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General Discussion Open discussion about Paxil, Paxil Withdrawal, successes and progress, good stories and bad, with and without.

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Old 04-14-2012, 07:12 AM   #26
iwantpeace
 
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Re: New to this and scared

My god. I am at a loss for words. Truly at a loss.

There is a website, I cannot remember its name - where you can raise money to help you out - i'll try to find it, you should as well. I would certainly donate what I could towards your sons costs and for expert opinions. If you join a site like that, tell the 'paxil story' and try to get word out perhaps you could raise the necessary funds for Mr Breggin? Just a suggestion.

I have tears in my eyes and for your son and your family. I know I got extremely suicidal when I was cross tapering from paxil to zoloft, so I can only imagine the hell that little boy is going through with cold turkey.

Stay strong. Get your hands on your sons file from the doctor. Suppoena (spelling?) his teachers to testify on what he was like 'pre-paxil', etc. etc.

I'm so very, very sorry and my thoughts and prayers are with you and your son.
xo
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Paxil 20mg from 2001-December 2010
Nov 2010 - 20mg
Dec 2010 - 15mg
Feb 2011-July 2011 - 10mg
July 2011- Sept 2011- 30MG
Sept 2011-Nov 2011- 25mg -17.5mg
Nov 2011- JAN 12: 17.5mg -1.25mg
January 27th 2012- PAXIL FREE
Started Zoloft mid Nov 2011 - currently at 100mg
Feb 8 2012 - Zoloft 75mg
early April 2012
April 11 2012: 62mg - compounding pharmacy - side effects at 75mg not acceptable
April 21 2012 - 50mg - feel much better - staying here for a while.
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Old 04-14-2012, 07:54 PM   #27
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Re: New to this and scared

Thanks iwantpeace . Saw my son today he seems to be taking detox pretty well. I looked for a website like you described yet if you do let me know.
My husbands detox off paxil is terrible. He has had convulsions all day. Took him to ER. I cannot fathom anyone going through the h** we are right now.
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Old 04-14-2012, 07:57 PM   #28
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Re: New to this and scared

Oh and I am so proud of my son! He says when he gets out he wants to raise awareness about paxil and children!
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Old 04-14-2012, 08:16 PM   #29
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Re: New to this and scared

paxilmom14, your husband may have to get back on Paxil for a while, stabilize and then do a slow taper off the drug. The recommended taper rate of this site is 10% of the most recent dose every 3-6 weeks.

Be careful because in the ER they may want to give him more (different) psych drugs which will probably not stop his withdrawal symptoms from Paxil, but will likely make matters worse for him.
__________________
*Poly-drugged since May 2011 (14 meds in 4 months-paradox. reactions to all). From mild anxiety to almost psychosis on meds. IT IS THE MEDS, NOT ME!
*Elavil:
75 mg -> 37.5 (12d)
Imipramine:
37.5 mg -> 0 (1 mo,10/08/11): akathisia!
5 mg -> 0 (1 mo,11/29/11)
Now in w/d hell and missing my old self.
Please go to http://www.askapatient.com and leave a review of your med(s) and w/d experience.
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Old 04-14-2012, 08:34 PM   #30
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Re: New to this and scared

Quote:
Originally Posted by paxilmom14 View Post
Thanks iwantpeace . Saw my son today he seems to be taking detox pretty well. I looked for a website like you described yet if you do let me know.
My husbands detox off paxil is terrible. He has had convulsions all day. Took him to ER. I cannot fathom anyone going through the h** we are right now.

How much was your husband taking and for how long? He needs to go back and stabilize. It is already too much that you have to deal with your son's problems at this time, you need your husband more than ever now. Your husband will be thankful later on when he tapers properly.
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2nd Paxil Tapering
Off as of May 28th, 12


"This will take time but it will happen!"
"I've been shouting: it takes at LEAST a year " -- Ariella
"If I am going to suffer, at least I will be Paxil free" -- me!



