Your doctor is misinformed/ignorant about how slowly these drugs need to be tapered, which is no surprise since it is a rare one who knows anything about it.
__________________
Babs

Paxil 20mg 1994-2005
2 failed attempts to quit
Tapered Jan-April 2005
Paxil-free since May 1, 2005
babs is offline   Reply With Quote
Old 04-07-2012, 10:55 AM   #10
Backtopaxil
 
Backtopaxil's Avatar
 
Join Date: Dec 2011
Posts: 1,323
Re: New to posting on this board

Yes go back to 10mg and stabilize and then do a proper taper. Once stable start requesting the liquid paxil. Hope your insurer will cover it.
It should take you like 6-8 months to get off completely. Remember you have been on Paxil for 16 years.

If cant get the liquid, you can try the pills, DO NOT split them cause the weights are not the same. You will have to get a scale ( 0.001 mg), a nail file and a pill cutter. Plus the doseweight spreadsheet listed under General Discussion by LCrawford67.

It has been just 7 days since your last 10mg and should not be an issue going back to 10mg.
__________________
Started April /03-Jul 30/11 10 mg Paxil
2nd Paxil Tapering
Off as of May 28th, 12


"This will take time but it will happen!"
"I've been shouting: it takes at LEAST a year " -- Ariella
"If I am going to suffer, at least I will be Paxil free" -- me!



Backtopaxil is offline   Reply With Quote
Old 04-07-2012, 12:55 PM   #11
jr1985
 
jr1985's Avatar
 
Join Date: Jan 2012
Posts: 442
Re: New to posting on this board

Oh! Well if you've only been for 10mg for a week then it should be ok going back to that dose. Problems seem to start if you've been off longer.
__________________
2003-2005: Paroxetine
2006-2009: Citalopram
2009-2011: Effexor
Aug/Sept 11: Effexor -> Mirtazapine
Oct: C/T Mirtazapine -> Effexor
Nov/Dec: Fast Tapered Effexor - w/d hell
5/2/12: Reinstated Effexor 37.5mg
20/2/12: Updosed 75mg
9/3/12: Dropped 37.5mg
30/4/12: 33.8mg
1/5/12: 37.5mg
4/5/12: 35.6mg
19/6/12: Dropped 2.5%
23/6/12: 35.6mg
29/6/12: 37.5mg
30/6/12: 35.6mg
17/7/12: 37.5mg
Yes, I know it's messy...
jr1985 is offline   Reply With Quote
Old 04-07-2012, 10:04 PM   #12
Hikingsd
 
Hikingsd's Avatar
 
Join Date: Apr 2012
Location: San Diego, Ca
Posts: 10
Re: New to posting on this board

Quote:
Originally Posted by TryingtoGetWell View Post

I don't know where you read 2-6 weeks of withdrawal. That is true for some people, but too many people who taper too quickly go through years of withdrawal, not just weeks. I was one of them. I didn't know about the very slow taper.
@Tryingtogetwell- the years of withdrawal, is that physical, emotional or both?
__________________
June 1996 started Paxil 20mg
2004- stopped Paxil cold turkey
2 months after stopping cold turkey- began Paxil 20mg again
Oct 2011- Paxil 10mg
April 1-4 2012- Paxil 5mg
April 5-present- Paxil 0mg
Hikingsd is offline   Reply With Quote
Old 04-08-2012, 11:40 PM   #13
Hikingsd
 
Hikingsd's Avatar
 
Join Date: Apr 2012
Location: San Diego, Ca
Posts: 10
Re: New to posting on this board

Hi All,

I wanted to share that my w\d's became even worse and while doing more research on the internet I read that magnesium malate can help with the head zaps. I purchased some today from Sprouts Farmer's Market and it has helped. I do still have the zaps but they are not as intense or frequent and I think I will make it through the night without crying from the pain.

Thank you again for all that replied.
__________________
June 1996 started Paxil 20mg
2004- stopped Paxil cold turkey
2 months after stopping cold turkey- began Paxil 20mg again
Oct 2011- Paxil 10mg
April 1-4 2012- Paxil 5mg
April 5-present- Paxil 0mg
Hikingsd is offline   Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools

Forum Jump


All times are GMT -6. The time now is 02:56 PM.


We are not in any way affiliated with Paxil's manufacturer GlaxoSmithKline.
Our ideas and suggestions are anecdotal, inspirational, and they work.

Get the best web browser, FireFox

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.