our logo
Freedom is in you...
You are enough. You are your solution.  
Go Back   paxilprogress > Paxil > General Discussion
User Name
Password
Register Moderation Guidelines Members List Calendar Search Today's Posts Mark Forums Read

General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without.

Adverse Drug Reaction Reporting    FDA Warnings    Published Withdrawal Studies    Pregnancy Warnings    Forum Psychology

Reply
 
Thread Tools
Old 04-11-2012, 02:12 PM   #1
mackenzie
 
mackenzie's Avatar
 
Join Date: Feb 2009
Location: Washington
Posts: 227
11 month update

Hi all,

I can't quite believe it's been a bit over 11 months since I took that last pill sliver. On the good side, I'm long over the insomnia and bouts of extreme anxiety/muscle tension/rage/severe depression that would hit during WD, and for some time after quitting completely. It's wonderful to be able to fall asleep fairly easily, and sleep in on weekends--something I thought I'd never do again during the last half of WD. I'm also doing really well handling the panic/anxiety issues that brought me to paxil in the first place, thanks to a combination of therapy, exercise, yoga, and CBT techniques gleaned from Claire Weeke's book. I have much more energy and notice so much more in the world around me.

I wish I had only positive news to share, but there is one thing that I'm still experiencing that concerns me. I guess it's anhedonia, but I don't think it's quite the same as the emotional numbness and lack of motivation I felt while taking paxil. I can cry again, but don't seem to feel much joy or pleasure, or interest in my work as a freelance writer. I mentioned it to my therapist, and she seems to think it's nothing to do with paxil WD after all this time, and that--since anhedonia is a symptom of depression--it's some sort of perimenopausal, empty-nest syndrome depression (by the way, I wasn't depressed, pre-paxil!). I'd love to know what others think about this, especially those of you who have been off ADs awhile. I don't want to be depressed!

Thanks, and, those of you still tapering and dealing with WD insomnia/anxiety/etc., hang in there--it does get better

Mackenzie
__________________
Started Paxil 20 mg in 2003 for panic attacks/anxiety. Weaned off too fast in 2005, panic attacks/anxiety returned worse than before and had high blood pressure. Started therapy in 2009 and began weaning again from 20 mg.
4/25-12/26/09: 18 mg-8 mg
1/23/10: 7 mg
4/17/10: 6.5 mg
4/24/10: 6.0 mg
5/22/10: 5.4 mg
7/16/10: 5 mg
10/18/10 4.5 mg
11/27/10 4.0 mg
1/8/11 3.6 mg
2/5/11 3.2 mg
3/7/11 2.8 mg
3/31/11 2.5 mg
5/2/11 0 mg
mackenzie is offline   Reply With Quote
Old 04-11-2012, 03:01 PM   #2
caperjackie
 
caperjackie's Avatar
 
Join Date: May 2011
Location: Nova Scotia, Canada
Posts: 1,223
Re: 11 month update

Hi there mackenzie and congratulations on doing so well! I think it may still be WD as I am going through the same and I am well past menopause and empty nest syndrome - lol. Like you, things are much much better but this one along with a mild depression has reappeared lately. Of course maybe I am just over tired....
__________________
Was on Paxil 20mg for a few years
Switched to Paxil 12.5 CR over 10 years ago
Total time on Paxil around 14 years
2 failed attempts at cold turkey
Tapered for over a year by skipping one dose per week each month
Paxil free since April 14th 2011
Still having withdrawal symptoms but getting better
LIFE IS GOOD TOTALLY DRUG FREE
Supplements - Fish oils, Cal/mag, GABA
September 2012 - Supplement free and feeling great
caperjackie is offline   Reply With Quote
Old 04-11-2012, 04:37 PM   #3
LCrawford67
Moderator
"Freakishly Optimistic"
 
LCrawford67's Avatar
 
Join Date: Mar 2006
Location: Ohio
Posts: 34,675
Re: 11 month update

Congratulations on your accomplishment, Mackenzie!