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Old 04-14-2012, 09:18 PM   #31
scotty
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Re: New to this and scared

You just can't stop taking paxil! This is a critical thing to understand. Your husband needs to wean and wean slowly. This is not the time to cold turkey, his son needs him.
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Old 04-15-2012, 07:05 AM   #32
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Re: New to this and scared

I can completely understand his desire to be off this drug as quickly as possible. I feel the same way every morning when I swallow the pill. Slow weaning is the only way to stop, though. As bad as it is now, it can get worse. I don't say that to frighten, it's the experiences of people here.
Because he wants to stop taking Paxil, the ER will consider him non compliant with treatment and exhibiting a pre existing condition. They'll most likely prescribe him another SSRI or tell him to up his dose of Paxil. That's the accepted treatment for withdrawal symptoms. According to the companies and the FDA, SSRI are completely safe to take and stop. Any problems with either is an existing condition in the patient. Anyone who has experienced withdrawal knows it's not that simple, but that's the information that ER doctors use when evaluating patients. Resist the idea of starting another SSRI. There are many stories on this site about people who have been on SSRI cocktails, and they are almost uniformly negative.
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Old 04-15-2012, 11:42 AM   #33
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Re: New to this and scared

So my husband wants to taper. Should he start back on a full dose? He is on the time release so we can't cut them should he ask the doc to lower the dose?
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Old 04-15-2012, 12:30 PM   #34
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Re: New to this and scared

Quote:
Originally Posted by paxilmom14 View Post
So my husband wants to taper. Should he start back on a full dose? He is on the time release so we can't cut them should he ask the doc to lower the dose?
What dose is he on? But yes, get back on the dose that he was taking.
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Old 04-15-2012, 01:22 PM   #35
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Re: New to this and scared

He was on 20mg. He is having seizure like convulsions the ER said they arn't true seizures but yesterday his whole body would convulse. Today is more like facial tics. They gave him lorazepam which pretty much just sedates him so he does not notice the tics as much. How long does it take for the zaps to go away after you return to the paxil?
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Old 04-15-2012, 01:28 PM   #36
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Re: New to this and scared

20mg is not ER, usually 25mg or 12.5 mg. So that is good to know, cause it is easier to taper. If it is 25mg ER then he can stabilize on that one and then switch, with doctors approval, to 20mg which is th equivalnt.

Once he takes his pills, it should be a matter of hours, or very few days. He needs to take them every day.

I have not had ANY zaps while tapering and I attribute that to taking fish oil. It is good for your health anyway, so may as well go to Whole Foods and get a bottle. I use one that is made by Norwegian Gold, it is burp free and trust me it does not leave you with any fishy taste. The clerks can help you with all the EPA and potency.

Going back to the pill, once he stabilizes than he can come to this site and the pros will guide him how it is done.
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Started April /03-Jul 30/11 10 mg Paxil
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Off as of May 28th, 12


"This will take time but it will happen!"
"I've been shouting: it takes at LEAST a year " -- Ariella
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Old 04-15-2012, 01:34 PM   #37
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Re: New to this and scared

Lol! We live in the country the nearest nearest whole foods is 78 miles. :/ but we have jaded fish oil before and I know a health food store that carries fish oil. Thanks for the suggestions!
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Old 04-15-2012, 01:36 PM   #38
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Re: New to this and scared

Quote:
Originally Posted by Backtopaxil View Post

Once he takes his pills, it should be a matter of hours, or very few days. He needs to take them every day.
This is pretty much it.
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Old 04-15-2012, 01:38 PM   #39
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Re: New to this and scared

Quote:
Originally Posted by paxilmom14 View Post
Lol! We live in the country the nearest nearest whole foods is 78 miles. :/ but we have jaded fish oil before and I know a health food store that carries fish oil. Thanks for the suggestions!
Any health store will do. I just like WH. I am not fond of fish and had heard horror stories about fish oil ( well like nasty belches in meetings etc). But the one the clerk showed me was good and had the right amount of EPA and stuff that I dont undertstand much. Zero burps and no after taste. And I have yet to have a Zap !
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Started April /03-Jul 30/11 10 mg Paxil
2nd Paxil Tapering
Off as of May 28th, 12


"This will take time but it will happen!"
"I've been shouting: it takes at LEAST a year " -- Ariella
"If I am going to suffer, at least I will be Paxil free" -- me!