I can't tell you what this is for sure, but there is something to keep in mind. You didn't have this pre Paxil, but you weren't perimenopausal pre Paxil either. So while this still may be you adjusting post Paxil, a lot has changed physically with you in 9 years.

I had a similar situation. I stopped Paxil, after 10 years, at the age of 39. About a year and a half later, all kinds off goofy things started happening, but it wasn't anything to do with Paxil, it was all hormones.

Sadly, this is a downfall for many women who have been on SSRIs for so long. We stop taking them in our 40s, when hormonal changes are starting and it's hard to discern what's what.
__________________
aka LC
aka Laurie C.


Paxil, 20 mg since 1997, for IBS
Two unsuccessful attempts to quit.
Started tapering 11/27/06
PAXIL FREE 12/29/07


Today is the best day, EVER!
LCrawford67 is offline   Reply With Quote
Old 04-11-2012, 05:24 PM   #4
Wld
 
Wld's Avatar
 
Join Date: Dec 2011
Location: So. CA
Posts: 911
Re: 11 month update

Quote:
Originally Posted by LCrawford67 View Post

Sadly, this is a downfall for many women who have been on SSRIs for so long. We stop taking them in our 40s, when hormonal changes are starting and it's hard to discern what's what.
Is it ever! Most of the time i don't know which end is up. Am I REALLY this depressed, have I become horribly anxious, who even KNOWS who i am now, these new hormones I'm taking, how can i even discern how they make me feel? What part is wd and what part's "real". This flippen empty nest on top of it all. No job, what am I gonna do with the rest of my life....omg the list, the list!
__________________
Started Celexa 20 mg. 5/2001
Quit Celexa CT 7/15/2011
AD free for 5 mos.
Reinstated Celexa 10 mg. 12/14/11
Up to 20mg. 12/21/11 sick, horrible time
Down to 10mg. 2/7/12 giving up reinstating
5mg. 2/15/12.
4mg. 2/27/12.
3mg. 3/7/12
2mg. 3/14/12
1mg. 3/21/12
Last dose 3/27/12



Wld is offline   Reply With Quote
Old 04-11-2012, 06:10 PM   #5
lmac
 
lmac's Avatar
 
Join Date: Mar 2012
Location: Ontario, Canada
Posts: 1,108
Re: 11 month update

Congratulations and thanks for the update. I'm only just past 7 mnths post and these posts mean SO much to me as I seem to look for constant reassurance. I know you're looking for people who have been off longer but I read A LOT of posts from those who have been off a very long time. I notice a vey big trend with anhedonia/depression being the last of symptoms to leave. Of course perimenopause/hormones "could" be happening as well, I also notice so many people are being diagnosed this during wd. I am only 37 and my doctor has ordered all kinds of hormone bloodwork for me as she says all my symptoms sound perimenopausal. I'm not even sure I want to do this bloodowkr until I've reached 1 year post ADs because I don't know what I'd do if the hormones came back abnormal. So many people (which I've read on here) has hormone imbalances the first year after ADs but then cleared up once their bodies healed and leveled out. Didn't I read somewhere that ADs and wd from them cause changes in our endocrine systems as well??!!
__________________
Lmac
- 1998-2002: Celexa 20mg
- 2002-2010: Paxil 20mg
- 2009 - 20-0 mg paxil in 5 mnths(with prozac)
- 2009 (Dec): reinstated after 4 mnths off (crash)
- 2009 Dec -2010 Nov: Paxil 20mg
- 2010 Nov: switched to Zoloft 50mg (Paxil poop)
- 2011 Mar: tapered Zoloft (5.5 mnths)
- March: 37.5mg for 2 weeks
- April: 25 mg for 2 weeks
- April: 12.5mg for 18 weeks
AD free since Sept 4th, 2011
- Feb - March 2012: Crashed
- May 2012 - Finally seeing SOME real windows
lmac is offline   Reply With Quote
Old 04-11-2012, 06:32 PM   #6
anman
 
Join Date: Dec 2011
Posts: 37
Re: 11 month update

lmac i just had my levels checked a month ago and they came up with deficiencies so i was put on anti-thyroid meds. naturally i am anxious to ingest anything the doctor gives me now, so i checked alot to see if its safe etc also on this forum. as it turns out it is perfectly safe and I do actually feel a little better now that i have taken them for some weeks BUT, like you i wonder, since the imbalance is most likely caused by withdrawal what will 'aiding' my body with external supplements do. will it speed up my bodys natural healing or will it **** it up even more? does anyone have long term experience/advise with thyroid meds and hormone levels during withdrawal?
__________________




3 years use
fast tapper
anman is offline   Reply With Quote
Old 04-12-2012, 05:00 AM   #7
julieannboo
 
Join Date: Jul 2011
Posts: 1,412
Re: 11 month update

congratulations.

keep going xx
__________________
Paxil History:
20mg - April 1997
0mg - Summer 1998
30mg - October 1999
20mg - October 2002 - July 2011
20mg to 10mg - July 2011 - March 2012 (10% taper)
CRASHED when i got to 5.2mg
Back on 10mg - August 2012
Staying on 10mg - for the time being.
Pleased i am on half my original dose.
julieannboo is offline   Reply With Quote
Old 04-12-2012, 12:43 PM   #8
mackenzie
 
mackenzie's Avatar
 
Join Date: Feb 2009
Location: Washington
Posts: 227
Re: 11 month update

Quote:
Originally Posted by caperjackie View Post
Hi there mackenzie and congratulations on doing so well! I think it may still be WD as I am going through the same and I am well past menopause and empty nest syndrome - lol. Like you, things are much much better but this one along with a mild depression has reappeared lately. Of course maybe I am just over tired....
Congratulations to you, too!
__________________
Started Paxil 20 mg in 2003 for panic attacks/anxiety. Weaned off too fast in 2005, panic attacks/anxiety returned worse than before and had high blood pressure. Started therapy in 2009 and began weaning again from 20 mg.
4/25-12/26/09: 18 mg-8 mg
1/23/10: 7 mg
4/17/10: 6.5 mg
4/24/10: 6.0 mg
5/22/10: 5.4 mg
7/16/10: 5 mg
10/18/10 4.5 mg
11/27/10 4.0 mg
1/8/11 3.6 mg
2/5/11 3.2 mg
3/7/11 2.8 mg
3/31/11 2.5 mg
5/2/11 0 mg
mackenzie is offline   Reply With Quote
Old 04-12-2012, 12:48 PM   #9
mackenzie
 
mackenzie's Avatar
 
Join Date: Feb 2009
Location: Washington
Posts: 227
Re: 11 month update

Quote:
Originally Posted by LCrawford67 View Post
Congratulations on your accomplishment, Mackenzie!

I can't tell you what this is for sure, but there is something to keep in mind. You didn't have this pre Paxil, but you weren't perimenopausal pre Paxil either. So while this still may be you adjusting post Paxil, a lot has changed physically with you in 9 years.

I had a similar situation. I stopped Paxil, after 10 years, at the age of 39. About a year and a half later, all kinds off goofy things started happening, but it wasn't anything to do with Paxil, it was all hormones.

Sadly, this is a downfall for many women who have been on SSRIs for so long. We stop taking them in our 40s, when hormonal changes are starting and it's hard to discern what's what.
Thanks, Laurie! You're right--a lot can change in 8 years, and I'm sure crazy hormone fluctuations are playing a role here. At least I'm not having hot flashes right now (knock on wood)

Mackenzie
__________________
Started Paxil 20 mg in 2003 for panic attacks/anxiety. Weaned off too fast in 2005, panic attacks/anxiety returned worse than before and had high blood pressure. Started therapy in 2009 and began weaning again from 20 mg.
4/25-12/26/09: 18 mg-8 mg
1/23/10: 7 mg
4/17/10: 6.5 mg
4/24/10: 6.0 mg
5/22/10: 5.4 mg
7/16/10: 5 mg
10/18/10 4.5 mg
11/27/10 4.0 mg
1/8/11 3.6 mg
2/5/11 3.2 mg
3/7/11 2.8 mg
3/31/11 2.5 mg
5/2/11 0 mg
mackenzie is offline   Reply With Quote
Old 04-12-2012, 12:58 PM   #10
mackenzie
 