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Old 04-15-2012, 02:05 PM   #40
iwantpeace
 
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Re: New to this and scared

Quote:
Originally Posted by paxilmom14 View Post
Thanks iwantpeace . Saw my son today he seems to be taking detox pretty well. I looked for a website like you described yet if you do let me know.
My husbands detox off paxil is terrible. He has had convulsions all day. Took him to ER. I cannot fathom anyone going through the h** we are right now.
Hiya,

here is a site I found. http://www.gofundme.com/

I would suggest setting something up asap and then blasting it on facebook, etc... all your friends, family and start spreading the word - hopefully this way you can get an expert to testify for him.

I'm so sorry to hear about your husband. Get him back on his full dose asap and then Laurie x 2 can give you instructions on how to go about a slow taper.

xoxo
__________________
Paxil 20mg from 2001-December 2010
Nov 2010 - 20mg
Dec 2010 - 15mg
Feb 2011-July 2011 - 10mg
July 2011- Sept 2011- 30MG
Sept 2011-Nov 2011- 25mg -17.5mg
Nov 2011- JAN 12: 17.5mg -1.25mg
January 27th 2012- PAXIL FREE
Started Zoloft mid Nov 2011 - currently at 100mg
Feb 8 2012 - Zoloft 75mg
early April 2012
April 11 2012: 62mg - compounding pharmacy - side effects at 75mg not acceptable
April 21 2012 - 50mg - feel much better - staying here for a while.
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Old 04-15-2012, 02:06 PM   #41
iwantpeace
 
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Re: New to this and scared

Here is another one

http://www.youcaring.com/

I like this one better - no fees charged and seems quite good.
__________________
Paxil 20mg from 2001-December 2010
Nov 2010 - 20mg
Dec 2010 - 15mg
Feb 2011-July 2011 - 10mg
July 2011- Sept 2011- 30MG
Sept 2011-Nov 2011- 25mg -17.5mg
Nov 2011- JAN 12: 17.5mg -1.25mg
January 27th 2012- PAXIL FREE
Started Zoloft mid Nov 2011 - currently at 100mg
Feb 8 2012 - Zoloft 75mg
early April 2012
April 11 2012: 62mg - compounding pharmacy - side effects at 75mg not acceptable
April 21 2012 - 50mg - feel much better - staying here for a while.

Last edited by iwantpeace : 04-15-2012 at 02:12 PM. Reason: add
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Old 04-15-2012, 04:39 PM   #42
miriza
 
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Re: New to this and scared

Quote:
Originally Posted by paxilmom14 View Post
He was on 20mg. He is having seizure like convulsions the ER said they arn't true seizures but yesterday his whole body would convulse. Today is more like facial tics. They gave him lorazepam which pretty much just sedates him so he does not notice the tics as much. How long does it take for the zaps to go away after you return to the paxil?
He should be very very careful with the lorazepam (Ativan). Its withdrawal is as bad or worse than the withdrawal from Paxil and you can get "hooked" to it in a couple of weeks. And by "hooked" I mean that your brain becomes dependent on it to function normally and if you stop taking it you have withdrawal symptoms.

And by the way, zaps in general are mild for most people...the scary part is what comes after the zaps, the emotional Hellish rollercoaster
__________________
*Poly-drugged since May 2011 (14 meds in 4 months-paradox. reactions to all). From mild anxiety to almost psychosis on meds. IT IS THE MEDS, NOT ME!
*Elavil:
75 mg -> 37.5 (12d)
Imipramine:
37.5 mg -> 0 (1 mo,10/08/11): akathisia!
5 mg -> 0 (1 mo,11/29/11)
Now in w/d hell and missing my old self.
Please go to http://www.askapatient.com and leave a review of your med(s) and w/d experience.
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