mackenzie's Avatar
 
Join Date: Feb 2009
Location: Washington
Posts: 227
Re: 11 month update

Quote:
Originally Posted by Wld View Post
Is it ever! Most of the time i don't know which end is up. Am I REALLY this depressed, have I become horribly anxious, who even KNOWS who i am now, these new hormones I'm taking, how can i even discern how they make me feel? What part is wd and what part's "real". This flippen empty nest on top of it all. No job, what am I gonna do with the rest of my life....omg the list, the list!
YES, this confusion is the pits...so sorry you're feeling it, too. It's like I have no purpose in life anymore.

One thing I did last week that really lifted my spirits: volunteered for the morning with a gleaning group, harvesting leftover kale, collards, and broccoli for a food bank. Being outside, getting exercise instead of sitting at my desk, talking to other people instead of feeling isolated (I work at home writing), feeling like I was doing something worthwhile--made me feel awesome for the rest of the day.

Mackenzie
__________________
Started Paxil 20 mg in 2003 for panic attacks/anxiety. Weaned off too fast in 2005, panic attacks/anxiety returned worse than before and had high blood pressure. Started therapy in 2009 and began weaning again from 20 mg.
4/25-12/26/09: 18 mg-8 mg
1/23/10: 7 mg
4/17/10: 6.5 mg
4/24/10: 6.0 mg
5/22/10: 5.4 mg
7/16/10: 5 mg
10/18/10 4.5 mg
11/27/10 4.0 mg
1/8/11 3.6 mg
2/5/11 3.2 mg
3/7/11 2.8 mg
3/31/11 2.5 mg
5/2/11 0 mg
mackenzie is offline   Reply With Quote
Old 04-12-2012, 01:01 PM   #11
mackenzie
 
mackenzie's Avatar
 
Join Date: Feb 2009
Location: Washington
Posts: 227
Re: 11 month update

Quote:
Originally Posted by lmac View Post
Congratulations and thanks for the update. I'm only just past 7 mnths post and these posts mean SO much to me as I seem to look for constant reassurance. I know you're looking for people who have been off longer but I read A LOT of posts from those who have been off a very long time. I notice a vey big trend with anhedonia/depression being the last of symptoms to leave. Of course perimenopause/hormones "could" be happening as well, I also notice so many people are being diagnosed this during wd. I am only 37 and my doctor has ordered all kinds of hormone bloodwork for me as she says all my symptoms sound perimenopausal. I'm not even sure I want to do this bloodowkr until I've reached 1 year post ADs because I don't know what I'd do if the hormones came back abnormal. So many people (which I've read on here) has hormone imbalances the first year after ADs but then cleared up once their bodies healed and leveled out. Didn't I read somewhere that ADs and wd from them cause changes in our endocrine systems as well??!!
Thanks very much--this really comforted to me. And it wouldn't surprise me at all that ADs and WD affect our hormones, too!

Mackenzie
__________________
Started Paxil 20 mg in 2003 for panic attacks/anxiety. Weaned off too fast in 2005, panic attacks/anxiety returned worse than before and had high blood pressure. Started therapy in 2009 and began weaning again from 20 mg.
4/25-12/26/09: 18 mg-8 mg
1/23/10: 7 mg
4/17/10: 6.5 mg
4/24/10: 6.0 mg
5/22/10: 5.4 mg
7/16/10: 5 mg
10/18/10 4.5 mg
11/27/10 4.0 mg
1/8/11 3.6 mg
2/5/11 3.2 mg
3/7/11 2.8 mg
3/31/11 2.5 mg
5/2/11 0 mg
mackenzie is offline   Reply With Quote
Old 04-12-2012, 01:03 PM   #12
mackenzie
 
mackenzie's Avatar
 
Join Date: Feb 2009
Location: Washington
Posts: 227
Re: 11 month update

Quote:
Originally Posted by julieannboo View Post
congratulations.

keep going xx
Thanks, Juliannboo!
__________________
Started Paxil 20 mg in 2003 for panic attacks/anxiety. Weaned off too fast in 2005, panic attacks/anxiety returned worse than before and had high blood pressure. Started therapy in 2009 and began weaning again from 20 mg.
4/25-12/26/09: 18 mg-8 mg
1/23/10: 7 mg
4/17/10: 6.5 mg
4/24/10: 6.0 mg
5/22/10: 5.4 mg
7/16/10: 5 mg
10/18/10 4.5 mg
11/27/10 4.0 mg
1/8/11 3.6 mg
2/5/11 3.2 mg
3/7/11 2.8 mg
3/31/11 2.5 mg
5/2/11 0 mg
mackenzie is offline   Reply With Quote
Old 04-12-2012, 02:18 PM   #13
Shiloh1
 
Shiloh1's Avatar
 
Join Date: Sep 2011
Location: California
Posts: 598
Re: 11 month update

Yes I too have the slight anhedonia also still sometimes and sometimes it's just depression like I am incabable of feeling positive emotions....you are right for many people it seems like it is the last symptom to go.....it feels more physical in nature rather than something that I can just "snap myself out of" like I used to......I am almost 13 months off.....
__________________
On 5 mgs Lexapro for 3 years due to stress.
Last pill: 03/24/11
Still Dealing with the Following:
Physical Symptoms: Totally GONE (except I am still unable to lose all the weight but could be because i'm pushing 40)
Psychological Symptoms:
Anhedonia: 60% Improved
Motivation: 70% Improved
Anger/Irritibility: 70% Improved
Insomnia: gone, sleep all night now-most nights.
Sense of Humor: Slowly returning
Now wicked PMS that I did not have before meds
Shiloh1 is offline   Reply With Quote
Old 04-13-2012, 12:58 PM   #14
NewbGuy
 
Join Date: Feb 2009
Posts: 335
Re: 11 month update

Congratulations on all of the improvements. This could be paxil or hormones etc of course. If its paxil still there is nothing to be done but wait. Hormones there may be some courses of action, though you may now be gun-shy about using medications/pharmaceuticals.

Where did you find meaning or pleasure before?

Do you exercise or have a hobby that involves standing and moving around?
Do you meditate?
Do you ever practice mindfulness?
Does your diet include a fair amount of whole food fruit and vegetables?
Do you have a social network, club, interest that you engage in with other people?

I know this is all standard fare as far as prescriptions go, but I always think these things should be in order, before considering further medical/pharmaceutical interventions.

*Edit* Also you and I apparently got off paxil at almost exactly the same time. Most of my major symptoms have cleared as well, but not all. I imagine both of us simply have more time to wait. But its certainly gotten progressively better, even if it didn't follow a totally linear pattern. I think the wait is so unbelievably long that at some point we keep saying " no way can this still be paxil" but I really think often times it is.
__________________
Start 10mg Paxil May07-Mild OCD
Fast Wean Nov/Dec 08
Fine for about 5 wks then became depressed
Wk 6 felt like panic attack dizziness & balance issues.
10mg Reinstate 7Feb09
I tapered from 10mg to 0mg over two years
Paxil Free May 2011


Still struggling but staying positive



NewbGuy is offline   Reply With Quote
Old 04-13-2012, 02:41 PM   #15
alivehope
 
Join Date: Oct 2008
Posts: 735
Re: 11 month update

It is paxil related, I am dealing with anhedonia again. I had it after I quit SSRI few years ago and now I am dealing with it again. I was not depressed before paxil either. Keep going, you will heal.
__________________




on and off paxil from 2004 to 2008
Last pill at 11/7/2008
Severe withdrawal for about 18 months
had a nice life from 18 to 31 months off
80% recovered and was mostly there.

Crashed at 31 months due to severe stress
Took 20mg of paxil at 18/8/2011
Mild withdrawal
Severe PSSD
20% recovered
alivehope is offline   Reply With Quote
Old 04-13-2012, 03:03 PM   #16
aberdeen
 
aberdeen's Avatar
 
Join Date: Jan 2012
Location: Canada
Posts: 4,148
Re: 11 month update

It's w/d. I pretty much cold turkeyed a high dose of Effexor last year. The Paxil didn't do a thing for withdrawal and this has been a rough year. I still get waves of w/d related symptoms, I recognize them. There are paxil effects too, but they are different, I know I'm still working through Effexor withdrawal and it has been 13 months now. I do feel tonnes better, there's no doubt I'm improving, in fact I felt well enough by 11-12 months off that I began to work on my next taper (Paxil). I think it really can last this long! It's not permanent though.
__________________
2 Timothy 1:7: "For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind."

2005-2010 Effexor XR 112.5mg-262.5mg for PPD
June-Dec 2010 Poop-out (crash)
3 month cross taper off Effexor onto 40mg Cipralex, switched to 20mg Celexa, switched to 20mg Paxil
Nothing helped except waiting 7 months to stabilize on Paxil then starting to taper:
Oct'11 to Nov '12 20mg-10mg
March'13 to Feb'14 9mg -4mg
Feb 7/14-4.0mg
April 1/14-3.6mg
aberdeen is offline   Reply With Quote
Old 04-27-2012, 05:46 PM   #17
mackenzie
 
mackenzie's Avatar
 
Join Date: Feb 2009
Location: Washington
Posts: 227
Re: 11 month update

Quote:
Originally Posted by NewbGuy View Post
Congratulations on all of the improvements. This could be paxil or hormones etc of course. If its paxil still there is nothing to be done but wait. Hormones there may be some courses of action, though you may now be gun-shy about using medications/pharmaceuticals.

Where did you find meaning or pleasure before?

Do you exercise or have a hobby that involves standing and moving around?
Do you meditate?
Do you ever practice mindfulness?
Does your diet include a fair amount of whole food fruit and vegetables?
Do you have a social network, club, interest that you engage in with other people?

I know this is all standard fare as far as prescriptions go, but I always think these things should be in order, before considering further medical/pharmaceutical interventions.

*Edit* Also you and I apparently got off paxil at almost exactly the same time. Most of my major symptoms have cleared as well, but not all. I imagine both of us simply have more time to wait. But its certainly gotten progressively better, even if it didn't follow a totally linear pattern. I think the wait is so unbelievably long that at some point we keep saying " no way can this still be paxil" but I really think often times it is.
Sorry, I missed that there had been more replies somehow! Thanks so much--these are all such good questions to ponder. I've been pretty good about exercising in the eves, but I used to do some in the a.m. too and I've slacked off on that over the winter; given my sedentary work (writing) I can use all the exercise I can get, so I'm going to try and pick it up since it really helps my mood and anxiety. I could do a lot better on the other things you mentioned, too--especially meditation. Isolation is a big problem for me, since I work at home alone all day. I notice I have so much more energy and feel happier if I get out around people or meet with a friend.

Things have improved a lot since I first posted this, so I'm hoping for a more positive 12 month update soon!

Thanks again!

Mackenzie
__________________
Started Paxil 20 mg in 2003 for panic attacks/anxiety. Weaned off too fast in 2005, panic attacks/anxiety returned worse than before and had high blood pressure. Started therapy in 2009 and began weaning again from 20 mg.
4/25-12/26/09: 18 mg-8 mg
1/23/10: 7 mg
4/17/10: 6.5 mg
4/24/10: 6.0 mg
5/22/10: 5.4 mg
7/16/10: 5 mg
10/18/10 4.5 mg
11/27/10 4.0 mg
1/8/11 3.6 mg
2/5/11 3.2 mg
3/7/11 2.8 mg
3/31/11 2.5 mg
5/2/11 0 mg
mackenzie is offline   Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools

Forum Jump


All times are GMT -6. The time now is 02:01 AM.


We are not in any way affiliated with Paxil's manufacturer GlaxoSmithKline.
Our ideas and suggestions are anecdotal, inspirational, and they work.

Get the best web browser, FireFox

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.